Matters of Engagement

Sangeeta Chopra-Charron came to Ontario Health's Patient and Family Advisory Council (PFAC) with a background in transformational change and a genuine belief that Ontario Health was sincere about partnering with patients and families in system transformation. Four years later, she resigned from the co-Chair role, publicly, with a letter that resonated across the health care sector.

Emily sat down with Sangeeta to talk about what sh...

In this fifth and final episode of the BETTER Women series, Jennifer and Emily zoom out from the study itself to explore what the results actually mean — and why mixed findings are far from failure. Dr. Ruth Heisey reflects on what the project got right, why peer health coaching remains full of promise, and what the healthcare system stands to lose if prevention keeps taking a back seat. Implement...

In this special collaboration with the Knowledge Mobilization Program at CHILD-BRIGHT, a pan-Canadian research network focused on children and youth with brain-based developmental disabilities, we hear directly from three young advocates who are shaping research from the inside. Kelsey Seguin, Sierra Lynn Vanderdeen, and Megan Blais-Hudson share their experiences as youth advisors and student researchers, discussing how they n...

The BETTER Women research team gathered to review their findings, hoping to see clear evidence that peer health coaching improved women's preventative health behaviours. But the results told suggested a more complex story. While the quantitative data showed no statistically significant benefit from adding peer health coaches to the program, the qualitative interviews revealed a diffe...

Meet the peer health coaches - the volunteers at the heart of the BETTER Women project. Through candid conversations, we hear from women who underwent extensive training in motivational interviewing and health coaching to support others on their wellness journeys. From international physicians to cancer survivors to newcomers seeking community connection, these coaches share what drew them to the program, how the training changed t...

How do you design a study to test whether peer support actually works? In this episode, we dive into the nuts and bolts of the BETTER Women research project - a randomized controlled trial examining whether trained volunteer peer health coaches can help people stick with their health goals long-term. We explore the three study sites, learn about recruiting and training participants across different communities, and discover the com...

We know our Canadian healthcare system is overloaded, and that preventative care may help address the increasing pressures on chronic and emergency care services. But how best to support people to actually do what they need to do to improve or manage their own health?  In this series opener, we explore "upstream" healthcare through the BETTER Women research project - a collaboration between Women's College Hospital and the Can...

Discover how peer support could revolutionize Canadian healthcare in this groundbreaking 5-part series from Matters of Engagement, in collaboration with the Canadian Cancer Society and the BETTER Women research team at Women's College Hospital.

Follow the BETTER Women research project, where trained volunteers become peer health coaches, supporting wo...

This REPLAY! episode first aired December, 2021.  New introduction by Emily Nicholas Angl, followed by a full replay of the episode. Also, we've added some publications to the show notes (scroll down) related to this episode.

Discussing Failures in Participatory Research, with Lori Ross

We initially invited Lori Ross on the podcast to discuss the PEERS  (Peers Examining Experiences in Research) Study – a 2 yr federa...

This REPLAY! episode first aired November, 2022.  New introduction by Jennifer Johannesen, followed by a full replay of the episode.

Vagueness of language, unarticulated assumptions, and maintaining the status quo. With Amy Katz and Melody Morton Ninomiya

This is a conversation we’ve been sitting with for many weeks, thinking hard about how to present it. We spoke to our gue...

After more than a year of no new episodes, we're rebooting Matters of Engagement—literally from the cottage dock! Between cicada serenades and turtle sightings, we're announcing exciting new directions.

Get ready for three fresh content streams: Research Collaborations supporting knowledge translation for health and healthcare research projects (with three already in the works!), our Replay Series where we'll revisit standou...

We're doing something a little bit different! We're taking a shot at making video along with the podcast! You can watch this episode on our YouTube channel, or as always, you can listen in your favorite podcast app.

This episode has two parts. We're first going to feature a short talk Jennifer gave at the Canadian Caregiving Summit in Ottawa a few weeks ago, which was specifically focused on her experiences as an extreme caregiver,...

What exactly is the best way to engage patients in a healthcare research project? Well, it's hard to say definitively. Funders like CIHR often require patient involvement, but very little direction is provided beyond general frameworks and guiding principles. Often project teams just have to sort things out on their own. So we were curious to find out how this one particular healthcare research project handled it. 

The details...

It's been a while since we've published an episode!  We have lots on the go these days. Come hang out with Jen and Em as we wrap up the Health Policy series and share what's next.

[download transcript]

Mentioned in this episode:

• Public Engagement in Health Policy Project
• Supporting equity-centred engagement - A step-by-step guide with tailored resources
• Matters of Engagement presents "Podcasting for Knowledge Translation"...

A widely-held assumption is that all residents of Long-term Care (LTC) homes are frail, elderly and in need of sweeping protections as determined by government, policy-makers and LTC home management. The reality, however, is that residents of LTC homes comprise a diverse demographic and have a wide range of needs, interests and concerns. And across the spectrum of needs, residents have a strong desire to participate in key decision...

We're bringing conference vibes to the podcast and presenting a short series of critical work on public engagement from members of the Public Engagement in Health Policy team.  We noted themes of: community exclusion from formal engagement processes; misalignment of goals; questions of legitimacy; and challenges of conducting community-engaged research in institutional settings. 

We already published the keynote from Dr. ...

On September 22, 2022, the Public Engagement in Health Policy project team at McMaster University hosted a one-day conference, Reimagining public engagement in a changing world. Community members, engagement practitioners, researchers, and policymakers gathered virtually and in person to discuss the opportunities and pitfalls of public engagement and to envision a way forward. Attendees explored questions such as, what does it mean...

What makes an engagement process legitimate?  How do technical experts feel about engagement, and how have their ideas of legitimacy changed over time?  These are just some of the questions we explore with our guest, Katherine (Katie) Boothe, Associate Professor in the Political Science Department at McMaster University.

A recent paper of Katie's (Redefining Legitimacy in Canadian Drug Assessment Policy? Comparing Ideas O...

Kim McGrail is the Scientific Director of Health Data Research Network, a CIHR funded initiative whose work in the health data space has implications for, well, everyone living in Canada. And they're keen to involve the public not just in getting input, but in providing guidance into key decisions.  HDRN's work is both technical and somewhat conceptual: their aim is to support researchers to better access health data for resea...