Busting Myths with Facts for Myalgic Encephalomyelitis (ME/CFS) with Jaime Seltzer. World ME Day 2025

Today on World ME Day: May 12, 2025, join Jaime Seltzer (#MEAction) and Fiona Charlton (ANZMES) for Busting Myths with Facts.

Jaime Seltzer is Scientific Director at #MEAction, TIME100 Health honoree, and affiliate researcher with Stanford University. Jaime is leading ground-breaking projects in ME/CFS, Long COVID, and infection-associated chronic illnesses.

Fiona Charlton is President at ANZMES - the National Advisory on Myalgic Encephalomyelitis / chronic fatigue syndrome (and associated conditions) in Aotearoa / New Zealand.

This conversational interview covers:

• What is ME/CFS?
• Post-Exertional Malaise and Pacing
• Who gets ME/CFS?
• Children with ME/CFS
• Aetiology / causes of ME/CFS
• Severity in ME/CFS
• What ME/CFS is NOT
• Psychosocial impacts of chronic illness
• Brief history of treatments that don't work
• Disease Management
• Final Message for healthcare providers and people with ME/CFS or suspected ME/CFS.

Music Credit: “Tell me the Truth” by Denys Brodovskyi via Pixabay

https://pixabay.com/users/denys_brodovskyi-26932554/

You can watch on YouTube: https://youtu.be/vrmsldi2l7o

Available on Facebook, LinkedIn, and podcast platforms.

Resources:

Infection-Associated Chronic Illness Flashcards for Medical Students (#MEAction): https://millionsmissing.meaction.net/teachME/ Recommended by the CDC (https://www.cdc.gov/me-cfs/hcp/toolkit/resources-for-medical-students.html).

Diagnosis and Management of ME/CFS with CME: https://www.mayoclinicproceedings.org/article/S0025-6196(23)00402-0/fulltext

IoM 2015 https://pubmed.ncbi.nlm.nih.gov/25695122/ https://www.cdc.gov/me-cfs/hcp/diagnosis/iom-2015-diagnostic-criteria-1.html

Best Practice: https://anzmes.org.nz/national-advisory-on-me-releases-best-practice-guidance-with-clinician-and-researcher-support/

Know M.E. Series (ANZMES) with CME: https://anzmes.org.nz/new-cme-accredited-series-for-health-professionals/

Navigating Complexities (Dr. Cathy Stephenson and Fiona Charlton) with CME: https://myhealthhub.co.nz/navigating-the-complexities-of-me-cfs-and-long-covid-2/

Pacing and Management Guide (#MEAction): https://www.meaction.net/wp-content/uploads/2021/02/Pacing-and-Management-Guide-for-ME_CFS-9.pdf

Pacing for Children (#MEAction): https://www.meaction.net/2022/08/02/just-in-time-for-school-pediatric-pacing-guide/

Severe ME/CFS Resources (ANZMES): https://drive.google.com/file/d/1oL_-NsLVi2JGi3trDfg5qx5J4n6aFRkZ/view?usp=sharing

#TransformingLives #WorldMEDay #MEAction #DisabilityJustice #MECFS #LongCOVID #BustingMythsWithFacts #WorldMEAlliance #ANZMES #Fact #MECFSAwareness #GreatestMEdicalScandal #MillionsMissing #DisabilitySOS #JaimeSeltzer #ANZMES