Episode Transcript
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Speaker 1 (00:00):
Hi, Hello, how are you.
Speaker 2 (00:03):
I'm good.
Speaker 1 (00:04):
How are you feeling today?
Speaker 3 (00:06):
Ah? Fine?
Speaker 4 (00:08):
What do you think of your son as your caregiver?
I's fasting really so he's a good caregiver, right? What
makes some what makes him a good caregiver?
Speaker 3 (00:22):
There have you time?
Speaker 1 (00:22):
My native caregiving? Increasingly, black son's taking on the role
usually carried out by Black daughters.
Speaker 3 (00:30):
So it was as if one day I woke up
and I felt like I was a hostage to caregiving.
Speaker 1 (00:36):
The joy, the pain, the frustration, and the love of
caring for a parent. Now on black Land.
Speaker 3 (00:43):
And now as a brown person, he just feels so invisible.
Speaker 1 (00:48):
Where we're from, brothers and sisters. I welcome you to
this joyful.
Speaker 5 (00:53):
Day and we celebrate freedom where we are. I know
someone heard something and where we're going.
Speaker 3 (01:02):
We the people means all the people. The Black Information
Network presents Blackland with your host Vanessa Tyler.
Speaker 1 (01:10):
It's something we all must face if we're lucky, lucky
enough to have a parent still living. But it's not
easy caregiving full time, not the weekly visits, but the
twenty four to seven type of on demand care. Lynette
Robinson knows it all too well. She is the CEO
and founder of Lenata Consulting and Caregiving Planning. She made
(01:32):
it through and now helping others dealing with it too. Lynette, welcome,
Thank you Vanessa. When did you and why did you
start this support group?
Speaker 6 (01:42):
So? I started the support group when my mother that
was diagnosed with MS at the age of eighty. I
didn't know anything about being a caregiver, but I realized
at that point how much I needed direction and instructions
on how to navigate the plethora of resources that were
(02:02):
available to me to be a caregiver. The services I
had to connect them so that I could build my
own personal, patient centered care plan for my mother.
Speaker 1 (02:19):
That plan, she calls the five pedal plan.
Speaker 6 (02:23):
The five pedal plan was I can't I'll try, I
need help, I'm empowered, and I'm released.
Speaker 1 (02:32):
Released could mean your parent passes on, well, not necessarily
passes on. Being released means that they can get they've
gotten better, means released. Released means that they've gone into
some type of a long term managed care facility. How
tough is it to be a caregiver full time twenty
(02:53):
four to seven? What does it do to the person
who's actually doing the caring?
Speaker 6 (02:59):
Oh, my goodness, that is a hard question. And the
reason why I'm saying it's a hard question is it's
a hard stop. It's difficult. It's very difficult because you
also have to take into consideration the financial situation.
Speaker 1 (03:19):
Carol Lucas is a longtime sister friend of mine and
for years she was a caregiver. Her mother had COPD
and sadly recently died just short of her ninetieth birthday.
Now Carol is renovating her mother's house in New Jersey
to put it up for sale. Carol, welcome, Thank you
for having me. I must say you are on the
(03:40):
other side of this issue. Sadly, you are no longer
a caregiver. In my condolences, how do you cope when
it's over?
Speaker 3 (03:49):
You know, I was just asking myself that question Vanessa
as well, because sometimes caregivers forget that the other part
of the journey begins when our loved ones leave us.
So how I'm coping is I'm really doing a lot
(04:10):
of deep reflection and I'm reprioritizing what's important after the
day to day duties and sacrifices that often come with caregiving.
Speaker 1 (04:23):
How tough was it? The toll physically, the total emotionally for.
Speaker 3 (04:27):
Me as an entrepreneur and a healer and someone that's
been very social, you know, working to encourage girls and women.
The number one sacrifice that I realized hit me really
hard was.
Speaker 6 (04:45):
Time.
Speaker 3 (04:46):
Caregiving took away my social time from my business and
foundation Unstoppable Girls, but then more importantly, my quality time
and freedom to be with friends, to be social and
stay active with my own freedom for exercising and in
(05:09):
just enjoying like you know, the arts and culture. And
I realized as my mother declined with her health, the
demands of caregiving became more demanding. So it was as
if one day I woke up and I felt like
I was a hostage to caregiving.
Speaker 1 (05:29):
As Carol's mother continued to live, she also continued to die,
and Carol discovered another year passing by.
Speaker 3 (05:37):
Yes, it was a couple of years. In the first
two years, I was able to maintain life balance, including
you know, my work as an entrepreneur as well as
I'm going to say the mentor. But as the task
became more demanding, it became very draining i'm going to say,
emotionally as well as even financial, because it impacted my
(06:02):
ability to continue building my business and the work that
I was doing. You know, socially as well as emotionally.
Caregiving takes a lot out of you, and sometimes if
you don't have the right tools and the village to
support you and give you time off, breaks and others
(06:25):
pouring into you, you can really end up sometimes deplete it,
even though it's a very special assignment.
Speaker 1 (06:38):
Last year, realizing the estimated forty eight million caregiving families
need help, President Biden signed an executive order directing federal
agencies to find a better way to support caregivers.
Speaker 2 (06:50):
More than one in every five adults is a family caregiver.
This order recognizes that the labor of love and make
sure family caregivers are involved and informed from the hospital
discharges of one they love, that the caregivers know about
the Medicare benefits their loved one qualifies for the caregivers
(07:13):
of veterans have access to mental health support. Folks, there's
a lot we can do. We're doing all of this
the United States of America. We should have no one
do she no one chef to choose between caring for
the parents who raise them the children who depend on
them for the paycheck They rely on to take care
of both.
Speaker 1 (07:32):
It's a juggling act for sure. What would you do
if your son wasn't there?
Speaker 3 (07:38):
Huh, I've have no idea and run away from home.
Speaker 1 (07:42):
Probably you heard her voice earlier. Let me introduce you
to Miss Patricia Nelson miss Pat for short. She's eighty
five in dealing with dementia. Her son Walter is her rock.
He's a good son, isn't he?
Speaker 6 (07:57):
Yeah?
Speaker 5 (07:57):
I see you.
Speaker 1 (07:58):
You are caring for your mother, your beautiful mother, Pat.
What's that like?
Speaker 5 (08:04):
What's it like if I have to think back when
I was growing up and all the things she did
to me, and now it's my chime to take care
of her. You know, that's my mother. I have to
do this. Can't showed these responsibilities, and I'm not gonna.
I don't want nobody else. I don't want to pass
it on to anybody else, you know what I mean.
Speaker 1 (08:24):
He'd rather do it than trust anyone else. So he
sacrificed working to be with his mom full time. What's
a typical day like for you and your mom?
Speaker 2 (08:34):
Pat?
Speaker 5 (08:35):
Mom speaks about if I'm here, so speak to like
go sleeep like ten o'clock, maybe even She'll wake up
like ten o'clock, so she speaks a good while morning
his breakfast, you know, use the eggs grips toast, some juice.
She has her coffee. You know, she has to take
(08:57):
a med and give her a few extras supplements and stuff.
I don't know. One thing I gotta keep remember is
to get keep her hydrated. I think they have the
big part to you know, flushing answerr system that's as
flush as your brain as well, right, think them out
of ward each day. But you know then uh, they
(09:17):
have a small lunch something. Sometimes I cook her bot
sometimes she's like, you know, but and jelly. That's that's
fine for her. A cup of coffee, sometimes dinners and
the next thing. You know, but typically you know shee
that crossword cousins she does. You know, still don't know
(09:38):
how to play a solid tail on the tablet, you
know what I mean.
Speaker 1 (09:41):
He sees the changes in his mother and at times caregivers,
if they're honest, it could be a little frustrating too.
Speaker 5 (09:48):
You know. Sometimes I you know, I get kind of
short with her, you know what I mean? Tell her
that sometimes I'm sorry that I be kind of shortened
with her. You know, apologize, you know.
Speaker 1 (10:01):
Walter Nelson is part of a growing group black men
as caregivers. He has no sisters, just a brother who
lives in Germany, so it's all on him. What will
you do when you no longer have to care for
your mom, because at some point it will come to
an end? What will that do to you? Emotionally?
Speaker 5 (10:21):
Oh man, emotionally not from the hell alone. Well, my
uncles are all my uncles and aunts and everybody about
past on mom, my last living. Uh. Well, there are
people in Georgia that don't know. I don't know. People
in Jersey City, I don't know. But my cousins side
(10:43):
of family, but uh, I don't really know them, and
don't say. My brother lives in Germany. My mom is gone,
I don't know.
Speaker 1 (10:54):
That's what makes it so heartbreaking. The sacred assignment, as
Carol Lucas puts it, in honor of your mother and father,
doesn't last forever.
Speaker 3 (11:03):
I took on the sole responsibility for about five years
of my mom, but I also shared some of it
with my younger brother. But when it comes to caring
for women, sometimes mothers and sisters and aunties feel more
comfortable with another woman, and there's always been the expectation
(11:26):
that it is the daughter's job. However, men and husbands
and brothers are now faced with the same responsibility because
at times I had to choose work and caring for
my mother, and there were times when my youngest brother
had to step up and assist. And more and more
(11:48):
men are assisting with caregiving. It's not always spotlighted as much,
but sometimes they're also being faced with this chi challenge
of caregiving a woman, a mother, a wife, or a
loved one.
Speaker 1 (12:05):
When you look back, are there things that you wish
that you knew that you know now that you wish
you knew when you started this journey?
Speaker 3 (12:15):
Absolutely, I wish I knew how important it was to
gain the financial help needed to caregive. And what I
mean by that is most government agencies ask caregivers to
share their parents financials because as they as they reached
(12:37):
that final stage, if they're living at home, you may
need support from nurses, aids and the healthcare professionals that
come in through hospice. My mom ended up in hospice
at the end, and because we had never really looked
at her financials, nor did we downside her financially, we
(13:01):
were unable to get the extra help needed for myself
as the main caregiver. The other thing I realized, and
I say this to myself lately more than ever, is
I wish I would have set greater boundaries that gave
me time to prepare Vanessa for when my mother was
(13:22):
going to be you know, really, you know, transcending, getting
ready to pass on, because life for the caregiver after
can be very hard. My business suffered. I gave up
like ninety percent of my work, and now I've been,
(13:42):
by the grace of God, picking up the pieces. But
I wish I would have known how important it was
to continue working and planning, you know, to work and
saving and really looking at the bigger financial piece that
many caregivers, especially entrepreneur's sacrifice.
Speaker 1 (14:02):
Which is why Lynette Robinson's Lenata consulting and caregiving planning
is essential, especially for black men increasing in number and
joining black women in the role.
Speaker 2 (14:13):
So you have.
Speaker 6 (14:14):
Roughly thirty eight million families that are family caregivers, and
the black male constitutes about three point five percent of
those caregivers. So as the primary caretaker for the black
family member.
Speaker 1 (14:34):
There are so many things caregivers may not think about
while in the thrones of making sure a parent is
okay during the final stages of their lives. I had
a full time job.
Speaker 6 (14:46):
A caregiver cannot take care of their loved one full
time and work a full time job, and many times,
in many cases, the full time job does not allow
especial surely in the African American community, especially with the
African American men, to be able to take time off
(15:08):
of work to care for their loved one.
Speaker 1 (15:10):
Lynette Robinson says she's glad finally the federal government will
add a little backup. Part of the President's order includes training,
especially with the cocktail of pills some older parents must take.
In a nutshell, it's a lot. Do you see this
problem that we're dealing with getting worse.
Speaker 6 (15:29):
I do see the problem getting worse, but I do
see a solution to assist the problem from not getting worse,
but to get better. If we stand up as a
community and we help each other, we provide information, we
(15:51):
share information, and we support each other. That's the only
way it's going to happen in the African American community,
because the outside community, the general population, is not going
to help us do that. We have to help ourselves.
What happens after is a very individual thing. You have
(16:12):
to prepare yourself first of all. Before it happens, you
have to prepare yourself. But there's so many things that
happen afterwards. Like if we're looking at a generational wealth,
if your parents owned a house or owned property or assets,
you know, how do you protect those for yourself or
(16:33):
your siblings or your children? You know? How do you
do that? That's a conversation. How do you protect yourself?
That's another conversation because maybe you need to see your
primary care physician because once you've gone through the process
(16:55):
of being a caregiver and then it's over, you need
to you need to support and have support for yourself
because it's a mental thing that can happen to you
because all of a sudden it's over.
Speaker 1 (17:09):
For caregivers like Lynette and Carol, when it's over, they
can rest easy. They did their best.
Speaker 3 (17:16):
When I close my eyes at night, I feel that
my demonstration was honor your parent, for your day shall
be long. And when I open up my eyes and
look at a picture in my room that has picture
in my mom and I I smile. I think this
has been my greatest assignment. It's been a spiritual one
(17:37):
for me in spite of the sacrifices. But I can
hear my mom saying thank you, daughter, I wouldn't have
made it without your job well done. And then I
also sometimes smile and I can really say to myself,
you gave her the greatest love of all. Job well done, daughter,
(18:02):
Carol lucas the best daughter ever.
Speaker 1 (18:05):
Thank you for your thoughts.
Speaker 3 (18:06):
Thank you so much.
Speaker 1 (18:08):
Miss Patt and her son Walter are heading out. They'll
run some errands, she'll get some fresh air and sunshine. Well,
Walter Nelson, you are a good son. God bless you,
God bless your mother. By Miss Nelson. Bye bye, have
a beautiful day.
Speaker 2 (18:26):
Oh thank you.
Speaker 1 (18:30):
If you need support as a caregiver, Lynette Robinson's door
is always open.
Speaker 6 (18:36):
You can visit me on Instagram at care for the
Caregivers by miss Lynn, or you can email me directly
because I am always here to answer questions, build support
systems and come to your community and talk with you
and have a symposium with anyone. So you can email
(18:57):
me directly at LC Insulting dot Caregiving Planning at gmail,
or I have a personal email. You can email me
at Lynnrobton at gmail dot com.
Speaker 1 (19:12):
Nnette Robinson, thank you so much for talking with us,
and thank you for your big heart and all you've done.
Speaker 6 (19:18):
Thank you very much, Miss Tyler, I appreciate it. Once again,
I want to thank you for giving me this platform
to be able to reach out to caregivers.
Speaker 1 (19:28):
Be sure to like and subscribe to Blackland. I'm Vanessa Tyler.
Join me next week for a brand new episode.