Towards a Cure for Castleman Disease: One Doctor's Personal Journey
January 23, 2017•16 min
Host: John J. Russell, MD
Castleman disease, a rare idiopathic multicentric disorder, is diagnosed in approximately 5000 people in the United States each year. When one 3rd year medical student suddenly found himself facing this diagnosis personally, at a time when knowledge about the disease was minimal, he helped create a broad-based initiative to address this knowledge gap. Host Dr. John Russell talks with Dr. David Fajgenbaum, a Research Assistant Professor of Medicine in Translational Medicine/Human Genetics and Associate Director of Patient Impact for the Penn Orphan Disease Center at the University of Pennsylvania. He is also co-founder of the Castleman Disease Collaborative Network, a global initiative dedicated to accelerating research and treatment for Castleman disease and improving survival for all patients.