On this episode, Maria shares the sarcoma journey of her daughter Aubrie, who was diagnosed with CIC-DUX4. Maria speaks about the diagnosis experience of a teenager, including having conversations about fertility preservation before starting chemo and ways she's honoring Aubrey after her passing. While working to fulfill her daughter's bucket list, Maria has also been the driver for helping SFA bring the Race to Cure Sarcoma to Austin, Texas for its inaugural Austin race on March 22nd, 2025.
Content Warning: Death from sarcoma, death of a child.
Aubrie's Subtype: https://curesarcoma.org/sarcoma-subtypes/cic-rearranged-sarcoma/
Sarcoma Stories Facebook Group: https://www.facebook.com/groups/512452631597704
Caregiver Connect Facebook Group: https://www.facebook.com/groups/1342913339758774
RTCS Austin: https://secure3.convio.net/soa/site/TR/RacetoCureSarcoma/General?fr_id=1454&pg=entry
All RTCS Locations: https://curesarcoma.org/race-to-cure-sarcoma/
Sarcoma Survey: https://www.surveymonkey.com/r/SFASarcomaSurvey
IRB Protocol ID 0686
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