Episode Transcript
Available transcripts are automatically generated. Complete accuracy is not guaranteed.
(00:00):
Welcome to the public affair show ofyour favorite iHeartRadio station in Seattle. I'm
your host Lee Callahan. On thephone with me, I have a remarkable
local woman who's really been through it. Man, it's come out the other
side to do good for others,help others in the same predicament from the
MS. I'm possible organization. I'vegot Claudia Longo. Welcome Claudia, good
(00:22):
morning, ly, thank you somuch for having me. Oh absolutely,
So you were a U Dub graduate. But before you went, you were
in high school. You're getting readyto come to you Dub and play soccer.
What happened? Yeah, so obviouslythat was my senior year. I
was training a lot, you know, before school, after school, I
was dedicating all my life to gettingready to play it, and so I
(00:43):
started experiencing these interesting neurological symptoms.I had, you know, completely numb
and tingling legs. I was throwingup buster games, I was super tired,
and so I took a step back, just took it easier, own
training and everything. But the symptomsdidn't go away, and so I ended
up going to a neurologist. Thankfully, both my parents are physicians, and
so they knew that there was somethingkind of weird happening. And I had
(01:07):
also presented with these symptoms, funnyenough, a few years ago, and
the saying, obviously that we've cometo find out about a mess is you
know, it comes and goes andwe're locking and remitting, and so you
know, at that time, Iwas clearly in a flare. And so
when I went to the neurologist andpresented with these symptoms, he was like,
we need to get MRIs, weneed to get some tests done,
and so you know, one weeklater I was sitting in that same office
(01:30):
with the MS diagnosis. Yeah,there's a lot of questions people with MS
have and a lot of questions peoplewithout MS have. And you know,
we've seen certain actors lately come forwardand say they've got it, and we
see now I can't think of eitherone of their names, Selma Blair and
oh the other Galon. They bothhave canes, both having a really difficult
(01:52):
time, both kind of in theirforties. Is there kind of a general
description of what happens to the bodywhen you get hit with multiple sclerosis?
Yeah, that's a great question,one that I love to answer because I
just think, given the way MScan present in so many different patients,
it's really hard to know and graspwhat it means. Yeah. Funny enough,
(02:14):
that day that I got diagnosed,I was in my BioMed class and
I remember this page of our textbookwe were learning about MS, and all
of the words you hear are likedebilitating notes your wheelchair, you know,
And so when I received that diagnosis, those are the first words that came
to mind. And for some folks, that is definitely what happens. Right,
(02:34):
if you're maybe a bit older andthe disease has been progressing for longer,
it can be that debilitating disease.I think what's interesting is now we're
seeing so many more young adults beingdiagnosed with it younger, and with the
treatment options that are available, wehave the opportunity to hopefully delay any progression
of the disease. So, youknow, I will live with the symptoms
(02:57):
that I have, but on thetreatment that I'm on, goal is that
I don't have any disease progression.And so that's why you get this wide
spectrum of maybe folks that it seemsinvisible for some, but you do have
you know, to your point,some people might have to have a cane.
And that's not to say, youknow, maybe down the road that
happens. I don't think it will. I'll manifest that it won't happen for
me, right, like all aboutthat positive energy. But yeah, it
(03:21):
is. It is interesting because itis such a wide array of symptoms for
individuals. Yeah, okay, soyour symptoms at how old were you?
Seventeen eighteen? Yeah, I wasdiagnosed at eighteen. Wow, I'm so
glad your parents are physicians and theydidn't even brush it off. They just
got you to help so quickly soyou could get this diagnosis. What were
(03:42):
your symptoms? Yeah, so Iliterally could not feel my legs And it
was kind of a joke at thetime. When I was playing soccer,
I was kind of having some difficultyfeeling the ball at my feet and so
I kid you not my so ofmy club teammates, which all love to
them, but they were calling menummy because you wrote. People would like
go up and touch my legs,and I was like, I literally cannot
feel this. So that was abig thing. Again, I was I
(04:06):
was throwing up after games. Ithink it was just because my body was
so tired and then reached the exhaustionpoint wasay sooner, But that was just
my body's way of coping with it, and again the fatigue and then having
some issues with like electric shocks.So anytime I would look down, I
would get these shooters that ran frommy back all the way down my legs.
(04:28):
Oh my goodness. Claudia Algo ison the phone. She lives with
MS and has a great not forprofit that I swear we're going to talk
about very soon. It's called MS. I'm possible. Go to MS impossible
dot org. Did you have mobilityissues since you were going to be a
soccer player? Yeah, I mean, in full transparency. I remember the
first couple of times I had startedtrying to play again, I was actually
(04:53):
coaching because I it takes some timeoff for my health and just make sure
everything was in order. But whenI got back, I was first coaching
and I was demoing this drill andI just fell I remember looking around and
kind of looking at everyone and we'reall kind of like, you know,
could this be MS? Could thisjust be you know, me being clumsy?
Who knows that? I think onething I did from the get go
(05:13):
when I started playing soccer again,is obviously I could feel things were different.
I was having vertigo from checking myshoulder. I was, you know,
not feeling well. But I didn'tlet myself fall into that trap of
blaming it on a mess on MS. Right, like being a college athlete
and working really hard, everyone's goingthrough something, everyone's fighting some demons during
practice, and so I think that'ssomething that I did from the get go.
(05:36):
Is obviously acknowledging that, yes,there was these symptoms that were presenting,
but trying not to let that definemy practice or my game or whatnot.
Right on, So you were completelyout while you were playing you dubbed
soccer. Yeah, So I Ihad been diagnosed, you know, right
before, and then I took theyear off of school in soccer just to
(05:57):
get my health in order. Ihad started with infusions, and so those
infusions for me were a bit challengingfor a multitude of reasons. Number one,
my body just did it tolerate themedication well. And then number two,
I was going into the infusion centerand I was clearly the only you
know, eighteen year old there thatwas full of energy and ready to like
(06:18):
put my clips back on. AfterI was at the infusion center to go
train, and that definitely wasn't thesame energy in there, and so I
think having conversations with maybe some otherfolks who were dealing with it at the
time was really challenging for me.And I wasn't finding a ton of people
to connect with at the time,and so, you know, for as
(06:40):
I said a few reasons, Iended up changing my medication and I've been
on a different one ever since thenand has felt, you know, really
great, and it eventually allowed meto return to the field and play with
the huskies. Oh cool. Isthat an infusion medication or is that a
daily What is that? Yeah?So now it's just a daily pill,
which is super easy and it's funny. I get a lot of questions from
(07:01):
folks like, oh, what areyour side effects? And I'm like,
I don't know, and I don'twant to know. I stay away from
the internet. I don't google theside effects of my medication. You know,
it's possible maybe some random things thatI experienced could be attributed to that,
but I like to just you know, I feel good on the medication.
I could do the things I love, so no need to go down
that rabbit hole of like you knowwhat could be on our good friend Google.
(07:26):
Right, that's cool. Can youtell me what it is? It's
called jolenia. Well, thank youfor that. Do you to also take
a preventative every six month infusion ordoes Gelenia cover that? Yeah? I
mean my only medication is that andthen one other you know, gaba Penton
helps with some nerve pain that Iexperience. And then just in terms of
monitoring progression, I do get MRIsonce a year to make sure that I
(07:48):
haven't had any new lesions. Andlast week I actually was in you know,
the hospital for my day of treatmentsand no new symptoms and no new
progression of disease, which is great. That is so great. So one
more thing, I know you're asoccer player, no drop foot, none
of that nonsense. You know,I would feel things here and there,
(08:09):
but that never stopped me from hittinga free kick, so I don't think
so No, I don't either.That's awesome. Okay, now let's talk
about playing soccer. How many yearsdid you get to play on the team.
I played for three seasons. That'sawesome. And then you graduated from
college I'm assuming I did. Yes, I graduated last June. Oh wow,
(08:31):
I yeah, So I had playedmy fifth season, that was my
last season with the Huskies, andthen I'm studying neuroscience. So I kind
of delayed my graduation there for afew months. So wrapped it up about
a year ago. Neuroscience. Areyou going to go on? Or are
you going to go on and becomea doctor? You know, if you
(08:52):
would have asked me that question ayear ago today, I think my answer
would have been very different. Butit's kind of the perfect transition to to
talk about what I'm doing now.I had, obviously, you know,
studied neuroscience in college. I alwayswanted to go to medicine, go into
medicine, go to med school.And when this neuroscience opportunity came about,
I was like, how cool tolearn about what's really happening in my brain
(09:13):
and in my body. I wasstudying for the m CAT. I did
end up taking the m CAT.But at my last game in Pullman against
the Koogs, we won, ofcourse, go dogs. But we were
at our last game and I hadconnected with this gal from Eastern Washington who
(09:33):
had come to a few of mygames. She had been recently diagnosed with
MS, you know, and shewas trying to reach out and connect to
other people in a similar situation.So she had come to my game,
and when she was diagnosed, shehad never even thought about playing soccer again.
You know, the thought of puttingher cleets back on just didn't seem
to be in the picture because shehad this life altering diagnosis. You know.
(09:54):
When she came to my game theweek later, she started trying to
play soccer again. And so Ithink about that last game in Pullman she
was there. We had beat theKuges. I was so happy, and
that was like my fairy tale storybookending to my soccer career. But I
see that as the start of mynext career. And that was when I
(10:16):
started thinking about starting my own nonprofit. And so that's kind of why this
maybe neuroscience soccer mindset has now turnedinto me running a nonprofit today. Very
cool. Everybody on the phone withme, I've got you, dub graduate
and the executive director of MS,I'm possible, Claudia Alongo on the phone.
(10:39):
Tell me about your organization and whatyou really try to do for folks.
Yeah, so we have a varietyof ways we can support We are
a five oh one c three nonprofitorganization. The ultimate goal of what we
do is just connecting an adults withMS. You know, I alluded to
the fact earlier that when I wasfirst diagnosed, I struggled to connect with
(11:03):
like minded, optimistic folks that havethis disease. But I know there's so
many of those out there. Somy goal is to kind of especially with
this younger generation of people that arebeing diagnosed. We serve individuals under thirty
five with MS. We want tobe that good news like acknowledge, Yes,
this disease. I would not choosethis right. It's not fun to
(11:24):
live with, but there are somany ways to live a healthy and a
happy life with this disease, andthat's what we're trying to spread. So
we do that by bringing together youngadults of MS from all over the country
on you know, monthly calls wherewe all connect and meet one another,
and then we bring in a keynotespeaker to share some tips and tricks on
how to arrive with MS. Wegive out financial aid for certain services that
(11:48):
often aren't covered by insurance, butthat we know really helps when you're dealing
with MS. As I mentioned,I'm on a medication, but I also
know massage, therapy and die andsleep and all these other things are so
important when you're dealing with this,but they can come with a cost.
So you know, we give outsome grants to help cover the cost of
(12:09):
those services. What isn't covered forfolks sometimes? I mean, I think
with a lot of holistic wellness aspectsof exciting this disease, I think that's
where we're really targeting, because like, yeah, like I said, you
know, dietician's not always covered byinsurance, sage the same. Okay,
I get that, Okay, thankyou. Yeah, tell me besides,
(12:33):
you know your medication and massage andyour diet and sleep, what what else
do you do to kind of assuagethe symptoms? I mean, I would
say for me, it's being activeand staying active, And that was the
way I came out swing in whenI was first diagnosed. It's playing soccer
and working towards my dream of playingsoccer allowed me to have a goal and
(12:56):
stay active even when I wasn't onthe field right. So when I moved
home and had to take the yearoff of school in soccer, I obviously
wasn't lacing up my boots to playa full ninety. I was going on
walks to start building my foundation sothat I eventually I could get back.
You know. Similarly, now,even though my career is done, I'm
still doing things, working towards thegoal of you know, maybe I'll run
(13:18):
a marathon or maybe do things likethat, where my mindset is always Okay,
what's next? How can I stayactive? Because keeping us fit and
active and always moving is so importantwhen dealing with this disease and so many
other diseases as well. Wow,motion is lotion for this one. Absolutely
absolutely. Claudio Longo is on thephone, executive director of MS. I'm
(13:45):
possible and you've been so inspirational,And of course we listeners can help out
your organization. Can you tell ushow we can help you help others?
Yeah? Absolutely, Well, weare always looking for volunteers. We do
have a couple exciting events coming upthis summer, one of which I can
plug and that is a pickleball tournamenthappening in May in the Isstaqua area.
(14:07):
So we are super excited about that. Whether you're a pickleball player or not,
it will be a fun day tokind of get the community together and
play a little pickleball. We also, you know, are a five to
one SS three and tax exempt,so we love donations. Is that's a
great way to help, as Imentioned with financial aid and giving and all
of that, and just I meanagain, because we are more of a
(14:31):
grassroots nonprofit organization for us, spreadingthe word is so impactful. And if
there's somebody in your network that youknow, whether has AMS or know somebody
that has a MES, we'd loveto get connected and I'd love to sit
down and grab a coffee or whathave you and just get to know more
and more folks that we can helpout right on. Yeah, it's all
about connection, it's all about community, it's all about making sure everybody's getting
(14:54):
the right care. And with theMS I'm Possible, sounds like you're well
on your way to helping a lotof people. I really appreciate it.
Yeah, it's been great. Thankyou so much. You're so welcome,
Claudia, A longo. Just goto MS dash i'mpossible dot org. Did
I get that right? Yeah,you got it all right. Thank you
(15:16):
so much, Claudia. Thanks again. Lee
Welcome to the public affair show ofyour favorite iHeartRadio station in Seattle. I'm
your host Lee Callahan. On thephone with me, I have a remarkable
local woman who's really been through it. Man, it's come out the other
side to do good for others,help others in the same predicament from the
MS. I'm possible organization. I'vegot Claudia Longo. Welcome Claudia, good
(00:22):
morning, ly, thank you somuch for having me. Oh absolutely,
So you were a U Dub graduate. But before you went, you were
in high school. You're getting readyto come to you Dub and play soccer.
What happened? Yeah, so obviouslythat was my senior year. I
was training a lot, you know, before school, after school, I
was dedicating all my life to gettingready to play it, and so I
(00:43):
started experiencing these interesting neurological symptoms.I had, you know, completely numb
and tingling legs. I was throwingup buster games, I was super tired,
and so I took a step back, just took it easier, own
training and everything. But the symptomsdidn't go away, and so I ended
up going to a neurologist. Thankfully, both my parents are physicians, and
so they knew that there was somethingkind of weird happening. And I had
(01:07):
also presented with these symptoms, funnyenough, a few years ago, and
the saying, obviously that we've cometo find out about a mess is you
know, it comes and goes andwe're locking and remitting, and so you
know, at that time, Iwas clearly in a flare. And so
when I went to the neurologist andpresented with these symptoms, he was like,
we need to get MRIs, weneed to get some tests done,
and so you know, one weeklater I was sitting in that same office
(01:30):
with the MS diagnosis. Yeah,there's a lot of questions people with MS
have and a lot of questions peoplewithout MS have. And you know,
we've seen certain actors lately come forwardand say they've got it, and we
see now I can't think of eitherone of their names, Selma Blair and
oh the other Galon. They bothhave canes, both having a really difficult
(01:52):
time, both kind of in theirforties. Is there kind of a general
description of what happens to the bodywhen you get hit with multiple sclerosis?
Yeah, that's a great question,one that I love to answer because I
just think, given the way MScan present in so many different patients,
it's really hard to know and graspwhat it means. Yeah. Funny enough,
(02:14):
that day that I got diagnosed,I was in my BioMed class and
I remember this page of our textbookwe were learning about MS, and all
of the words you hear are likedebilitating notes your wheelchair, you know,
And so when I received that diagnosis, those are the first words that came
to mind. And for some folks, that is definitely what happens. Right,
(02:34):
if you're maybe a bit older andthe disease has been progressing for longer,
it can be that debilitating disease.I think what's interesting is now we're
seeing so many more young adults beingdiagnosed with it younger, and with the
treatment options that are available, wehave the opportunity to hopefully delay any progression
of the disease. So, youknow, I will live with the symptoms
(02:57):
that I have, but on thetreatment that I'm on, goal is that
I don't have any disease progression.And so that's why you get this wide
spectrum of maybe folks that it seemsinvisible for some, but you do have
you know, to your point,some people might have to have a cane.
And that's not to say, youknow, maybe down the road that
happens. I don't think it will. I'll manifest that it won't happen for
me, right, like all aboutthat positive energy. But yeah, it
(03:21):
is. It is interesting because itis such a wide array of symptoms for
individuals. Yeah, okay, soyour symptoms at how old were you?
Seventeen eighteen? Yeah, I wasdiagnosed at eighteen. Wow, I'm so
glad your parents are physicians and theydidn't even brush it off. They just
got you to help so quickly soyou could get this diagnosis. What were
(03:42):
your symptoms? Yeah, so Iliterally could not feel my legs And it
was kind of a joke at thetime. When I was playing soccer,
I was kind of having some difficultyfeeling the ball at my feet and so
I kid you not my so ofmy club teammates, which all love to
them, but they were calling menummy because you wrote. People would like
go up and touch my legs,and I was like, I literally cannot
feel this. So that was abig thing. Again, I was I
(04:06):
was throwing up after games. Ithink it was just because my body was
so tired and then reached the exhaustionpoint wasay sooner, But that was just
my body's way of coping with it, and again the fatigue and then having
some issues with like electric shocks.So anytime I would look down, I
would get these shooters that ran frommy back all the way down my legs.
(04:28):
Oh my goodness. Claudia Algo ison the phone. She lives with
MS and has a great not forprofit that I swear we're going to talk
about very soon. It's called MS. I'm possible. Go to MS impossible
dot org. Did you have mobilityissues since you were going to be a
soccer player? Yeah, I mean, in full transparency. I remember the
first couple of times I had startedtrying to play again, I was actually
(04:53):
coaching because I it takes some timeoff for my health and just make sure
everything was in order. But whenI got back, I was first coaching
and I was demoing this drill andI just fell I remember looking around and
kind of looking at everyone and we'reall kind of like, you know,
could this be MS? Could thisjust be you know, me being clumsy?
Who knows that? I think onething I did from the get go
(05:13):
when I started playing soccer again,is obviously I could feel things were different.
I was having vertigo from checking myshoulder. I was, you know,
not feeling well. But I didn'tlet myself fall into that trap of
blaming it on a mess on MS. Right, like being a college athlete
and working really hard, everyone's goingthrough something, everyone's fighting some demons during
practice, and so I think that'ssomething that I did from the get go.
(05:36):
Is obviously acknowledging that, yes,there was these symptoms that were presenting,
but trying not to let that definemy practice or my game or whatnot.
Right on, So you were completelyout while you were playing you dubbed
soccer. Yeah, So I Ihad been diagnosed, you know, right
before, and then I took theyear off of school in soccer just to
(05:57):
get my health in order. Ihad started with infusions, and so those
infusions for me were a bit challengingfor a multitude of reasons. Number one,
my body just did it tolerate themedication well. And then number two,
I was going into the infusion centerand I was clearly the only you
know, eighteen year old there thatwas full of energy and ready to like
(06:18):
put my clips back on. AfterI was at the infusion center to go
train, and that definitely wasn't thesame energy in there, and so I
think having conversations with maybe some otherfolks who were dealing with it at the
time was really challenging for me.And I wasn't finding a ton of people
to connect with at the time,and so, you know, for as
(06:40):
I said a few reasons, Iended up changing my medication and I've been
on a different one ever since thenand has felt, you know, really
great, and it eventually allowed meto return to the field and play with
the huskies. Oh cool. Isthat an infusion medication or is that a
daily What is that? Yeah?So now it's just a daily pill,
which is super easy and it's funny. I get a lot of questions from
(07:01):
folks like, oh, what areyour side effects? And I'm like,
I don't know, and I don'twant to know. I stay away from
the internet. I don't google theside effects of my medication. You know,
it's possible maybe some random things thatI experienced could be attributed to that,
but I like to just you know, I feel good on the medication.
I could do the things I love, so no need to go down
that rabbit hole of like you knowwhat could be on our good friend Google.
(07:26):
Right, that's cool. Can youtell me what it is? It's
called jolenia. Well, thank youfor that. Do you to also take
a preventative every six month infusion ordoes Gelenia cover that? Yeah? I
mean my only medication is that andthen one other you know, gaba Penton
helps with some nerve pain that Iexperience. And then just in terms of
monitoring progression, I do get MRIsonce a year to make sure that I
(07:48):
haven't had any new lesions. Andlast week I actually was in you know,
the hospital for my day of treatmentsand no new symptoms and no new
progression of disease, which is great. That is so great. So one
more thing, I know you're asoccer player, no drop foot, none
of that nonsense. You know,I would feel things here and there,
(08:09):
but that never stopped me from hittinga free kick, so I don't think
so No, I don't either.That's awesome. Okay, now let's talk
about playing soccer. How many yearsdid you get to play on the team.
I played for three seasons. That'sawesome. And then you graduated from
college I'm assuming I did. Yes, I graduated last June. Oh wow,
(08:31):
I yeah, So I had playedmy fifth season, that was my
last season with the Huskies, andthen I'm studying neuroscience. So I kind
of delayed my graduation there for afew months. So wrapped it up about
a year ago. Neuroscience. Areyou going to go on? Or are
you going to go on and becomea doctor? You know, if you
(08:52):
would have asked me that question ayear ago today, I think my answer
would have been very different. Butit's kind of the perfect transition to to
talk about what I'm doing now.I had, obviously, you know,
studied neuroscience in college. I alwayswanted to go to medicine, go into
medicine, go to med school.And when this neuroscience opportunity came about,
I was like, how cool tolearn about what's really happening in my brain
(09:13):
and in my body. I wasstudying for the m CAT. I did
end up taking the m CAT.But at my last game in Pullman against
the Koogs, we won, ofcourse, go dogs. But we were
at our last game and I hadconnected with this gal from Eastern Washington who
(09:33):
had come to a few of mygames. She had been recently diagnosed with
MS, you know, and shewas trying to reach out and connect to
other people in a similar situation.So she had come to my game,
and when she was diagnosed, shehad never even thought about playing soccer again.
You know, the thought of puttingher cleets back on just didn't seem
to be in the picture because shehad this life altering diagnosis. You know.
(09:54):
When she came to my game theweek later, she started trying to
play soccer again. And so Ithink about that last game in Pullman she
was there. We had beat theKuges. I was so happy, and
that was like my fairy tale storybookending to my soccer career. But I
see that as the start of mynext career. And that was when I
(10:16):
started thinking about starting my own nonprofit. And so that's kind of why this
maybe neuroscience soccer mindset has now turnedinto me running a nonprofit today. Very
cool. Everybody on the phone withme, I've got you, dub graduate
and the executive director of MS,I'm possible, Claudia Alongo on the phone.
(10:39):
Tell me about your organization and whatyou really try to do for folks.
Yeah, so we have a varietyof ways we can support We are
a five oh one c three nonprofitorganization. The ultimate goal of what we
do is just connecting an adults withMS. You know, I alluded to
the fact earlier that when I wasfirst diagnosed, I struggled to connect with
(11:03):
like minded, optimistic folks that havethis disease. But I know there's so
many of those out there. Somy goal is to kind of especially with
this younger generation of people that arebeing diagnosed. We serve individuals under thirty
five with MS. We want tobe that good news like acknowledge, Yes,
this disease. I would not choosethis right. It's not fun to
(11:24):
live with, but there are somany ways to live a healthy and a
happy life with this disease, andthat's what we're trying to spread. So
we do that by bringing together youngadults of MS from all over the country
on you know, monthly calls wherewe all connect and meet one another,
and then we bring in a keynotespeaker to share some tips and tricks on
how to arrive with MS. Wegive out financial aid for certain services that
(11:48):
often aren't covered by insurance, butthat we know really helps when you're dealing
with MS. As I mentioned,I'm on a medication, but I also
know massage, therapy and die andsleep and all these other things are so
important when you're dealing with this,but they can come with a cost.
So you know, we give outsome grants to help cover the cost of
(12:09):
those services. What isn't covered forfolks sometimes? I mean, I think
with a lot of holistic wellness aspectsof exciting this disease, I think that's
where we're really targeting, because like, yeah, like I said, you
know, dietician's not always covered byinsurance, sage the same. Okay,
I get that, Okay, thankyou. Yeah, tell me besides,
(12:33):
you know your medication and massage andyour diet and sleep, what what else
do you do to kind of assuagethe symptoms? I mean, I would
say for me, it's being activeand staying active, And that was the
way I came out swing in whenI was first diagnosed. It's playing soccer
and working towards my dream of playingsoccer allowed me to have a goal and
(12:56):
stay active even when I wasn't onthe field right. So when I moved
home and had to take the yearoff of school in soccer, I obviously
wasn't lacing up my boots to playa full ninety. I was going on
walks to start building my foundation sothat I eventually I could get back.
You know. Similarly, now,even though my career is done, I'm
still doing things, working towards thegoal of you know, maybe I'll run
(13:18):
a marathon or maybe do things likethat, where my mindset is always Okay,
what's next? How can I stayactive? Because keeping us fit and
active and always moving is so importantwhen dealing with this disease and so many
other diseases as well. Wow,motion is lotion for this one. Absolutely
absolutely. Claudio Longo is on thephone, executive director of MS. I'm
(13:45):
possible and you've been so inspirational,And of course we listeners can help out
your organization. Can you tell ushow we can help you help others?
Yeah? Absolutely, Well, weare always looking for volunteers. We do
have a couple exciting events coming upthis summer, one of which I can
plug and that is a pickleball tournamenthappening in May in the Isstaqua area.
(14:07):
So we are super excited about that. Whether you're a pickleball player or not,
it will be a fun day tokind of get the community together and
play a little pickleball. We also, you know, are a five to
one SS three and tax exempt,so we love donations. Is that's a
great way to help, as Imentioned with financial aid and giving and all
of that, and just I meanagain, because we are more of a
(14:31):
grassroots nonprofit organization for us, spreadingthe word is so impactful. And if
there's somebody in your network that youknow, whether has AMS or know somebody
that has a MES, we'd loveto get connected and I'd love to sit
down and grab a coffee or whathave you and just get to know more
and more folks that we can helpout right on. Yeah, it's all
about connection, it's all about community, it's all about making sure everybody's getting
(14:54):
the right care. And with theMS I'm Possible, sounds like you're well
on your way to helping a lotof people. I really appreciate it.
Yeah, it's been great. Thankyou so much. You're so welcome,
Claudia, A longo. Just goto MS dash i'mpossible dot org. Did
I get that right? Yeah,you got it all right. Thank you
(15:16):
so much, Claudia. Thanks again. Lee
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