Spondycast

Spondycast

Introducing Spondycast, the newest and most exciting source of information and inspiration for people with spondyloarthritis. Every week, we bring you in-depth conversations with the leading experts in the field, who will share their knowledge and experience on topics related to the diagnosis, treatment, and management of this complex condition. Whether you are a patient, a caregiver, or just someone who wants to learn more about spondyloarthritis, Spondycast is the perfect place for you. Spondycast is made possible from donations by members of the SAA, including our corporate member AbbVie, who support Spondycast. www.spondylitis.org

Episodes

September 14, 2026 29 mins

In this episode of Spondycast's Psoriatic Arthritis Explained Series, Ana-Maria Orbai, MD, MHS explores how sex and gender may influence the experience of living with PsA, including differences in symptoms, diagnosis, pain, treatment response, caregiving responsibilities, reproductive health, and overall quality of life.

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Licensed Practical Nurse Kayla Walker discusses how infusion therapy works, when it may be considered for spondyloarthritis, and what patients can expect before, during, and after treatment.

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In this episode of Spondycast's Psoriatic Arthritis Explained Series, we explore the emotional impact of living with psoriatic arthritis, including anxiety, depression, grief, stress, identity changes, and the challenges of adapting to life with a chronic illness.

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Rheumatologist Soha Dolatabadi, MD walks listeners through what typically happens during a first rheumatology appointment and how patients can prepare ahead of time.

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In this episode of Spondycast's Psoriatic Arthritis Explained series, Karen Tsui, MScPT, ACPAC discusses the benefits of movement and exercise for people living with PsA, including strength training, flexibility, pacing, managing flares, and practical strategies for staying active over the long term.

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In this episode of Spondycast's Psoriatic Arthritis Explained series, individuals living with PsA share their personal experiences navigating symptoms, diagnosis, treatment, work, family life, fatigue, and the emotional realities of living with a chronic condition. Through their stories, listeners will hear the challenges, lessons learned, and sources of hope that have shaped their journeys.

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Dr. Justin Houman, a fellowship-trained urologist specializing in men's sexual and reproductive health, to explore how spondyloarthritis, chronic inflammation, and its treatments can affect men's sexual health and intimacy.

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In this episode of Spondycast's Psoriatic Arthritis Explained series, we discuss how treatment for PsA has evolved, the major treatment options available today, how providers and patients make treatment decisions, what to consider when switching therapies, and what emerging advances may shape the future of PsA care.

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Retired rheumatologist Dr. W. Patrick Knibbe shares his unique perspective as both a physician and a patient living with spondyloarthritis.

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In this episode of Spondycast's Psoriatic Arthritis Explained series, we provide a foundational overview of psoriatic arthritis, including its relationship to psoriasis, common symptoms, risk factors, diagnostic challenges, treatment goals, and where it fits within the broader family of spondyloarthritis conditions.

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Alana Goldstein Leever, PsyD, a clinical psychologist who works directly with children and teens in pediatric rheumatology clinics, shares how mental health support can work alongside medical care to help young people and their families cope, build resilience, and feel supported.

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Vince Gagliardi shares his journey living with axial spondyloarthritis (axSpA), from navigating diagnosis and daily challenges to becoming an advocate through storytelling.

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Rheumatologist Abhijeet Danve, MD, MHS, an Associate Professor of Medicine at Yale University, and developer of the Axial Spondyloarthritis Screening Tool (A-Tool) discusses why diagnostic delays happen, how the A-Tool screening survey was designed to help identify patterns of inflammatory back pain, and how it may support earlier referral to a rheumatologist.

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Alfred N. Romeo, BA, BSN, RN, MS, PhD, a MotherToBaby expert, joins Spondycast to discuss family planning when spondyloarthritis is part of the picture.

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Chuck Melendi, founder of Disruptive Dialogue, joins Spondycast to unpack the complex system behind prescription drug pricing and explain why medications can be so expensive for patients.

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Adrine Avetyan, MA, LMFT, and founder of Scalp Sanctuary, a wellness space designed to promote relaxation and restoration, joins us to explore what self-care really means.

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Janet Poole, PhD, OTR/L, an occupational therapist, shares practical strategies to help people with SpA adapt how they approach everyday tasks at home, work, and in leisure activities to reduce pain, stiffness, and fatigue while maintaining independence and quality of life.

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Dr. Mark Hwang, MD joins us to discuss findings from his recent study on late-onset radiographic axial spondyloarthritis (AS), and how late-onset AS differs from early-onset disease in its presentation, radiographic findings, genetic markers, and treatment considerations.

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Jana Bolduan Lomax, PsyD discusses psychedelic-assisted psychotherapy examined through a clinical and ethical lens.

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Janet Poole, PhD, OTR/L, shares an occupational therapy perspective on fatigue and reframes energy conservation as a practical, empowering skill.

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