Episode Transcript
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Speaker 1 (00:07):
From WBZ News Radio in Boston. This is New England Weekend.
Each week right here, we come together and talk about
all the topics important to you and the place where
you live. It's good to have you back with us
on this Labor Day weekend. I'm Nicole Davis. As we
make our way into the Fall, the weather is cooling
down a bit. It's not so humid and sticky. It's
(00:28):
a perfect time for a bike ride through the woods.
The Marlow Foundation hopes you will join them for theirs,
which is taking place in just a couple of weeks. Now,
this is not just any ordinary bike ride. After years
of taking part in Best Buddies raising hundreds of thousands
of dollars, the Marlow Foundation is taking their fundraising energy
to the next level. They're using this ride and other
(00:49):
events to raise much needed cash for local nonprofits that
help people with intellectual and developmental disabilities. Let's learn more
about the Sunapee Challenge with Steve Roghi. He is the
co founder of the Marlow Foundation. Steve, thank you so
much for being here, and first, before we talk about
the ride, let's talk a bit about your foundation and
tell us a bit about the work you do.
Speaker 2 (01:10):
Marlow is my daughter. Marlow is thirteen years old. She
was born January eleventh, twenty twelve, and we were not
aware of her diagnosis. So Marlow is a little bit
of a surprise to us. And she was born with
Down syndrome. She has an extra chromosome as everyone knows
try so many twenty one. And you know, for folks
(01:32):
that are unaware of what Down syndrome is, I mean
it tends to be, you know, related to intellectual and
developmental disabilities, delayed development. There's a lot of different types
of challenges with Down syndrome, right, So we really had
no idea what it would be like to raise a
child with Down syndrome or any sort of disability. And
(01:54):
very early on, within a few months, we were approached
by good friend of mine to say, hey, let's raise
awareness and let's join best buddies, right, and that's where
Team Marlow was formed. So it was formed within a
couple months of Marlow being born, and we participated in
one hundred miles ride from the JFK Memorial Library down
(02:18):
to Hyanna's Port and there were four people that joined
us that year. So tem Marlow was very small from
the from from the very beginning, but then it just
grew from there. So so the marlow Foundation was formed
in two thousand and twenty four. You know, we decided
that we had been part of Best Buddies for so long,
(02:40):
and we had done a lot of work, We had
raised a lot, over a million dollars. We had so
many riders, you know, from here in Winchester, from folks
where I grew up, and we decided that we wanted
to put the funds to use with local grassroots charities
that had great ideas that didn't have the fund raised
vehicles that best Body had, right so Best Buddy is
(03:02):
a global organization, so we decided that, you know, look,
let's put Team Marlowe, you know, to you know, it's
kind of point the direction towards local charities that can
really help kids with intellectual and developmental disabilities. It's been
two years and we've already received so much you know,
you know, support from local community here with with you know, friends, family,
(03:25):
and and now you and I are.
Speaker 3 (03:26):
Talking right so just just how crazy things happen.
Speaker 2 (03:29):
And you know, we've really never been one to you know,
look for recognition, and you know, we've always thought that
we just want to be closer, you know, to the
charities and get to know people and.
Speaker 3 (03:41):
Really try to help people in the grassroots effort.
Speaker 1 (03:44):
Sure, and I've always believed that a parents love there
is nothing you can get in the way when you've
got parents who are doing things for their kids. And
Marlowe seems like such a great kid. I mean, how
is she involved in all this and what does she
think about it all?
Speaker 2 (03:56):
I think she you know, at first, right, so the
first few years she ye, she was she had no
idea what was going on. And you know, as as
and even I have two boys, Calvin and Flynn, they're
twins and they're now eleven. And as the years progressed,
I think marlow is more and more involved. So if
you go to the website, you know, you'll see pictures
(04:17):
and we're actually updating the website with the content from
last year, and you know, there'll be some content on
the website from you know that we're developing for this
year's ride and just for the foundation and the different
charities that we've donated to. But marlow now is part
of it, right, which is the best part, right. And
we have riders that have been part of Team Marlow
from the very beginning, and their kids are now part
(04:38):
of it. So Ed Crare, who's a very dear friend
of mine, his son, his daughter, Whitney and Justin are riding,
their friends are riding, his wife is riding right, So
you can kind of see like how it's affected every
family that's been part of it. But Marlow will, you know,
she'll kick off the ride, she'll ring the bell. She
(05:02):
knows it's about her. She knows it's about tem Marlowe,
and we're going to continue to, you know, include her
and the kids as each year goes by rights, it's
now put it's not just about tem marlow it's about
the community. It's about everybody coming together and supporting a
charity and raising awareness about people with intellectual and developmental disabilities.
Speaker 1 (05:25):
Sure, have you found any local charities that you're throwing
your support behind this time or are you still in
the hunt to try to identify where you want that
money to go.
Speaker 3 (05:34):
No, it's a great question.
Speaker 2 (05:35):
And so the charity, the charities that we chose last
year were actually chosen by Team Marlowe members because we
had felt that we had asked everyone to support this
global charity. But a lot of people would say, well, Steve,
you know I saw this charity or my son's working
at this organization, and I would love at some point
(05:57):
to maybe donate some of the money there. So we
would get those plus and it was hard when we're
fundraising for this global charity to like shift the attention.
So the three charities that were chosen last year were
Athletes Unlimited in Newton, and we did have a personal
connection there. My sister and brother in law and their
kids worked at Camp Echo Bridge, which is part of
(06:20):
Athletes Unlimited. It's a summer camp for both typical and
kids with intellectual and developmental disabilities, and Marlow goes to
that camp.
Speaker 3 (06:28):
So we raised money for.
Speaker 2 (06:31):
That specific organization, which is a nonprofit which is well
known and not just in Newton but in Massachusetts.
Speaker 3 (06:40):
And then there's a.
Speaker 2 (06:41):
New fitness center called Inclusive Fitness, which actually Joe Cronin,
one of our riders, his son Dan Cronin, works there.
So we gave some money to Inclusive Fitness, which is
specifically a fitness center for kids with intellectual, developmental and
physical did disabilities. So it's not your typical gym where
(07:03):
you know someone with a disability might come, but it's
all a bunch of other people, you know, working out.
It's actually an environment where people with different types of
disabilities can come and feel you know, confident and really
feel part of that community. And then the other one
we did, which is super cool. We have so Dan
Burke his daughters worked at gnome Surfing down in Rhode Island,
(07:27):
and so we gave money Tonomesurfing, which is a surfing
camp and a surfing people that teach people with intellectual
development and physical disabilities to learn how to surf.
Speaker 1 (07:37):
We hadnme Surf here on the show last year. They
are doing incredible work down there.
Speaker 2 (07:42):
Absolutely, yeah, so we So those are the first three
and I think, you know, I mean, those are just
great examples of organizations that have such a great charter
but don't necessarily have the fundraising you know, vehicles or
you know, people like Tim Marlow that we have access
to a lot of you know, look, we live in
(08:03):
a wealthy community. We live in Winchester, mass There's a
lot of people in here that love to to donate
and and donate not just financially, but donate their time.
So that's kind of where we feel that team marlow
can really explode here in Massachusetts. And you know, we
want it to be hundreds of charities. We don't want
it to just be three, right so, you know, we
(08:24):
want to the goal of the foundation is to really
you know, make a huge impact here in Massachusetts. Some
of the charities will have chapters or have you know,
affiliates outside of Massachusetts, which is totally fine, and maybe
at some point we do come global, become global, but
I think at this point, you know, we're really just
(08:44):
kind of focused locally because we can go meet those people.
We can have Marlowe go meet those people, or Marlowe
be part of you know, those different charities and organizations.
Right so, yeah, so so right now, we haven't decide,
I did, where the money's going to go. It's sort
of dependent on how much money we raise for the
upcoming ride. But we haven't decided just yet where the
(09:07):
money will be funded for the next phase. But we
definitely have some some in mind. Maybe some of your
listeners will will approach on the website.
Speaker 3 (09:14):
We are going to have apply for grant on the website.
Speaker 2 (09:20):
We were updating the website, so it's not there yet,
but people can reach me through my phone number. I'll
give you my phone number an email. But we want
people to come to us with ideas. That's that's the
purpose of the foundation.
Speaker 1 (09:32):
Of course. Now let's talk about the ride because this
is coming up on September thirteenth. You're going from your
hometown of Winchester up to Lake Sunapee, New Hampshire. Why
son Ape Why did you choose to go up there?
Speaker 2 (09:45):
Yeah, so it's it just was an idea. One of
the things that's been so our team Team Marlowe was
about riding. I mean, that's so one of the things
just to go with the why an event, right, and
a lot of people there's a lot of rides out there,
there's a lot of runs, as a lot of walks.
Riding one hundred miles is equivalent to probably running a marathon.
I mean, I think that that's been what people say.
(10:08):
It depends on like how you know, how much climbing
you do and how far and you know the weather
and everything like that. But really the ride symbolizes the
challenges that a person with intellectual and developmental disability have
on a day to day basis, Right, So that's why
you put yourself out there. You do a challenge and
you raise money and awareness for that specific charity.
Speaker 3 (10:31):
I think that's that's well known, right.
Speaker 2 (10:32):
It's like, hey, let's put myself in the shoes of
someone for a day and let's really challenge myself.
Speaker 3 (10:38):
And yeah, it's going to be hard, and it's you know.
Speaker 2 (10:40):
There's going to be elements where I want to give up,
but I'm not going to give up because I want
to get to the finish line and I want everyone to.
Speaker 3 (10:47):
Know that I did it.
Speaker 2 (10:48):
And that's kind of the the So, so Lake Sunapee,
we have a very close friend founder Ed Kraher, who
has a house up there, and the joke is we
probably should have started at Lake Sunaping and go down
to Boston.
Speaker 3 (11:00):
It would have been a little bit easier.
Speaker 2 (11:03):
Yeah, But so that's how it kind of came about.
And I looked it up on my phone. I said, hey, Ed,
what if we went from Winchester Center to Lake sunape
And he said, well, how many miles? It was literally
one hundred miles Winchester Center to Lake sanape So that's
how it kind of came about. And now it's called
the Sun to Peach Challenge, so it's gonna almost create
(11:24):
its own entity. So the Team Marlowe Sunapea Challenge and yeah,
so that's on September thirteenth. Last year, we had twenty riders.
This year, we're close to registering forty riders, and each
rider has to raise one thousand dollars, which is not
a you know, insignificant amount, but compared to some of
the other charities that out there, you know, as an example,
(11:46):
I had to raise six thousand dollars for PMC. I
wrote PMC this year, so you know, it's not insignificant,
but it's not a number that people are not willing to.
Speaker 3 (11:55):
Kind of achieve, right, if that makes sense.
Speaker 2 (11:57):
And so we're trying to you know, I don't think
this is going to be like the size of PMC
or the Best Buddies ride, but we want to create
an event where people are excited. We all love hanging
out with each other. We're bringing new people into the fold.
And yeah, so if people are interested in riding, we'd
love to hear from you. And again, the ride is
September thirteenth. You know, the tradition of Team Marlowe has
(12:22):
always been not just about you know, the just the
charity itself. It's been about a community of people that
love each other that you know, have gotten behind our family,
but I don't want to.
Speaker 3 (12:36):
That's why we wanted.
Speaker 2 (12:37):
To start the marlow Foundation, because we wanted it to
be kind of the Team Marlowe's charity. Right, So we
all love to hang out have a good time. We
used to go to very close friends of all you
know ed. Krare's parents lived in at Willow Ben and
the Cape, so we used to go over their house
after the Best Buddies ride and we would just laugh
(12:59):
and Marlo would be there and other kids would be there,
and so yeah, it's.
Speaker 3 (13:03):
Just gonna be a celebration.
Speaker 2 (13:06):
With the team, and we're gonna, you know, we do
a bunch of pictures together that we'll be posted on
the website. But it's just a celebration and just saying, hey,
we did it. We're on the next phase of the
Team Marlowe chapter. And last year was incredibly rewarding because
it was the first year we decided to do this
and go out on our own, and we were scared
(13:28):
and we didn't know if it would work, and we
had all these like questions and okay, can we do this?
And we did right, and I think that's life, right,
It's like, don't be scared to try something new, don't
be scared to like, you know, just rally people around
a cause. And that's that's what Team Marlow has always
been about. It's been rallying people, spreading awareness, galvanizing a
(13:52):
community around specific issues.
Speaker 3 (13:55):
And and you know, really you know, enjoying.
Speaker 2 (13:57):
Each other's company and doing something physical and being outside
and you know, and just having a great time.
Speaker 1 (14:03):
Yeah, checks off all the boxes. You're doing good for
your body, or doing good for your community, or doing
good for all sorts of stuff. And then you get
to go have a party. I mean why yeah, have
a little.
Speaker 3 (14:12):
Party at the end.
Speaker 2 (14:13):
And by the way, you ask about Marlow, I mean,
at some point, if I'm ready, I will, you know,
I'll try to get maybe Marlow on the bike with me.
We do it, you know, a try bike, right and
and you know we we haven't done that yet, but
that's definitely part of the plan for the future. And
you know, from the other part of the plan for
the future, and you know, this was ways down the road,
(14:35):
is that we'd like to you know, fundraise to develop
the Marlow House, the Marlow House, would you know, at
some point if people are aware, you know, kids with
intellectual development disabilities, they can be in school until age
twenty two, and that's where life gets very challenging after
age twenty two. Where do they live? What type of
job can they get access to? Can they even get
(14:59):
a job? So one of the things that we're thinking
about down the road is to develop the Marlow House
team Marlow House and have a place where kids with
intellectual developmental disabilities are adults, young adults can live and
then create jobs programs for or job programs for them. Wow.
Speaker 1 (15:15):
That is a great idea and definitely much needed. I've
done a couple interviews in the past with similar homes
that are in Massachusetts, and people always tell me we
need more of these programs. We need more of this support,
not just for the people who are impacted directly, but
for their families as well. I mean, because this is
a family situation here, You're just as impacted as Marlow
(15:37):
is in many ways.
Speaker 3 (15:38):
Yeah, one hundred percent.
Speaker 2 (15:39):
And you know, look, I mean the things that things
have changed where and there are there is more housing
out there. But we want her to have an independent life, right,
So the more we start planning and thinking about that
and trying to help fund that, I think the better
off for everyone, including Marlowe. Right, So it's down definitely
(16:00):
something that is top of mind for people that have
kids and teenagers, like especially teenage age. You're starting to
think about, Okay, what does the future look like like?
Are they going to be living at home? Is that
the right thing for them? Or can we create you know,
an environment, or can we find a place where they
can be successful and live an independent life?
Speaker 3 (16:24):
Right? So, yeah, so that's that's kind of the future.
It's sort of painting broad strokes for the future.
Speaker 2 (16:29):
But right now we're really just focused on finding the
charities that kind of match our goal and match you know.
Speaker 3 (16:37):
And that need help. Right there's a lot of charities
out there that really do need help for me.
Speaker 1 (16:41):
Yeah, yeah, especially in this economy. Yeah, a lot of
people are struggling right now and giving might not be
as important to them, even though it might be emotionally
and you know, obviously logistically important. People just can't give
as much. So any way that we can gather people
together to give to these great causes, absolutely, let's do it.
And so you let's go over the basics one more time.
(17:03):
The Sunapee Challenge, but you will head up to Little
Sunapee Lake and if people want to sign up to ride,
to help sponsor this, to do anything that they can
do to help tell us where they can find you
online and on social media.
Speaker 2 (17:17):
Yep, so right now. So so right now we are
just set up on the Marlow Foundation dot org. There
is a donate button that's front and center. There's also
a registration for the ride at the bottom and at
the top.
Speaker 3 (17:33):
Of the website.
Speaker 2 (17:34):
Okay, we are actually setting up social media as we speak,
so we have a ton of content.
Speaker 3 (17:38):
I mean, as you well know and everyone knows, you.
Speaker 2 (17:40):
Need a ton of content to really kind of keep
present on social media. So that's actually being done tonight.
So there'll be more information on the website. But right now,
the best way to get a hold of us is
the Marlowfoundation dot org. So it's m. A. R. L
Owe Foundation dot org.
Speaker 1 (17:59):
Okay, great, well, Steve, thank you so much for the
time and good luck with your ride. And I hope
that it's beautiful skies and nice and clear and easy
for you to get to the lake. So then go
jump in and go have some fun.
Speaker 3 (18:11):
Thank you, Nicole.
Speaker 2 (18:12):
I really appreciate you you having me and you know
it's very exciting, so thank.
Speaker 3 (18:17):
You so much.
Speaker 1 (18:18):
Have a safe and healthy weekend. Please join me again
next week for another edition of the show. I'm Nicole
Davis from WBZ News Radio on iHeartRadio