The CF Together Podcast

The CF Together Podcast

We know the importance of sharing stories and creating community for people living with CF, so we are excited to welcome you to our first season of The CF Together podcast. Throughout each episode you will hear from members of the CF community, researchers, and clinicians. This season we will cover topics such as fertility, parenting, ageing, menopause, chronic pain, life after transplant and a lot more. On the CF Together Podcast we want to keep you updated with the latest research as well as share stories of lived experience from our community, to help you feel more connected and supported, whether you are living with CF or loving someone with CF.

Episodes

July 4, 2025 44 mins
Lyndall Grace, our host for this episode of the CF Together Podcast, interviews Taylah about Body Image. Take a listen as they talk about their body image battles through the years - from school kids through to adulthood, now on modulators. Following Lyndall and Taylah, Raphael catches up with Julianna, a dietitian specialising in body image. Julianna has been working in CF over the past 15 years and offers a wealth of knowl...
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In this heartfelt episode, host Lyndall Grace speaks with Mandy — early childhood educator, CF Together team member, and mum to four-year-old Rory, who lives with cystic fibrosis (CF). Mandy shares the emotional experience of Rory’s diagnosis through newborn screening, describing how she felt deeply overwhelmed then she and her partner focused on working together as a team, drawing on the strength of their family unit to find creat...

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In this episode of the CF Together podcast, you will hear two heartfelt and powerful conversations from within the cystic fibrosis community.

First, Lyndall Grace, who lives with cystic fibrosis, speaks with Savannah May about her incredible journey to motherhood. Savannah shares her experiences with IVF, the challenges and triumphs of parenting with CF, and the unexpected joy of conceiving her second child naturally after starting ...

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In this episode, we tackle the tough, personal, and often uncomfortable questions that don’t always get talked about when we visit our cystic fibrosis (CF) team—those questions that many are thinking but may not know how to bring up.

Should I wear protection during sex?

Why do I keep getting thrush?

Is vaping really that risky for someone with CF?

What’s with the smelly farts?

Can I kiss someone who has a cold?

We’re joined by Kate, a CF...

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Finding your voice to self-advocate can feel overwhelming at times. Gen, Gloria, and Kelly share valuable insights to help navigate the first steps in confidently asking for what you need.
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In this episode Stephanie Quattromani, Executive Manager, Services, Care and Research at CF Together catches up with Alison Archibald from Victorian Clinical Genetics Services, and Belinda McClaren from the Murdoch Children's Research Institute (MCRI) to talk about carrier testing and carrier screening. This episode covers the difference between carrier testing and carrier screening, why people may consider each option, and ...
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In our first episode of The CF Together Podcast, Raphael catches up with James and Davie to talk about their path to fatherhood and living with cystic fibrosis (CF). This episode will make you laugh, squirm and maybe even cry. It's a candid and raw discussion about the IVF journey that led to the magical moment when they both became Dads. The CF Together Podcast also features expert information at the end of each show...
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Welcome to Season 1 of the CF Together Podcast.

CF Together is a national organisation dedicated to improving the lives of people living with cystic fibrosis (CF), advancing CF care and ultimately finding a cure.

We know the importance of sharing stories and creating community for people living with CF, that's why we are excited to welcome you to our first season of the CF Together Podcast.

In upcoming episodes you will hear from memb...

Mark as Played

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