Connecting ALS

Connecting ALS

Connecting ALS is a weekly podcast produced by The ALS Association’s national office and the Association’s Minnesota/North Dakota/South Dakota Chapter. We aim to discuss research and technology developments, highlight advocacy efforts, and share the personal stories woven through the community.... Show More

Episodes

October 22, 2020 15 min
Welcome to Connecting ALS. This week, Mike and Jeremy talk to Dr. Sabrina Paganoni, co-director of MGH Neurological Clinical Research Institute and principal investigator of the CENTAUR trial evaluating the effects of Amylyx Pharmaceutical’s AMX0035 on people living with ALS.
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October 15, 2020 32 min
Welcome to Connecting ALS. On this week's episode we welcome in the hosts of the podcast Born 2 Battle, Chris Beckette and Nathaniel Palone, to discuss the origin of their show and their plans to continue raising awareness for ALS.
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October 8, 2020 22 min
Welcome to Connecting ALS. For this week's episode, we welcome voting rights expert, Dara Baldwin, Director of National Policy for the Center for Disability Rights, to discuss how to vote during a pandemic and what to consider if you're facing mobility and motor function challenges.
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Welcome to Connecting ALS. To kick off National Physical Therapy Month, we are joined by Dr. Shannon Terrell, a physical therapist at Kaiser Permanente Skyline Medical Offices in Colorado.
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September 24, 2020 27 min
Welcome to Connecting ALS. This week we chat with ALS advocate Sunny Brous, who shares how she finds hope and maintains connections during what has been a rollercoaster of a year.
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Welcome to Connecting ALS. This week we are joined by Donnie Graham and Jan Steinbock, who tell us how they are facing wildfires and a global pandemic with ALS.
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Welcome to Connecting ALS. This week we continue the discussion around Amylyx Pharmaceutical’s phase 2 clinical trial results of AMX0035, which was shown to slow down progression of ALS in trial participants.
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Welcome to Connecting ALS. This week we dig into the latest development out of Amylyx Pharmaceuticals, which recently announced findings of a phase 2 clinical trial of AMX0035, a drug compound shown to be safe and clinically effective at slowing down disease progression.
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Welcome to Connecting ALS. This week we discuss what back-to-school means in 2020 for families impacted by ALS.
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Welcome to Connecting ALS. This week we turn our focus to ALS Focus, a survey platform that brings the needs and perspectives of people living with ALS to the center of our fight.
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Welcome to Connecting ALS. This week we talk to Dr. Elijah Stommel, a neurologist at Dartmouth-Hitchcock Health and a professor of neurology at the Geisel School of Medicine at Dartmouth, about the connection between exposure to blue-green algae toxins and the development of ALS.
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Welcome to Connecting ALS. This week we talk to Dr. Lauren Laboissonniere, a neuroscientist at the Ranum Lab at the University of Florida and a recipient of The ALS Association’s Milton Safenowitz Postdoctoral Fellowship.
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Welcome to Connecting ALS. This week we get ready for National Wellness Month by checking in with Dr. Ellen Langer, a social psychologist at Harvard known as the mother of mindfulness.
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Welcome to Connecting ALS. This week we talk to Lorri Carey, a veteran leader in the fight against ALS and host of the podcast “I’m Dying to Tell You.”
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July 9, 2020 22 min
Welcome to Connecting ALS. In this episode, we discuss intimacy in relationships where ALS is present with Dr. Alair Altiero of Penn State’s Hershey Medical Center.
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Welcome to Connecting ALS. This week, we talk to Dr. Richard Bedlack, director of the Duke ALS Clinic and head of ALSUntangled, about a recent paper he co-authored laying out common red-flags patients need to know about when considering off-label treatments.
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Welcome to Connecting ALS. This week, we commemorate Global ALS/MND Awareness Day with members of the International Alliance of ALS/MND Associations and get an update on the fight against ALS motor neurone diseases around the world.
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Welcome to Connecting ALS. This week we talk to Larry Falivena about his 2019 tour of Major League Baseball stadiums to raise awareness of ALS, his thoughts on Lou Gehrig’s birthday and why the Iron Horse continues to inspire people today, and how Father’s Day has changed since Larry’s 2017 diagnosis with ALS.
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Welcome to Connecting ALS. This week we learn more about The ALS Association’s partnership with I AM ALS to provide a $500,000 grant to BrainStorm to study biomarkers during BrainStorm’s ongoing phase 3 clinical trial of NurOwn.
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Welcome to Connecting ALS. This week we talk to three families who share their experiences living with ALS during the COVID-19 pandemic.
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