Celiac Straight Talk

Celiac Straight Talk

Let's get real about living with celiac disease. The ups, the downs and the temptations. Hear real stories from real people with the autoimmune disease.

Episodes

August 15, 2022 52 min

Hear our Reach Beyond Celiac ambassadors share advice on how to safely enjoy gluten-free foods in foreign countries.

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Podcast creator, writer, social media figure, father with celiac disease – all of the above. Ben Hampton has made a name for himself in the celiac disease community, bringing awareness via “A Gluten Free Podcast” and his Instagram page, where he coined the name “A Gluten Free Family.” Listen as Ben talks about living gluten-free in Australia as a father of two with a newfound passion of celiac disease advocacy, especially for male ...

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August 1, 2022 38 min

In this episode, our ambassadors with Reach Beyond Celiac discuss how their symptoms have progressed or changed before, during and after their celiac disease diagnosis. 

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July 26, 2022 36 min

Despite their vastly different diagnosis journeys, interns Leah Popovic and Charlotte Cebula share common threads as college-aged members of the celiac disease community. In this episode, get to know two of our summer interns as they connect their work with Beyond Celiac to their own personal experiences with celiac disease.

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July 18, 2022 41 min

Get to know how our Reach Beyond Celiac ambassadors have discovered helpful tips to live a gluten-free life.

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July 11, 2022 28 min

Catalin Varela never allowed her celiac disease health crisis to hinder her ambitions. In this episode, Leah Popovic of Beyond Celiac speaks to Varela about her intense diagnosis journey which ignited a passion for nutrition, exploration and education. Now pioneering her own business based out of Florence, “The Celiac in Italy'' has lots to share with the community and beyond. Visit https://www.catalinvarela.com/ to view Ca...

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July 5, 2022 36 min

Shanese Shields, also known as “DramaKueen,” across the internet, is well-known for her time on A&E’s “60 Days In,” as a voluntary inmate of an Alabama correctional facility. Leah Popovic of Beyond Celiac moderates this episode, where we learn more about her experiences as a woman with celiac disease and how her time on television has drawn attention to the unjust treatment of incarcerated individuals with autoimmune diseases a...

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Kate Avery and Claire Baker of Beyond Celiac are joined by Doug Jacobstein, M.D. and Dan Leffler, M.D. for this town hall discussion, focusing on how patients are a pivotal aspect of developments in the celiac research community. Both panelists speak about their experiences with clinical trials and how new research can emerge with the help of patient participation.

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In 2021, Beyond Celiac held a virtual mini conference entitled “Hidden in Plain Sight” to explore the numerous experiences faced by celiac patients, especially those who struggle with misdiagnosis or a missed diagnosis. 

This episode (a recording from the mini-conference) centers on the invasive testing procedures endured by celiac patients, as well as the importance of accurate testing and scientific development. Along with Amy Ra...

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In 2021, Beyond Celiac held a virtual mini conference entitled “Hidden in Plain Sight,” which explored the numerous experiences faced by celiac patients as they struggled to get diagnosed. This episode emphasizes the many neurological symptoms that often go overlooked as indicators of celiac disease. Panelists Gabrielle Zimmerman, Iain Croall (Ph.D.) and Nigel Hoggard (M.D.) expand upon their experiences and research in this focus ...
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World-renowned pediatrician and celiac disease expert Dr. Stefano Guandalini sat down with us to answer your questions about celiac disease and the gluten-free diet. Even the most informed patients can learn something new from this episode!

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March 9, 2022 45 min

In this episode, our male ambassadors discuss some of the unique challenges men face in getting diagnosed and living with celiac disease, as well as the stigma friends and family may have about the gluten-free diet. 

 

Note: any use of the term "cross-contamination" should actually be "cross-contact."

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February 15, 2022 51 min

“That advisory board concluded that race, ethnicity, age and gender can all cause delays in diagnosis, or, worse than that, a failure to diagnose at all.”

Amy Ratner of Beyond Celiac, Pooja Mehta, MD, of Children’s Hospital Colorado and patient representative Jocelyn Langevine discuss disparities in diagnosing celiac disease; how they happen, why they happen, and what we can do to get more people diagnosed.

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Amy Ratner and Kate Avery, MPH, of the Beyond Celiac Science Team discuss the most exciting celiac disease research published in the past year and how clinical trials for celiac disease treatments are progressing.   

 

Note: The term "cross-contamination" used at timestamps 38:34 and 38:45 should be "cross-contact."

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When it comes to getting a new diagnosis, friends can be your greatest ally or a crushing loss if they don’t understand your new needs. Our Reach Beyond Celiac Ambassadors discuss the ins and outs of how celiac disease can affect a friendship, old or new. 

 

Note: at timestamps 17:14 and 18:33, the term “cross-contamination” should be “cross-contact.”

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In this episode we sit down with Jennifer Sealey-Voyksner, co-founder and chief scientific officer at ImmunogenX, a biotech company developing latiglutenase, a potential treatment for celiac disease. Jennifer, who has celiac disease herself, discusses her journey to diagnosis, why a treatment beyond the diet is important, and how latiglutenase works.

 

Today's episode is brought to you by Solutions for Celiac. Join their clinic...

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December 8, 2021 38 min
Even without an autoimmune disease, parenting can be tough. But if you’re a parent of a child with a food restriction like the gluten-free diet, this episode is for you. It features our Reach Beyond Celiac Ambassadors explaining their approach to raising children with celiac disease, including planning family vacations, becoming an advocate for their kid’s health, and how to get your little one the care and food they need, whether ...
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Listen in to this thoughtful conversation between Amy Ratner of Beyond Celiac and Erica Dermer of Celiac and the Beast on some of the biggest changes in the celiac disease world since the 1990s, when Amy’s daughter was diagnosed. The pair also speculate about what the next decade or two might hold for our community.

 

Today's episode is brought to you by Solutions for Celiac. Join their clinical trial currently researching a st...

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November 16, 2021 58 min

In this episode we sit down with Lisa Fahey, MD and Betsy Turner, PhD from the Children's Hospital of Philadelphia (CHOP) to discuss pediatric care of celiac disease. The conversation covers topics like introducing gluten to babies at risk, helping children cope with their diagnosis, transitioning to adult care and so much more! Today's episode is brought to you by Solutions for Celiac. Join their clinical trial currently r...

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November 3, 2021 27 min

In this episode our Reach Beyond Celiac Ambassadors continue their conversation on how a celiac disease diagnosis can affect family relationships and give tips for eating together when some family members just don’t seem to understand your diagnosis.

Today's episode is brought to you by Solutions for Celiac. Join their clinical trial currently researching a study medication to treat symptoms commonly suffered by celiac disease ...

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