Episode Transcript
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Speaker 1 (00:00):
Good morning, and welcome to What's going on? A show
about making a difference in our lives and our communities.
I'm Lorraine ballad Morrel. In honor of Women's History Month,
we explore creativity and connection through art with Nicole moy
of The Bridge Studio. She joins us to talk about
the power of her Presence, an immersive evening designed to
uplift women's voices through art, mindfulness, and cultural dialogue. But
(00:23):
first we'll bring you a powerful conversation centered on healing, resilience,
and the strength of community. When a Philadelphia family faced
two metastatic breast cancer diagnoses in the same year, they
turn their grief and determination into action by creating mb Cure,
an all female led nonprofit dedicated to funding research and
(00:44):
supporting the metastatic breast cancer community. Now in its fifth year,
the organization has raised nearly one point four million dollars
for research. Although the women who inspired the movement, Carry
o'reardon and Jackie Beck, have since passed away, their legacy
continues through the work of Mbcure and with a new honor,
(01:04):
the K plus J Legacy Award, which was presented recently
during their yearly gala. Fundraiser which recognizes individuals living with
metastatic breast cancer and who are making a meaningful impact
in the community. Nicole Clifford, board member and co founder
of Mbcure is joining us here as well as the
inaugural recipient, Jacqueline Jackie Vranikar, who is diagnosed with metastatic
(01:29):
breast cancer at just thirty eight and has turned her
diagnosis into advocacy by founding Vranicure, a nonprofit focused on
supporting women living with metastatic breast cancer in advancing research
for the most underfunded stage of this disease. So thank
you both for joining us here today, and I'm going
(01:50):
to start with you, Nicole. For listeners who may not
be familiar with metastatic breast cancer, can you explain what
it is and why research in this for this stage
of the disease is so critically needed.
Speaker 2 (02:03):
Metastatic breast cancer is when breast cancer has left the
breast and gone to distant organs. So this cancer can
be in your liver, in your lungs, in your brain.
It is still breast cancer even if it has left
the original breast tumor. And so once it disseminates and
moves to other parts of your body, it's considered stage
(02:26):
four at these distance sites, or metastatic.
Speaker 3 (02:29):
What is incredibly.
Speaker 2 (02:30):
Important for people to be aware of is that over
thirty five percent of breast cancer patients will get metastatic
breast cancer. Thirty percent of those are early stages where
they were in remission and then unfortunately it occurs as
stage four, and about six or so percent are patients
that are diagnosed with stage four right off the bat.
(02:53):
And despite over thirty five percent of patients getting breast cancer,
less than ten percent of breast cancer research funding goes
towards metastatic breast cancer. So we are very passionate about
educating others that the allocation of breast cancer research funds
is not commensurate with patient outcomes. And at nbccure, we
(03:16):
are incredibly passionate about only directing our research dollars towards
curative intent research. Because of the less than ten percent
that goes towards metastatic breast cancer research funding, a very
small fraction of that is focused on incredibly bold, at
times risky research to really push the boundaries of science,
(03:39):
trying to strive towards a cure.
Speaker 1 (03:40):
Yeah, We're going to return to that theme, but I
would like to move to you, Jacqueline Jackie. You were
diagnosed with metastatic breast cancer at the age the very
young age of thirty eight and went on to found Vranicicure.
Talk about how your personal journey led you to advocacy
in supporting other women facing this diagnos.
Speaker 4 (04:00):
Echoing what Nicole said, after my diagnosis, I learned all
of this about metacetic breast cancer, that it's severely underfunded,
is the only deadly type of the disease, and that
women can have recurrence years or decades later. After my diagnosis,
I thought, well, if there's only money standing in the way,
(04:21):
then let's go find the money. So what we do
is very similar, and we could be sister organizations nbccure
and Veranicure because we have the same mission to fund
this we actually cure breast cancer. Part of what Veranicure
does as well is we supply care packages to women
who have been diagnosed with any stage of breast cancer
(04:43):
for whether going through active treatment or if they're facing
a breast cancer surgery. We sell merchandise and we have
fundraisers and to support these efforts, and I have become
very good at begging.
Speaker 1 (04:57):
For money, so well, we think thank you for that.
That's a very good thing, Nicole. This year you introduced
the K plus J Legacy Award, which Jackie received. What
does this award we represent and why was it important
to create it in honor of Carrie and Jackie.
Speaker 2 (05:14):
We felt that it was a very important way for
us to keep sharing the message that Carrie and Jackie
embodied every single day, which was really turning their diagnosis
into purpose and transforming what was honestly heartbreak into action.
Speaker 3 (05:33):
And one of our other board members, Elizabeth.
Speaker 2 (05:36):
Daniels, spearheaded this effort to bring this K and J
Legacy Award to life, and we felt that it's a
really incredible way to also meet other people in this
community like Jackie and be able to recognize and honor
the work and the advocacy that they are doing. And
(05:57):
a core part of nbc Cure mission is trying to partner,
collaborate with other organizations and uplift other women and other
people that are doing this really incredible work because we
believe we can go a lot further if we work together,
and so how wonderful it is that we can highlight
Jackie all of the wonderful work of her organization at
(06:21):
our event, and share her message with so many new
supporters that may have otherwise never even known about what
Jackie is doing and her journey and her story.
Speaker 3 (06:32):
And so I think it serves a.
Speaker 2 (06:34):
Few different purposes, being that it continues to share the
legacy of our loved ones and spread the message that
they care strongly about, but now can also honor and
spread awareness about new people, while we can also all
strengthen our communities together, because the more that we can
(06:54):
work together, the more successful will be in the end.
Speaker 1 (06:57):
Yeah, this is a question for both of you, and
I'll start with Jackie on this one, and that is
that you know, people are still probably not as aware
of metastatic breast cancer as need to be aware. And
I wonder if you can talk about the questions that
you think need to be answered. Certainly a cure is
the number one question, but what are some of the
(07:18):
other questions that need to be asked around metastatic breast cancer?
Speaker 4 (07:23):
Jackie, well, sure, and I think coincidentally, I was just
a phone with a restarccher from the Hormale Institute here
in Minnesota and they are planning the Global Consortium here
in the summer, and one of those questions that they
are going to ask is why does the cancer, how
does it survive out of that original tumor? How does
that breast cancer survive in your liver? How does it survive? So,
(07:46):
I mean that is the biggest question. How does any
metastatic disease survive or in the case of a late recurrence,
how does it turn back on?
Speaker 3 (07:55):
So to speak?
Speaker 4 (07:56):
So I think that is really the key to curing
this disease, any metastatic disease, is how does it survive
when it leaves that tumor? And how does it turn
itself back on? Is what are those triggers there?
Speaker 1 (08:09):
Yeah, I guess that's really a huge question because we
know that there's so many great developments in the treatment
of breast cancer, you know, in general. But the question
is what is it that distinguishes women who have metastatic
breast cancer as opposed to women who don't. And I wonder, Nicole,
what are some other questions that you think need to
(08:30):
be asked and answered.
Speaker 2 (08:32):
So I want to just piggyback quickly off of what
Jackie said, because I promise we did not rehearse this
ahead of time, but we actually last year launched the
NBC Care Research Consortium, which is focused on curative intent,
and in February we published our first annual Impact Report.
Part of that report highlights the curative Intent research portfolio
(08:55):
that we're developing, and one of the research studies that
we are helping to fund is actually answering Jackie's exact question,
which is dormant metastases. And so the specific study that
we have as part of the NBC Care Curative Intent
Research Portfolio is happening at Fox Chase. It's a basic
science study and first looking at dormant metastases and the
(09:19):
lungs specifically for triple negative, but there's definitely similar models
of work being developed for other areas, like Jackie already
started to mention, and it's very very interesting some of
the science that this lab at Foxchase has uncovered in
how these dormant cells can survive chemotherapy and then what
(09:42):
allows them to turn back on and if we can
figure out that pathway and then block certain signaling messagers
along that pathway, that can obviously leave lead to pretty
incredible breakthroughs. Jackie just hit a very very important question.
I think another important question is trying to uncover the
(10:04):
why behind why so many more young women are being
diagnosed with not only breast cancer, but metastatic breast cancer.
And so a lot of the young women that are
diagnosed are being diagnosed with much more aggressive forms. They
are not yet at the threshold of getting their yearly mammograms,
(10:25):
so they might be in their twenties or thirties, so
they haven't even started screening. And as many people don't
know about, eighty five percent of breast cancer patients have
no family history, and so if you have no family history,
many people don't have this cancer on their radar and
may not even know that they're at elevated risk.
Speaker 3 (10:42):
And one could have started screening earlier.
Speaker 2 (10:45):
Or maybe all of the ways that we defined elevated
risk would not have allowed them to hit that elevated
risk category, so they would never have qualified for screening
in the first place. And so then it is de
novo metastatic as we call it, meaning metastatic at initial diagnosis.
And we really don't understand why more and more young
(11:07):
women are getting diagnosed with breast cancer. And I do
think that's an incredibly important question. Another part of what
we're trying to address with our research consortion is understanding
the drivers behind resistance. And it's very very clear that
(11:27):
some people will take years before they become resistant to
the same treatment that another patient can become resistant to
you in just months. And so another research study that's
part of our portfolio is a clinical trial at memorials
Loan Couttering, the Horizon Breast clinical Trial focused on curative intent,
(11:47):
and it's trying to in part answer that question where
it is trying to eradicate all cancer cells because the
goal for this trial is a cure, but having the
foresight that they're problem will be patients in this trial
whose cancer is not cured, and then using that information
to understand what are the drivers of resistance and how
(12:09):
do we overcome that. So I'm continuing to reference a
few different research studies as part of our research consortium.
But our research consortium is a partnership with nbccure and
then pen Medicine, Fox Chase Cancer Center and Memorial Sloan Cuttering,
and so it's a longitudinal or long term partnership, if
you will, meaning we'll be working with the same institutions
(12:31):
and the same researchers and ecology groups year over year,
so that we can closely monitor our progress, make iterative
revisions to the process as needed, but really get at
these core questions that you're asking us to touch on here,
because if we can answer some of these questions, then
that will lead to significant breakthroughs.
Speaker 1 (12:52):
Yeah, I think that's such a You make some very
very important points. I actually know someone who is diagnosed
with breast cancer at thirty and she passed away, and
she had metastatic breast cancer. And I think that several
things I hear from what you say is that there
are younger women who are getting this breast cancer, but
(13:12):
they're not within that window that normally it's recommended that
you get, you know, all the mammograms and all that
kind of stuff.
Speaker 3 (13:19):
And yet she was.
Speaker 1 (13:20):
Actually co founder of an organization reaching out to African
American women, so she was definitely well informed, certainly someone
who more than perhaps many people of her age would
be very aware. And so I think that there's an
element of what is happening why, Because again, you know,
(13:42):
you're saying that not only are younger women getting it,
but many women who are in the category of never
having breast cancer in their families are getting it, and
that is very, very disturbing. And I think that also
speaks to the nature of research, because relatively speaking, in
the larger picture of things, women's health gets less funding
(14:06):
and less focus than other types of health diseases, and
particularly those that impact men. So wonderful that you're all
doing this. And also I think Jackie, tell us what
your recommendation is for people listening. For the women who
are listening to this, and for their significant others and
(14:26):
their families, what would you be telling them at this point,
knowing what you've been through and knowing what the women
who founded the organization experience, what would be your message
to them?
Speaker 4 (14:39):
Sure, my message is to not take no for an answer.
Do not take no for an answer when a doctor
says it's just syst let's check it in six months.
When your own intuition is not taken seriously, I would
perhaps get a second opinion. There's no harm if the
doctor that you are I have seen for twenty years
(15:01):
is offended by you getting a second opinion. I think
that it's different doctor is needed. But in my circumstance,
I told my doctor after a physical.
Speaker 3 (15:13):
Head to toe exam.
Speaker 4 (15:14):
I said, something doesn't feel right, and she was she's
an incredible physician, and she said, let's figure that out,
and it included a breast examine. She did not feel
my tumor, so she took my word for it that
something that I knew something was right. And so my
greatest advice is to listen to your intuition. And almost
every woman that I know has been diagnosed with breast
(15:35):
cancer did not have a family history and found it
on their own. Whether that was because they felt something
wasn't right or because they felt a lump or it.
You need to be your loudest, greatest advocate for your health.
Speaker 5 (15:52):
Yeah.
Speaker 1 (15:52):
I think that's such an important point to make because
as women were often trying to be people pleasers and thinking, yeah,
they know more than we do because they're doctors. They've
been trained to do that. But what I have learned,
and what seems to be supported by research, is that
intuition is powerful. That if you think something is wrong,
(16:12):
something is wrong, and being able to trust that intuition
is so critical and so important because I do as
I know you probably have to. You've seen people who've
been misdiagnosed or discounted or told yeah, it's probably just
a cyst, or don't worry about it, we'll check it
in six months, and then six months later the cancer
(16:34):
has advanced to the point where it's a serious problem. Now,
so much to talk about. But I do want to
return to the two founders of this organization and be cure,
And I wonder, Nicole, if you could just give us
a quick snapshot of these two extraordinary women who started
this organization.
Speaker 2 (16:55):
So I think I just need to clarify a little bit.
So our family started our fundraising efforts about five years ago,
five plus years ago, when Carrie and my mom Jackie
were still alive. So Carrie was my cousin, Jackie was
my mom, And unfortunately during our journey, as we were
fundraising for other organizations, they passed away. After they passed away,
(17:18):
in twenty twenty four, our same family came together, you know,
all the women who had been fundraising while Carrie and
my mom were still alive, and founded NBC Cure in
September of twenty twenty four. So our fundraising efforts have
been going on for you know, five or so years.
NBC here as an organization is actually in its infancy
(17:40):
and has been around for about a year and a
half or so, and it is a large board of women,
including myself, cousins, aunts, and some of our best friends
that have come together and founded this organization MBC Care.
So gotcha, that's kind of the journey of how we
got here. Going ask your question about Carrie and my mom.
(18:02):
I mean, I could go on for a lifetime about
who they were, and I think most importantly, metasatic breast
cancer was a very small part of who they were,
and it didn't define who they were. I think once
they were diagnosed with metastatic breast cancer, they used innate
(18:25):
qualities that they had, meaning turning a really horrible situation
into the best that it could be. And that's how
we've developed the community and the work that we have.
But them, as individuals, I would say, we're so much
bigger than this diagnosis, just like Jackie is, and just
like every woman I know or a person I know
(18:47):
who has metasatic breast cancer is. I think that's a
really important part to remember, is that none of them
are defined by metasatic breast cancer. But I do think
when you have a very powerful journey and you're a
very strong advocate for yourself.
Speaker 3 (19:04):
And for the community.
Speaker 2 (19:06):
People then start to associate you with all of your
efforts in the metasatic breast cancer world, and we forget
who they were maybe before, Like my mom was a
huge traveler, like a huge cyclist, volunteer, lacrosse coach, Carrie.
She was like the cousin that was always bringing props
(19:27):
to cousins week at the beach and dragging us out
of bed at seven am to go to a workout
class that no one wanted to go to, but then
you were so.
Speaker 3 (19:34):
Happy you went.
Speaker 2 (19:35):
Like I think, as I'm just reminiscing in sort of
real time thinking about them, the first things that come
to mind are actually not all of our efforts for
the NBC community and our work together, though it has
been so wonderful and we've been able to, I guess
somewhat make lemonade out of lemons, though it's hard to
(19:56):
even feel that way obviously, given that they're no longer
with us.
Speaker 1 (20:01):
Yeah. Yeah, And I love that you say that metastatic
breast cancer did not define them, And so as we
remember the two women who inspired this movement, Carrier Reardon
and Jackie Beck. Their memories of who they are are
continually refreshed by the work that you all do. That
(20:21):
you've raised one point four million dollars so far, which is.
Speaker 2 (20:24):
Well, actually, I can it is because heading into the gala,
we were actually just over one point six and we're
telling all our final proceeds in the gala this week,
but our preliminary projections are looking like the gala will
probably come in over two hundred and fifty thousand net proceeds,
(20:45):
and so we'll be looking like in the next week
or so over one point eight nearly one point nine
million dollars to date.
Speaker 1 (20:52):
That is incredible, and through a very relatively short period
of time raising all that money and for what is
very important, which is research to find a cure for
metastatic breast cancer. Thank you both so much for joining
us here today, Nicole. If people want to know more
information about mbcure, where do they go?
Speaker 2 (21:12):
Yes, they can go to our website, which is mbccure
dot org. But the C of MBC shares in the
word cure, so it's mbcure dot org and we have
tons of resources and information on our website and they
can always reach out to our email address which is
info at mbccure dot org. And we would love to
(21:35):
connect with anyone who wants to learn more or get
more involved. We're always trying to grow our mbccure family.
Speaker 1 (21:41):
Beautiful and Jacqueline, if people want to know more about
randic Cure, where do they go for that?
Speaker 4 (21:47):
Yeah, randicured dot org. And I follow both of us
on social media because, like she said, the more people,
the larger we grow these communities, the faster we will
reach a cure. So really follow along and see what
how you can be part of it.
Speaker 1 (22:01):
Thank you again, Jacqueline, Jackie Vranikar, who is the inaugural
recipient of the K plus J Legacy Award, presented during
the recent Gale of fundraiser for mb cure, and of
course Nicole Clifford, who is a co founder and board
member of mb cure, working to find a cure for
metastatic breast cancer which is impacting more and more younger women,
(22:25):
and we really need a cure and we really need
people like the two of you to push us forward
and get to that goal. So thank you both for
joining us here today.
Speaker 3 (22:35):
Thank you so much.
Speaker 1 (22:40):
This Women's History Month, we're celebrating creativity, healing, and the
power of connection through art. Joining us is Nicole moy,
founder of the Bridge Studio in Philadelphia, who is presenting
the power of her presence, a curated evening of art, mindfulness,
and cultural dialogue that uplifts and honors the voices and
(23:01):
experiences of women. So Nicole, thank you so much for
joining us, and for the listeners who may not be familiar.
Tell us first of all about the Bridge Studio and
your vision for creating this kind of cultural and artistic
space in Philadelphia.
Speaker 5 (23:14):
First, thank you Loraine for having me. The Bridge Studio
was an answer for my own personal neglect as being
a creative and working in corporate America, but also seeing
how it could uplift and help change the narrative in
the kiss and in the area. So it's just exactly
what it founds. The Bridge Studio is exactly about bridging people,
(23:35):
ideas and experiences together. We believe in attention. We believe
that there's gaps that need to be addressed, and through
this space, we want to use that to address those gaps.
So that looks like creativity, connection, expression, which are often
things that are missed in the spaces. So my idea
was to try to bring that into light and share
that with the community and people who not necessarily need
(23:57):
it but want to have more of it.
Speaker 1 (23:59):
I love that well. This event on the thirty first,
the power of her presence sounds like much more than
just an event. It's an experience. So what inspired you
to create this evening centered on art, healing and empowerment.
Speaker 5 (24:12):
Yes, yes, it was actually inspired by women's history a
month and having delightful conversations with Gil's shout out to Gil,
I wanted to do something before the month was over.
And the reason why I wanted to push for it
is because we need spaces where we can go after
work and be able to be heard, to be felt,
(24:33):
to be noticed, and I wanted to bring that event
into light so that that could be done. Women and
people in general should be celebrated all year round. We're
not held to a calendar year, but it is important
to have safe spaces that allow us to be ourselves
and to be with like minded people, to empower, to celebrate,
to support, to have community. So this is more than
(24:55):
just an event. This is an experience. Because of what
I want people to do is Bill, and I want
them to be themselves and I want them to leave
with the best version of themselves and keeping in mind
that we are human at the end of the day,
and we just need to be able to give ourselves
grease the love that we need to continue to pour
in ourselves. And separately from that, I don't do anything
(25:16):
that I don't believe in. If I can't do with
intention or love or care, I won't do it. And
because this even allows me to do that's exactly why
I'm doing it. And it's also a part of filling
my own journey with the loss of my mother last June.
It's a little bit more than just you know, saying, oh,
I'm just going to do it just because it's because
it's needed, not just for myself, but I know that
(25:37):
there's other people that need to have things that uplift,
that support and give them community.
Speaker 1 (25:43):
So the event highlights seems like identity, self reflection, and sisterhood.
And I wonder if you can sort of set the
stage for us, So when someone walks into the bridge
in Kensington, what are they going to be experiencing. What
are some of the things that you're planning for this
event that people can know about In advance.
Speaker 5 (26:03):
This is an event where you're not just listening. You
are expected to engage, to participate. We are expected to
build communities. I'm going to encourage communities. I'm going to
encourage networking. I'm going to encourage women and business. There's
a little bit of everything that the event is going
to touch on. So it's not just an event where
it's a workshop where you're taking notes or you're listening.
(26:24):
This is actually an opportunity for you to network, for
us to build community and sisterhood, and for us to
be able to go to the vendor and say, Hi,
my name is such and such, I would like to
learn more about you or no X, the panel or
the collaborators themselves. You might have a question that you know,
how do you get through your day to day? And
I think this event is going to allow for all
of that to take place. So the expectation is you're
(26:47):
not just coming to listen. You're expected to engage, to
be encouraged, to be yourself and whatever that looks like,
we're welcoming in that. So the biggest expectation, if I
had to say it, is to know that you're coming
into a space not only safe and feels great that
with positive energy, but you can also contribute to the event.
Speaker 1 (27:06):
Yourself positive energy. We need so much more of that
right now. Wonderful. Well, for those who are interested in attending,
give us all the details, the date, the time, the location,
and the website or the ways that they can register.
Speaker 3 (27:18):
Yeah, so I do have a POSH link.
Speaker 5 (27:21):
So it's called the Power of Her Presence and it
is on March thirty first at six thirty to nine thirty.
I strongly encourage RSVPs because we're getting a good amount
of RSVPs that we might have to just cut it
out and put a sold out event. But it is
an event that all are welcome, even guys. I know
this is a women's center event, but if you'll like
(27:42):
to come and support, you're more than welcome. But again,
this is for the ladies. And again it is March
thirty first at six thirty to nine thirty with a
few fenders in mind, our collaborators, and just a house
of females that are probably like minded in different areas,
and we're going to have amazing time. So again, all
(28:04):
are welcome. And this is not the end of this event.
This is actually one of sorrow events, so of course
look out for us. We're also on Instagram. It's called
the Bridge Studio Philly. I do have a website. It's
currently being revamped at the moment, should be up any
moment now, but it is going to be www dot
Bridge studiophl dot com. And then I can personally be
(28:25):
reached and I can give that contact too if you
need it, which is like my email and phone number. Sure,
my email is the Bridge Studio at Bridge studiophl dot
com and my phone number is six oh nine, three, three, seven, two, eight,
four or five.
Speaker 1 (28:41):
I want to thank you so much, Nicole moy, founder
of the Bridge Studio in Philadelphia, who is presenting the
power of her presence, a curated evening of art, mindfulness,
and cultural dialogue that uplifts and honors the voices and
experiences of women. That is happening on March thirty first.
It sounds like a wonderful event. Thank you for joining
us today.
Speaker 5 (29:01):
Thank you, Lorraine, And I just wanted to give you
a shout out because I really do appreciate you giving
events and businesses and people like myself the opportunity to
share what we do. It's very much needed. I know
these events is needed, but people like you are also needed,
and of course your beautiful husband guilt that wasn't for
you too. No one would have bought this event at
(29:21):
the level that they do, so again, thank you so much.
Speaker 1 (29:24):
My pleasure. You can listen to all of today's interviews
on the iHeartRadio app and all podcast platforms by typing
in keywords Philadelphia Community Podcast. Follow me on Instagram and
threads at Lorraine Ballard and Lorraine Moral on TikTok and
that's Loraine with one R. I'm Lorraine Ballad tomorrow and
I stand for service to our community and media that empowers.
What will you stand for? You've been listening to what's
(29:46):
going on, and thank you