January 30, 2024 • 24 mins
In "Arte Povera," Aaron "Wheelz" Fotheringham hits the skatepark in his WCMX wheelchair, we learn how to pronounce 'arte povera' and MS plays third wheel.
Shout out
Shout out to Jersey Girl who wrote in to let me know she was a diggin' on the new theme song
@aaronwheelz WCMX GETTIN' RAD
https://www.youtube.com/watch?v=YEXsDdhgX-s
Aaron "Wheelz" Fotheringham WCMX disabled extreme wheelchair at the skate park. Watching his videos blew my mind and made me proud
Arte Povera Selfie
Put the selfie in and remind listeners to subscribe
When was the height of the sound effects- do you remember the sound effects? Contact me and I will give you an incredible shoutout that warps time and space due to its epicness
Famous Quotations: Edison & Rakim
When you have explored all possibilities, remember this - you haven't.
Thomas Edison
https://www.youtube.com/watch?v=6Y1Emb7Jyks
Don't sweat the technique
Cats are big
We can always make a social media profile for our pet cat. people love cats!
Video art, eh?
https://www.youtube.com/watch?v=PQddRHtt0Ts
The video that comes up when you search "Arte povera pronunciation" is like a work in itself
Door Update
The ancient giant door of opportunity is wide open, with light shining through
Stitches/Staple Update
I don't have any stitches or staples in my head or anywhere else in my body at the time of this recording
The stitches fell out in the shower. Just the end of them. They were brown
Three's Company
Everyone who is in a relationship with me is also in a relationship with multiple sclerosis, including my friends and family
#1: Ask before you help
United Spinal Association disability etiquette guide was a concise read that offers interesting perspective on how to treat disabled people respectfully
Acceptance
acceptance of gravity like acceptance last time - gravity is a constant force
Time's up
See you next week! Don't forget to contact me for a Shout Out in the next episode
While you're there, subscribe to get new episode emails
Chapter List
00:00:01 - Intro
00:00:46 - Shout outs
00:01:17 - disabled inspiration: Aaron Fotheringham WCMX rider
00:05:00 - selfie
00:05:28 - to get the full experience, you must subscribe to whats the matter with me?
00:05:39 - do you remember the sound effects?
00:06:24 - kid\'s baseball league debacles
00:08:23 - disabled inspiration: remembering pitcher Jim Abbott
00:09:12 - Quote: Thomas Edison
00:10:45 - Quote: Eric B. & Rakim
00:11:39 - People Love Cats
00:11:54 - arte povera Pronunciation Video
00:14:45 - Ancient Giant Door of Opportunity
00:15:34 - no stitches or staples
00:16:38 - Everyone who is in a relationship with me
00:19:09 - Disability Etiquette Guide
00:22:51 - Outro
Mark as Played
Transcript
Episode Transcript
Available transcripts are automatically generated. Complete accuracy is not guaranteed.
(00:00):
- It's, what's the matter with me podcast,
the God Cast the Dad podcast,
the fishing broadcast.
It's season eight. My name is John.
I'm 44 years old.
Husband, father of twosmall business owner radio
(00:24):
DJ podcaster,
and I have multiple sclerosis
trigeminal neuralgia
and I made this podcast toshare what I'm going through.
Thanks for tuning into thewhat's the Better with me Podcast
- Hopping hot sauce.
(00:46):
It's the best hot sauce.Hopping hot sauce.
It's the best sauce in the world.
The world telling you
- Yada yada.
Shout out to Jersey girl who wrote in
to let me know she wasdigging the new theme song.
(01:07):
Send me an email john@hopinworld.com.
JH Gen at h
opi N-W-O-R-L d.com
and I'll give you a shout out.
Maybe the best shout out youever got or anyone's ever got
or anyone will have.
(01:28):
See dude, I saw this stuff.
Aaron fathering him.
You know this guy fathering him.
What a name foing him.
I, I'm not even sure.
Aaron Fotheringham isan extreme wheelchair
(01:48):
athlete who performs tricks
adapted from skateboarding and BMX.
He competes in the Vegas
AM jam series in skate park competitions
usually against BMX riders
furthering him called Igotta, I gotta look this up.
(02:13):
I can't be calling this guythe wrong Aaron feathering him.
That's a three out offive. Feathering him. Okay.
Alright. Sorry I had to get it right.
Feathering him calls his activity WCMX.
He is the first person tosuccessfully perform a back flip
(02:37):
in a wheelchair at the age of 14
and a double back flip.
At the age of 18,
he performs many othertricks in his wheelchair,
including 180 degree aerials.
When wheel spins
and rail grinds, he plans
(03:00):
to fuse the black backflip with the 180 aerial
into what is known as a flare
or he is got like apretty incredible story.
Aaron feathering him
an extreme wheelchairathlete checked this out,
(03:21):
although he used crutches early on,
he has been a wheelchair user.
Full-time since the age of eight.
He would watch his brother
riding his BMX at the skate park
and one day his brothertold him that he should
try riding his chair in the park.
(03:44):
An event of whichbrothering him said one day
my brother was like,
it'd be really cool if hedropped in on your chair.
Do you wanna try it?
My dad was there and hegave me the thumbs up.
So they helped me get my chairup a four foot quarter pipe.
(04:08):
Then I dropped in andjust fell multiple times.
Then finally I rode away from one of them
and I was hooked.
He uses a customized WCMX wheelchair
designed by box wheelchairs,which is both lightweight
(04:29):
and features for suspension.
This enables him to performthe same sort of tricks
that skateboarders
and BM Xers can do as the suspension
cushions his landing.
It's a awesome, awesome video.
(04:50):
Put a link, link to it home.What's the matter with me?
And it'll be in the email.
That's why you should subscribe. Hold up.
I gotta take a selfie.
But Aaron featheringhim pretty the amazing
right now I'm having to get my wheelchair.
(05:12):
Hold on, let me get thisselfie. I gotta get the selfie.
Why you should subscribe toWhat's the matter with me?
That reminded me thatAaron feathering him.
Yeah, gotta get this selfie. There we go.
Yeah, so we'll put the selfie
(05:33):
and the Aaron featheringa video in the email.
So you gotta, you must subscribe
to what's the matter with me?
Go to, what's the matter with me?
Do org and hit subscribe.
I was, somebody reminded me
(05:56):
of the sound effects,
how much sound effects we used to use
and I forgot about that man.
When that was like last year.I think the year row four.
When was the height of the sound effects?
Do you remember the sound effects?
(06:17):
Write me at JOHN,
at H-O-P-P-I-N-W-O-R-L d.com.
john@hopinworld.com. I'll giveyou an incredible shout out.
Shout out that warmths time
and space due to its epicness.
My wife just wrote me about
(06:40):
how the kids' baseball league,
the baseball league really
because of the weather lastyear, it like made a horrible
baseball season and then that overwhelmed
the poor lady running the baseball league.
(07:01):
She didn't really have theadministrative capability
to deal with so much cancellation
and like the fields were closed,
they couldn't get fieldpermits from the city.
So we,
and then on top of it, whenit finally did come around,
(07:24):
John, John was super upsetabout it and he hated it.
He wouldn't go and soit cost all this money.
He didn't go it. We createdall this negative feeling.
I'm just scared that abaseball season is gonna roll
around and he'll be like,I wanna play baseball.
(07:47):
And you know, I guess we willhave to be like too bad kid.
But I'm a baseball kidand that breaks my heart.
Maybe he won't mention it.It was awful last year.
His team, they had a kind
of schism within the team.
Some of the kids on the teamthought they were better
(08:10):
than the other kids.
Just as a viewer, I can let you know,
these kids were all in the,the league where you were like,
okay, they're basically getting along
because Coronavirus like
ate up all their tee-ball years.
And so the kids have likeno baseball understanding
(08:35):
and then withdrawn.
I can't really play catch with them.
With the one hand I could.I was thinking about that.
Jim Abbott,
remember Jim Abbott in The Angels?
He was incredible.
He pitched with one hand, hethrew the ball to WA home plate
and as part of his pitching motion,
(08:58):
he put on his glove at the same time
and then he would field his position
and they, if they hit it with him,
he would like take it off in the corner
and toss it to first base.
He was not a great field.Jim Abbott, unbelievable.
(09:20):
Jim Abbott. That reminds me of this saying
that my wife was tellingme this like Jim Abbott,
it's unbelievable.
He pitched for the California Angels.
When you have explored,let me start that over.
When you have explored all possibilities,
(09:45):
remember this, you haven't Thomas Edison,
I'm not sure if that'sthe actual quotation
or if that is a verbatimquotation that I like copied down,
but my wife was talkingabout that quotation.
Maybe a verbatim quote.
(10:05):
But when you have exploredall possibilities,
remember this, youhaven't almost certainly
a verbatim quote.
'cause it's like,remember this, you haven't
just with a period.
So it's when you have exploredall possibilities, comma,
(10:26):
remember this, you haven't period.
That's not the proper quotation.
That has to be a verbatim,let me see, hold on. Okay.
Alright, so I'm pretty close.I was just missing the dash.
So it's, remember this dash, you haven't,
(10:47):
that makes more sense.
So I'm gonna put thatin there in the email.
Put a dash, you wanna be accurate?
And then, uh, I heard, uh,don't sweat the technique
you guys, you remember,don't sweat the technique,
don't sweat the technique.
(11:08):
Let's trace the hints and check the file.
Let's see who bit to detect this style.
I flipped the scriptso they can't get foul.
At least not now, it'll take a while.
Mcss want a beef when a play for keeps,
(11:28):
when they sweat the technique,the words of rock him.
Don't sweat the techniqueby Eric being rock him.
I just want to have a quotein there, like to, my wife had
that Thomas Anderson quote,
and I thought, okay, I'll make it even.
I'll have a quote. Don'tsweat this technique.
(11:51):
When, when you've explored allpossibilities, remember this,
you haven't, you can alwaysmake a social media profile
for your pet cat.
People love cats.
Okay, so RA Provera,
let me get on Wikipediahere about RA Provera.
(12:13):
Arte Provera was an artmovement that took place
between the end of the sixties
and the beginning of the seventies
in major cities throughoutItaly and above all.
So it happened betweenthe end of the sixties
(12:34):
and the beginning of the seventies.
I'm not really sure about that kind of
time period definition.
It, it, it, it happenedin this little space.
The term was coined bythe Italian art critic
(12:55):
Germano chant in 1967.
The term term was coinedby Italian art critic
Germano chant in
1967.
So Art Vera's kind of like minimalism,
(13:18):
but kind of informal in a way.
But, so I was trying
to figure out if it waspronounced Art de Provera
or Art Apora.
And so I looked up Artde Provera pronunciation
and the video that comes up
is was 15 seconds long.
(13:41):
And it's one of these videoswhere it just as white
and uh, black type says Arte Provera.
And then this voice keptsaying, Arte Provera,
Arte Provera.
And it kept repeating it.
Actually, I think it wasalmost 30 seconds long
(14:04):
and they've repeated it five
or six times, literally in Italian
means poor art.
And I was looking atthis pronunciation video.
You know, if you look up thepronunciation of anything,
a lot of times you'll get avideo like this on YouTube
(14:25):
that it will say whateverand they'll repeat it.
But watching this ArteProvera, Arte Provera,
Arte Provera.
And they kept saying it
and I was like, this islike a high technology piece
of RTE Provera artwork.
(14:46):
Rte Provera. Anyway, check itout. Check out RTE Provera.
Check out Aaron filtering him.
Remember the sound effects?
I had this vision of the, the ancient
of this ancient giant huge creaking,
(15:08):
super heavy wooden door.
It's like, and it's like opportunity
and it's wide open.
It's like creek boom and it's like open
and there's a light shining through
and dust filtering in the light.
(15:28):
The ancient giant door is wide open.
The ancient giant door ofopportunity is wide open
with light shining through dust,
filtering through the light.
I had that, that that was a vision I had.
(15:49):
Something else that Ihave that I don't have.
What I don't have rightnow, not what I have,
what I don't have, Idon't have any stitches
or staples in my head
or anywhere else in my body at the time
(16:09):
of this recording.
No stitches, no staples, no staples.
The stitches fell out in the shower
and it was like just theend of them, the fart
that wasn't in my body.
I think the part in my body melted
or whatever it does, you know,I knew this would happen.
(16:33):
They were kind of brownprobably from old blood.
They were, I was like,
what's this in my hairwhen I was washing my hair
and it was like tiedtogether medical string.
And I'm like, I think I know what you are.
Everyone who's in arelationship with me, like even
(16:57):
just if you listen to this podcast,
but especially my friends
and my family, they're in are you're in a relationship
with me, but it's not just with me,
it's with ms.
Like, and so anyonewho has to deal with me
(17:20):
has to also deal with ms.
And that was something I realized
last week or something.
I was like, you can'tjust be friends with me.
You have to be friends with me and Ms.
And MS is really not a great
(17:43):
at attract, not anattractive relationship.
People aren't running towardsMS being like, oh yeah,
let's be friends.
People aren't. And so itmakes friendship with me,
people in a relationshipwith me, even my family,
(18:05):
even my kids and my wife.
And that bothers me pretty greatly.
And I'm trying to dealwith the, the emotions
that come from that
because I really valuemy friends and family
(18:25):
and it was kind of harsh to realize
it's never gonna be just me and them.
It seems like that isone of those things not
to dwell on, right?
It seems like that's going to be one
of those things that's good.
(18:46):
Not to dwell on to move fast,
but it is kind ofsomething I just realized
or I wanted to put it out there
and there's a lot ofemotions that came from that.
But what is it mean really?
It's just me feeling like
(19:08):
being upset about that.
But in reality not, it's kind of vague,
a vague concept.
It's true enough to say, Hey listen,
I saw the other day I saw a guide.
(19:28):
I'm not sure where I ran across it.
I saw the United Spinal Association
Disability Etiquette Guide.
So these were someinteresting tips when dealing
with a disabled person,a person in a wheelchair.
(19:49):
And I thought they werekind of cool, interesting
ways to deal with disabledpeople thinking about
how to deal with disabled people.
The United Spinal Association's Disability
etiquette Guide includesthe following tips.
(20:12):
Do not touch, grab
or guide someone with a disability
without their permission.
Remember that people with disabilities
consider their equipmentpart of their personal space.
Treat adults as adults.
(20:33):
Don't patronize ask
before you help.
Do not touch Pat
or grab, speak directly to the person
with a disability.
Avoid making assumptions.
Be open to requests for access
(20:54):
or accommodation.
Use respectful person first language.
Provide a clear path of travel
and welcome service animals ask
before you help.
Don't assume that
because a person has adisability, they need help.
(21:17):
Usually they'll ask ifthey need assistance,
if you offer and they accept.
Follow their instructions,they know their capabilities.
Do not touch pat
or grab, no one wants tobe touched without consent,
including people with disabilities.
(21:41):
Do not touch, grab
or guide them in theirwheelchair, scooter,
or cane without permission.
Remember that people with disabilities
consider their equipmentpart of their personal space.
Space. Speak directly to the person
(22:02):
with a disability.
Also, while striking up aconversation is great, remember
that most people, includingthose with disabilities,
would rather not discuss their bodies
or medical history withpeople they just met.
(22:23):
Avoid making assumptions.
People with disabilitiesare the best judge of
what they can or cannot do.
Remember, it could violatethe A DA in many situations
to exclude people from an activity
because of their disability.
(22:46):
Be open to requests foraccommodation nurturing.
An equitable inclusivesociety is up to all of us.
So I'm gonna post a link
to the United Spinal Association.
Gotta to accept gravity
(23:06):
like we had acceptance last time.
Gotta to accept gravity.Gravity is a constant force.
And we go be going on.I'll check you next time.
Thank you for tuning in.
We have Aaron feathering, himdisabled extreme wheelchair.
(23:27):
Don't sweat the technique.And Thomas Edison.
People love cats are theyProvera the giant door
of opportunity.
There's no stitches in mybody, no staples in my head.
Everyone in a relationship
with me is also in a relationship with Ms.
(23:50):
Disability Etiquette Guide from the United
Spinal Association.
We gotta accept gravity.
Thank you for tuning in towhat's the matter with Me podcast
Checking next time.
- It's, what's the matter with me podcast,
the God Cast the Dad podcast,
the fishing broadcast.
It's season eight. My name is John.
I'm 44 years old.
Husband, father of twosmall business owner radio
(00:24):
DJ podcaster,
and I have multiple sclerosis
trigeminal neuralgia
and I made this podcast toshare what I'm going through.
Thanks for tuning into thewhat's the Better with me Podcast
- Hopping hot sauce.
(00:46):
It's the best hot sauce.Hopping hot sauce.
It's the best sauce in the world.
The world telling you
- Yada yada.
Shout out to Jersey girl who wrote in
to let me know she wasdigging the new theme song.
(01:07):
Send me an email john@hopinworld.com.
JH Gen at h
opi N-W-O-R-L d.com
and I'll give you a shout out.
Maybe the best shout out youever got or anyone's ever got
or anyone will have.
(01:28):
See dude, I saw this stuff.
Aaron fathering him.
You know this guy fathering him.
What a name foing him.
I, I'm not even sure.
Aaron Fotheringham isan extreme wheelchair
(01:48):
athlete who performs tricks
adapted from skateboarding and BMX.
He competes in the Vegas
AM jam series in skate park competitions
usually against BMX riders
furthering him called Igotta, I gotta look this up.
(02:13):
I can't be calling this guythe wrong Aaron feathering him.
That's a three out offive. Feathering him. Okay.
Alright. Sorry I had to get it right.
Feathering him calls his activity WCMX.
He is the first person tosuccessfully perform a back flip
(02:37):
in a wheelchair at the age of 14
and a double back flip.
At the age of 18,
he performs many othertricks in his wheelchair,
including 180 degree aerials.
When wheel spins
and rail grinds, he plans
(03:00):
to fuse the black backflip with the 180 aerial
into what is known as a flare
or he is got like apretty incredible story.
Aaron feathering him
an extreme wheelchairathlete checked this out,
(03:21):
although he used crutches early on,
he has been a wheelchair user.
Full-time since the age of eight.
He would watch his brother
riding his BMX at the skate park
and one day his brothertold him that he should
try riding his chair in the park.
(03:44):
An event of whichbrothering him said one day
my brother was like,
it'd be really cool if hedropped in on your chair.
Do you wanna try it?
My dad was there and hegave me the thumbs up.
So they helped me get my chairup a four foot quarter pipe.
(04:08):
Then I dropped in andjust fell multiple times.
Then finally I rode away from one of them
and I was hooked.
He uses a customized WCMX wheelchair
designed by box wheelchairs,which is both lightweight
(04:29):
and features for suspension.
This enables him to performthe same sort of tricks
that skateboarders
and BM Xers can do as the suspension
cushions his landing.
It's a awesome, awesome video.
(04:50):
Put a link, link to it home.What's the matter with me?
And it'll be in the email.
That's why you should subscribe. Hold up.
I gotta take a selfie.
But Aaron featheringhim pretty the amazing
right now I'm having to get my wheelchair.
(05:12):
Hold on, let me get thisselfie. I gotta get the selfie.
Why you should subscribe toWhat's the matter with me?
That reminded me thatAaron feathering him.
Yeah, gotta get this selfie. There we go.
Yeah, so we'll put the selfie
(05:33):
and the Aaron featheringa video in the email.
So you gotta, you must subscribe
to what's the matter with me?
Go to, what's the matter with me?
Do org and hit subscribe.
I was, somebody reminded me
(05:56):
of the sound effects,
how much sound effects we used to use
and I forgot about that man.
When that was like last year.I think the year row four.
When was the height of the sound effects?
Do you remember the sound effects?
(06:17):
Write me at JOHN,
at H-O-P-P-I-N-W-O-R-L d.com.
john@hopinworld.com. I'll giveyou an incredible shout out.
Shout out that warmths time
and space due to its epicness.
My wife just wrote me about
(06:40):
how the kids' baseball league,
the baseball league really
because of the weather lastyear, it like made a horrible
baseball season and then that overwhelmed
the poor lady running the baseball league.
(07:01):
She didn't really have theadministrative capability
to deal with so much cancellation
and like the fields were closed,
they couldn't get fieldpermits from the city.
So we,
and then on top of it, whenit finally did come around,
(07:24):
John, John was super upsetabout it and he hated it.
He wouldn't go and soit cost all this money.
He didn't go it. We createdall this negative feeling.
I'm just scared that abaseball season is gonna roll
around and he'll be like,I wanna play baseball.
(07:47):
And you know, I guess we willhave to be like too bad kid.
But I'm a baseball kidand that breaks my heart.
Maybe he won't mention it.It was awful last year.
His team, they had a kind
of schism within the team.
Some of the kids on the teamthought they were better
(08:10):
than the other kids.
Just as a viewer, I can let you know,
these kids were all in the,the league where you were like,
okay, they're basically getting along
because Coronavirus like
ate up all their tee-ball years.
And so the kids have likeno baseball understanding
(08:35):
and then withdrawn.
I can't really play catch with them.
With the one hand I could.I was thinking about that.
Jim Abbott,
remember Jim Abbott in The Angels?
He was incredible.
He pitched with one hand, hethrew the ball to WA home plate
and as part of his pitching motion,
(08:58):
he put on his glove at the same time
and then he would field his position
and they, if they hit it with him,
he would like take it off in the corner
and toss it to first base.
He was not a great field.Jim Abbott, unbelievable.
(09:20):
Jim Abbott. That reminds me of this saying
that my wife was tellingme this like Jim Abbott,
it's unbelievable.
He pitched for the California Angels.
When you have explored,let me start that over.
When you have explored all possibilities,
(09:45):
remember this, you haven't Thomas Edison,
I'm not sure if that'sthe actual quotation
or if that is a verbatimquotation that I like copied down,
but my wife was talkingabout that quotation.
Maybe a verbatim quote.
(10:05):
But when you have exploredall possibilities,
remember this, youhaven't almost certainly
a verbatim quote.
'cause it's like,remember this, you haven't
just with a period.
So it's when you have exploredall possibilities, comma,
(10:26):
remember this, you haven't period.
That's not the proper quotation.
That has to be a verbatim,let me see, hold on. Okay.
Alright, so I'm pretty close.I was just missing the dash.
So it's, remember this dash, you haven't,
(10:47):
that makes more sense.
So I'm gonna put thatin there in the email.
Put a dash, you wanna be accurate?
And then, uh, I heard, uh,don't sweat the technique
you guys, you remember,don't sweat the technique,
don't sweat the technique.
(11:08):
Let's trace the hints and check the file.
Let's see who bit to detect this style.
I flipped the scriptso they can't get foul.
At least not now, it'll take a while.
Mcss want a beef when a play for keeps,
(11:28):
when they sweat the technique,the words of rock him.
Don't sweat the techniqueby Eric being rock him.
I just want to have a quotein there, like to, my wife had
that Thomas Anderson quote,
and I thought, okay, I'll make it even.
I'll have a quote. Don'tsweat this technique.
(11:51):
When, when you've explored allpossibilities, remember this,
you haven't, you can alwaysmake a social media profile
for your pet cat.
People love cats.
Okay, so RA Provera,
let me get on Wikipediahere about RA Provera.
(12:13):
Arte Provera was an artmovement that took place
between the end of the sixties
and the beginning of the seventies
in major cities throughoutItaly and above all.
So it happened betweenthe end of the sixties
(12:34):
and the beginning of the seventies.
I'm not really sure about that kind of
time period definition.
It, it, it, it happenedin this little space.
The term was coined bythe Italian art critic
(12:55):
Germano chant in 1967.
The term term was coinedby Italian art critic
Germano chant in
1967
So Art Vera's kind of like minimalism,
(13:18):
but kind of informal in a way.
But, so I was trying
to figure out if it waspronounced Art de Provera
or Art Apora.
And so I looked up Artde Provera pronunciation
and the video that comes up
is was 15 seconds long.
(13:41):
And it's one of these videoswhere it just as white
and uh, black type says Arte Provera.
And then this voice keptsaying, Arte Provera,
Arte Provera.
And it kept repeating it.
Actually, I think it wasalmost 30 seconds long
(14:04):
and they've repeated it five
or six times, literally in Italian
means poor art.
And I was looking atthis pronunciation video.
You know, if you look up thepronunciation of anything,
a lot of times you'll get avideo like this on YouTube
(14:25):
that it will say whateverand they'll repeat it.
But watching this ArteProvera, Arte Provera,
Arte Provera.
And they kept saying it
and I was like, this islike a high technology piece
of RTE Provera artwork.
(14:46):
Rte Provera. Anyway, check itout. Check out RTE Provera.
Check out Aaron filtering him.
Remember the sound effects?
I had this vision of the, the ancient
of this ancient giant huge creaking,
(15:08):
super heavy wooden door.
It's like, and it's like opportunity
and it's wide open.
It's like creek boom and it's like open
and there's a light shining through
and dust filtering in the light.
(15:28):
The ancient giant door is wide open.
The ancient giant door ofopportunity is wide open
with light shining through dust,
filtering through the light.
I had that, that that was a vision I had.
(15:49):
Something else that Ihave that I don't have.
What I don't have rightnow, not what I have,
what I don't have, Idon't have any stitches
or staples in my head
or anywhere else in my body at the time
(16:09):
of this recording.
No stitches, no staples, no staples.
The stitches fell out in the shower
and it was like just theend of them, the fart
that wasn't in my body.
I think the part in my body melted
or whatever it does, you know,I knew this would happen.
(16:33):
They were kind of brownprobably from old blood.
They were, I was like,
what's this in my hairwhen I was washing my hair
and it was like tiedtogether medical string.
And I'm like, I think I know what you are.
Everyone who's in arelationship with me, like even
(16:57):
just if you listen to this podcast,
but especially my friends
and my family, they're in are you're in a relationship
with me, but it's not just with me,
it's with ms.
Like, and so anyonewho has to deal with me
(17:20):
has to also deal with ms.
And that was something I realized
last week or something.
I was like, you can'tjust be friends with me.
You have to be friends with me and Ms.
And MS is really not a great
(17:43):
at attract, not anattractive relationship.
People aren't running towardsMS being like, oh yeah,
let's be friends.
People aren't. And so itmakes friendship with me,
people in a relationshipwith me, even my family,
(18:05):
even my kids and my wife.
And that bothers me pretty greatly.
And I'm trying to dealwith the, the emotions
that come from that
because I really valuemy friends and family
(18:25):
and it was kind of harsh to realize
it's never gonna be just me and them.
It seems like that isone of those things not
to dwell on, right?
It seems like that's going to be one
of those things that's good.
(18:46):
Not to dwell on to move fast,
but it is kind ofsomething I just realized
or I wanted to put it out there
and there's a lot ofemotions that came from that.
But what is it mean really?
It's just me feeling like
(19:08):
being upset about that.
But in reality not, it's kind of vague,
a vague concept.
It's true enough to say, Hey listen,
I saw the other day I saw a guide.
(19:28):
I'm not sure where I ran across it.
I saw the United Spinal Association
Disability Etiquette Guide.
So these were someinteresting tips when dealing
with a disabled person,a person in a wheelchair.
(19:49):
And I thought they werekind of cool, interesting
ways to deal with disabledpeople thinking about
how to deal with disabled people.
The United Spinal Association's Disability
etiquette Guide includesthe following tips.
(20:12):
Do not touch, grab
or guide someone with a disability
without their permission.
Remember that people with disabilities
consider their equipmentpart of their personal space.
Treat adults as adults.
(20:33):
Don't patronize ask
before you help.
Do not touch Pat
or grab, speak directly to the person
with a disability.
Avoid making assumptions.
Be open to requests for access
(20:54):
or accommodation.
Use respectful person first language.
Provide a clear path of travel
and welcome service animals ask
before you help.
Don't assume that
because a person has adisability, they need help.
(21:17):
Usually they'll ask ifthey need assistance,
if you offer and they accept.
Follow their instructions,they know their capabilities.
Do not touch pat
or grab, no one wants tobe touched without consent,
including people with disabilities.
(21:41):
Do not touch, grab
or guide them in theirwheelchair, scooter,
or cane without permission.
Remember that people with disabilities
consider their equipmentpart of their personal space.
Space. Speak directly to the person
(22:02):
with a disability.
Also, while striking up aconversation is great, remember
that most people, includingthose with disabilities,
would rather not discuss their bodies
or medical history withpeople they just met.
(22:23):
Avoid making assumptions.
People with disabilitiesare the best judge of
what they can or cannot do.
Remember, it could violatethe A DA in many situations
to exclude people from an activity
because of their disability.
(22:46):
Be open to requests foraccommodation nurturing.
An equitable inclusivesociety is up to all of us.
So I'm gonna post a link
to the United Spinal Association.
Gotta to accept gravity
(23:06):
like we had acceptance last time.
Gotta to accept gravity.Gravity is a constant force.
And we go be going on.I'll check you next time.
Thank you for tuning in.
We have Aaron feathering, himdisabled extreme wheelchair.
(23:27):
Don't sweat the technique.And Thomas Edison.
People love cats are theyProvera the giant door
of opportunity.
There's no stitches in mybody, no staples in my head.
Everyone in a relationship
with me is also in a relationship with Ms.
(23:50):
Disability Etiquette Guide from the United
Spinal Association.
We gotta accept gravity.
Thank you for tuning in towhat's the matter with Me podcast
Checking next time.
Popular Podcasts
Crime Junkie
Does hearing about a true crime case always leave you scouring the internet for the truth behind the story? Dive into your next mystery with Crime Junkie. Every Monday, join your host Ashley Flowers as she unravels all the details of infamous and underreported true crime cases with her best friend Brit Prawat. From cold cases to missing persons and heroes in our community who seek justice, Crime Junkie is your destination for theories and stories you won’t hear anywhere else. Whether you're a seasoned true crime enthusiast or new to the genre, you'll find yourself on the edge of your seat awaiting a new episode every Monday. If you can never get enough true crime... Congratulations, you’ve found your people. Follow to join a community of Crime Junkies! Crime Junkie is presented by audiochuck Media Company.
24/7 News: The Latest
The latest news in 4 minutes updated every hour, every day.
Stuff You Should Know
If you've ever wanted to know about champagne, satanism, the Stonewall Uprising, chaos theory, LSD, El Nino, true crime and Rosa Parks, then look no further. Josh and Chuck have you covered.