The Cryptid Sloth Show

The Cryptid Sloth Show

Whether you or a loved one are newly diagnosed with Charcot Marie Tooth disease, or you are a seasoned CMT pro, The Cryptid Sloth Show is the podcast for you. Charcot Marie Tooth disease, or CMT for short, is an inheritable peripheral nervous system disease. Also known by names such as Hereditary Motor and Sensory Neuropathy (HMSN), Hereditary Sensory and Autonomic Neuropathy (HSAN), distal Hereditary Motor and Sensory Neuropathy (dHMSN), and many others, CMT is the most common inheritable neuromuscular disease, yet nobody has ever heard of it, including many in the healthcare profession. If you, a family member, or a friend are diagnosed with CMT, chances are reliable information is hard for you to find, and chances are you have more questions than you have answers. The Cryptid Sloth Show is dedicated to bringing you those answers. Show host, Kenneth Raymond, is a CMTer with CMT1A. Diagnosed in 2002, at 29 years old, he has made it his passion to learn and absorb as much about CMT as he can. Learning from the best and brightest CMT experts, and from the CMT patient community alike, Kenneth cuts through the complexities of CMT by engaging you in meaningful and thought-provoking discussion. With each episode, The Cryptid Sloth Show translates the complexities of CMT into easily relatable narratives that Kenneth presents from the patient perspective on a wide range of topics that are important to CMTers. Show guests include everybody from world renowned CMT experts, to everyday CMTers, and everybody in between. New episodes every Wednesday. Join in, subscribe, and bring a friend or two. The Cryptid Sloth Show: Where CMT and Life Meet in Podcast

Episodes

March 17, 2021 24 min

This episode finishes the story of show host Kenneth Raymond’s personal road trip journey that led to his CMT diagnosis. This is the second installment of a two-part episode. The first episode, Road Trip 1, starts with the story of a 12-year-old climbing a giant oak tree in the dead-of-Winter, and then everything changes all of a sudden, without warning, and nothing would ever be the same for our show host, and this episode picks u...

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This episode tells the story of show host Kenneth Raymond’s personal road trip journey that led to his CMT diagnosis. This is the first installment of a two-part episode, and it starts with the story of a 12-year-old climbing a giant oak tree in the dead-of-Winter in suburban Detroit, and then everything changes all of a sudden, without warning, and nothing would ever be the same for our show host.


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February 17, 2021 16 min

Does CMT change types from one generation to the next? Can CMT change types? Can somebody inherit a different type of CMT than what their mom or dad has? The answers are easy, but getting to the why and how behind the answer requires a little bit of digging.

In this episode, we tackle the questions about CMT changing types through inheritance and explain the how and why behind some families having more than one type of CMT.



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February 3, 2021 40 min

With CMT being inheritable, there are four ways that CMT can be inherited. These four ways are called the inheritance patterns. The inheritance patterns are confusing. The genetic mutations that cause CMT are confusing. There are so many types, each confusingly caused by a different confusing gene mutation. CMT is as confusing as it gets. For all the confusing variability of CMT, there's only a couple of things that don't c...

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January 20, 2021 47 min

In this inaugural episode, I dive into the deep end, head first, and fully explain each way Charcot Marie Tooth disease can be inherited, and in great detail. Then, I remove the veil of secrecy from the mysteries of the genetic tests for CMT by explaining what the terminology is in the test reports and how the terminology is used to aid the doctors in interpreting the results.



You can download the episode transcript for free at: htt...

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January 12, 2021 2 min

The official trailer for the Cryptid Sloth Show, the new podcast dedicated to the weirdest named neuromuscular disease nobody has ever heard of: CMT. 


Charcot Marie Tooth disease, or CMT for short, is a rare inheritable neuromuscular disease, and it is the most common inherited neuromuscular disease. Affecting over 3 million people, almost nobody has ever heard of CMT.  The Cryptid Sloth Show is dedicated to fixing that.


Host, Kennet...

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