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January 18, 2024 56 mins

A few episodes back we had a chance to sit down and chat with Hodges R. Caldwell Jr. - one of the most dynamic, inspiring individuals you'll ever get to know. Hodges was born in 1979 in Virginia and in his words, "looked pretty normal as a baby". At six-months old, Hodges developed a blister on his right side. Even though doctors told Hodges' mom that it would go away, it never did. It actually got bigger until it finally burst giving the appearance that he had been burned. 

It was finally at a hospital in Bethesda, Maryland that Hodges was diagnosed with EB.

On this episode we are thrilled to sit down with Hodges' sister Sarah Groome and hear her journey of support and love. 

Learn more about the voices in this episode:

Hodges Coldwell Jr. - Personal Journey

EB LifeStyle Inc - Learn how you can help the EB Community

Heroes for Hallie Grace, Inc.

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