Introducing Untold Stories: Life with a Severe Autoimmune Condition

For people diagnosed with a rare, autoimmune condition like myasthenia gravis (MG) or chronic inflammatory demyelinating polyneuropathy (CIDP), life can change in the blink of an eye. But these conditions affect everyone differently, and each person has a story to tell. Welcome to “Untold Stories: Life with a Severe Autoimmune Condition,” a Ruby Studio from iHeart Media production in partnership with argenx. Host Martine Hackett has real, eye-opening conversations with people living with rare, autoimmune conditions ranging from MG to CIDP. Learn about the hardships of diagnosis and each person’s journey towards wellness. Understand the challenges they continue to overcome as they discover how to live with these conditions and persevere through the tough times. Plus, hear from the family members and friends who stand by them every day and play important roles in their care.

See omnystudio.com/listener for privacy information.

Episode Transcript

Speaker 1 (00:01):
The most powerful stories don't always make headlines. Sometimes they
start in the quiet moments, a strange feeling, a bold decision,
and a day that changes everything. I'm Martine Hackett. Join
me for Season five of Untold Stories Life with a
severe autoimmune condition. We follow people living with Myasthenia gravis

(00:22):
or MG, a neuromuscular condition that affects how nerves communicate
with muscles, and CIDP or chronic inflammatory demilinating polyneuropathy, a
rare disorder that can cause fatigue, weakness, and a gradual
loss of mobility. Living with either means navigating the unknown
and finding the strength to move forward. This season, our

(00:42):
stories stretch further, dive deeper, and above all, remind us
what resilience really looks like. We'll meet Trent, a father
who went from learning to walk again to completing an
iron Man triathlon, not in spite of his diagnosis, but
because of it.

Speaker 2 (00:58):
The reason I do it is to have whatever little
impact I can on this earth, on other people, so
that they choose hope.

Speaker 1 (01:06):
Britt, a mother who learned to care for her newborn
son while relearning how to care for herself. And Tanya,
a yoga teacher who used graphic t shirts to spread
awareness and hope around MG. It's forced me to be
a better verbal teacher, and they see that I'm showing
up in the most positive, authentic self and they actually

(01:28):
feel that I am the Tanya that they know. And
for the first time, we'll hear an honest, unfiltered conversation
between a patient and their health care provider, two perspectives,
one shared goal to move forward with trust and clarity.
The stories we share are never just about managing a condition.
They're about growing through it, finding community, and reclaiming a

(01:51):
life filled with meaning and joy. Because the truth is,
living with MG or CIDP is more than living with
a diagnose. It's living with the setbacks, the breakthroughs, and
living with the strength it takes to show up for
yourself and for others when it matters the most. Through
these stories, We'll hear it all and you will too.

(02:14):
Don't miss Season five of Untold Stories Life with a
severe autoimmune condition. Real stories, real resilience, real hope, real people,