An Unexpected Fight: A Pediatric Cancer podcast

Donna is a pediatric cancer research advocate. Her son Erik battled neuroblastoma and suffered a late relapse, diagnosed in 1991 at age 6 and died in 2010 at age 24. She has been involved in the pediatric cancer community for decades. She serves on several councils including the NCI Pediatric Central Review Board, NCI Pediatric and Adolescent Solid Tumor Steering Committee, FDA Patient Representative, NANT Parent Advisory Council, ...

In this episode, we speak with Prof. Johannes Gojo, MD, PhD, one of the world’s foremost experts in pediatric neuro-oncology. Dr. Gojo shares groundbreaking research into ETMR and ATRT brain tumors, the promise of liquid biopsies, and how international collaboration through CARE for RARE (established by Solving Kids’ Cancer) is transforming outcomes for children with rare brain tumors.

We also highlight a newly funded research proje...

Susan Latta LMFT, FT is a licensed Marriage and Family Therapist and the Department Head of Clinical Services at the Austin Hatcher Foundation for Pediatric Cancer. Susan holds a Fellow in Thanatology, the study of death and dying, and received her BS from Cal Poly San Luis Obispo University and her MA from Fuller Theological Seminary. Susan brings 35 years of counseling individuals, children, and families through the many challeng...

As Principal Investigator of the International PPB/DICER1 Registry and founder of the International OTST Registry, Dr. Schultz is at the forefront of developing novel treatments for some of the rarest and most aggressive pediatric cancers.

🎧 In this episode, we dive deep into:
 ✨ The importance of registries in rare cancer research
 ✨ What families facing a DICER1 diagnosis need to know
 ✨ Her inspiring journey in pedia...

Tiffany, Kelly and Steve talk about emotions associated with pediatric cancer diagnosis from the perspective of a pediatric cancer survivor, a pediatric cancer parent and a bereaved pediatric cancer parent. 

Reintroducing: Steve Garraty was lucky to be graduating high school. He was partying and living a lifestyle that wasn’t sustainable. His priorities were upside down. He was running towards the edge of a cliff and unable to stop ...

Dr. Satterlee is an Assistant Professor at the University of North Carolina at Chapel Hill and the Director of the Screening Live Cancer Explants Program and Core Facility at Eshelman Innovation — an academic institute focused on translating groundbreaking ideas into real solutions for patients.

Since beginning his PhD in 2011 as a National Science Foundation Graduate Research Fellow, Dr. Satterlee has spent over 14 years developing...

Claire L. Carter, Ph.D., is an Assistant Member of the Center for Discovery and Innovation; Assistant Professor of Pathology at Hackensack Meridian School of Medicine; and Co-Director of the Mass Spectrometry and Analytical Pharmacology Shared Resource at the NCI-designated Georgetown Lombardi Comprehensive Cancer Center.

Dr. Carter completed her Ph.D. in Chemistry at the University of Birmingham, UK, under the supervision of Profes...

Richard Gaster, M.D., Ph.D., is a Managing Partner at venBio with experience as a physician, entrepreneur, and life science investor. Now, a cancer dad. 

He has helped to launch, invest, and serve on the board of or as board observer of a number of venBio companies. Prior to joining venBio, Dr. Gaster served as the head of translational medicine at Pliant Therapeutics. As a key member of the founding management team, Dr. Gaster was ...

This week, we're thrilled to have Kellyn Simonson join us for an insightful episode. Kellyn, a passionate storyteller and advocate, brings her rich experiences from both her professional and personal life. As a Family Resources Coordinator and a mother who has navigated the challenges of autism and childhood leukemia within her family, Kellyn embodies resilience and hope.

Tune in as we explore her contributions to a book chapte...

Steve Garraty was lucky to be graduating high school. He was partying and living a lifestyle that wasn’t sustainable. His priorities were upside down. He was running towards the edge of a cliff and unable to stop himself. Then God intervened. He heard the three dreaded words none of us ever want to hear: “You have cancer.”

After embarking on chemotherapy and a year of hell, as all his friends headed off to college, he beat the cance...

Mom of two boys 16 months apart, Vincent and Corey. Fitness/wellness industry for 18 years. I have always tried my best to make good healthy choices for my family. Cancer doesn’t care. We lean on our Faith to get us through every day, especially was important during our cancer journey. Vincent was diagnosed with stage II Rhabdomysarcoma at age 4, has been off treatments for two years..happily in remission as a thriving 8 year old! 

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Featuring Capt. Red Flowers who took on and set a new record for the fastest completion of the great loop!! 
He has been raising money for pediatric cancer research with his venture and is also a cancer survivor himself. 
Read more about his story: https://nationalpcf.org/the-great-loop-challenge-2024/

goldribbon-kids.org
nationalpcf.org

Tiffany- goldribbonkidscf@gmail.com
Kelly - kgoddard@national...

Dr. Trisha Larkin is the Director of Pediatric Neuro-Oncology at St. Joseph’s Children’s Hospital. She is dual-board certified in pediatrics and pediatric hematology-oncology. Dr. Larkin earned her medical degree from Florida International University College of Medicine, followed by a Master of Business Administration in healthcare. She completed her postdoctoral training at Nicklaus Children’s Hospital and at the University of Flo...

Stephanie Tobola is a Texas native, military spouse, mother of two, and is now adding author to that list. Her debut book, Ketchup Sandwiches, is an intense memoir which takes the reader on the emotional rollercoaster of the life of a child enduring abuse and neglect. In sharing her story Stephanie aims to bring the hope of healing to others.

In this episode, we dive into the life of trauma. We discuss helpful ways to navi...