En este episodio revelador de Que Pasa Boston nos acompaña la destacada investigadora Noriela Elia para compartir su trabajo pionero con la prestigiosa iniciativa "Count Me In" del Broad Institute de MIT y Harvard. Noriela nos guía a través de este innovador proyecto que está transformando la manera en que se estudia el cáncer, invitando a los pacientes a convertirse en colaboradores activos en la investigación científica.
Esta asociación única entre pacientes e investigadores está generando descubrimientos sin precedentes al recopilar datos cruciales que los métodos tradicionales suelen pasar por alto. Descubre cómo "Count Me In" (https://www.broadinstitute.org/count-me-in) está trabajando activamente para abordar las disparidades históricas en la investigación médica, especialmente para las comunidades latinas y otros grupos subrepresentados.
La pasión de Noriela por asegurar la participación diversa en estudios críticos brilla mientras explica por qué la representación es fundamental para desarrollar tratamientos efectivos que beneficien a todos. Aprende sobre las formas sencillas en que cualquier persona afectada por el cáncer puede contribuir a investigaciones revolucionarias desde su hogar, potencialmente ayudando a miles de futuros pacientes. Esta conversación conecta ciencia y comunidad de una manera que hace que la investigación compleja sea accesible y relevante para todos los oyentes. Un episodio imprescindible para quienes están interesados en avances médicos, equidad en salud comunitaria o historias inspiradoras de latinos haciendo un impacto significativo en la ciencia médica.
Noriela Elia, Broad Institute, Count Me In, Investigación del Cáncer, Investigación con Pacientes, Latinos en Ciencia, Diversidad en Investigación Médica, Innovación Médica Boston, Participación en Salud Comunitaria, Representación en Estudios del Cáncer, Investigación Genómica, Inclusión Científica, Investigación de Equidad en Salud, Científicos Latinos en Boston, Participación en Investigación Médica, Medicina de Precisión, Muestras de Pacientes Diversos, Investigación de Salud Latina, Investigación Basada en la Comunidad, Compartir Datos de Pacientes
Esta asociación única entre pacientes e investigadores está generando descubrimientos sin precedentes al recopilar datos cruciales que los métodos tradicionales suelen pasar por alto. Descubre cómo "Count Me In" (https://www.broadinstitute.org/count-me-in) está trabajando activamente para abordar las disparidades históricas en la investigación médica, especialmente para las comunidades latinas y otros grupos subrepresentados.
La pasión de Noriela por asegurar la participación diversa en estudios críticos brilla mientras explica por qué la representación es fundamental para desarrollar tratamientos efectivos que beneficien a todos. Aprende sobre las formas sencillas en que cualquier persona afectada por el cáncer puede contribuir a investigaciones revolucionarias desde su hogar, potencialmente ayudando a miles de futuros pacientes. Esta conversación conecta ciencia y comunidad de una manera que hace que la investigación compleja sea accesible y relevante para todos los oyentes. Un episodio imprescindible para quienes están interesados en avances médicos, equidad en salud comunitaria o historias inspiradoras de latinos haciendo un impacto significativo en la ciencia médica.
Noriela Elia, Broad Institute, Count Me In, Investigación del Cáncer, Investigación con Pacientes, Latinos en Ciencia, Diversidad en Investigación Médica, Innovación Médica Boston, Participación en Salud Comunitaria, Representación en Estudios del Cáncer, Investigación Genómica, Inclusión Científica, Investigación de Equidad en Salud, Científicos Latinos en Boston, Participación en Investigación Médica, Medicina de Precisión, Muestras de Pacientes Diversos, Investigación de Salud Latina, Investigación Basada en la Comunidad, Compartir Datos de Pacientes
Mark as Played
Transcript
Episode Transcript
Available transcripts are automatically generated. Complete accuracy is not guaranteed.
Speaker 1 (00:00):
Buenos Dias, Boston, Esta Domingo, tbejaac calorcitotamos, cone frie o,
caia antesake these fruits, al la cage AGAs her cicio, perness,
paquestamos les massi storias, then Estra Communida mark cursos in Maskenada,
(00:20):
Una spiracion total pro conoscan amiga Noriela Eliya, ken starts
super in bolocrad and look vercon investigation, the salude in
investigation as Americas Aga, nos quente, satamente, kelo, esta seno
e comesta juando and Maestra communda Latina in Boston, Menida,
(00:43):
nor Elia.
Speaker 2 (00:44):
Which is grassies, cavit, the hermes, the plat loke, the sports,
pasio lokeso and investigation quenta medles so your yeah, the Mexico.
Speaker 3 (01:03):
So the Northes.
Speaker 1 (01:06):
Is bam tan patrio that the Mexico Okay, se quanto
jo ki is the.
Speaker 2 (01:24):
Mill y yaqui ya stays too.
Speaker 1 (01:32):
Yes, it's to the stand on the stube and bonker Hill. Okay,
it's stay jo Then bachelor huh see then going bachelor
and marketing, Okay, Mexico it was to a q yeah, yeah,
(01:53):
reports it was yesty Maravios, the Boston Boys.
Speaker 3 (02:00):
Megugusta, much.
Speaker 1 (02:06):
Historia, Scolas mexican A, Mexicanos and inner German Musilado in
nostrospaces the Nemos muche estoria yeah.
Speaker 4 (02:22):
Ja the step is in nostern Rico and cultura.
Speaker 1 (02:28):
Ato yeah solos two bib and and Boston.
Speaker 2 (02:35):
See this is yes, okay, Magusta and Mexico is standrico
and architect to ura and just cause us it was
on DNA, so yes, it's okay.
Speaker 1 (02:46):
I mean emails perfect Jasa Boston and on the establish
you a stablesco and the Cambridge Square actually no, is
it main like culture Tennis, dolas, macs Unversity that does
(03:06):
allowed the Harvard University, the m T like paralos and
cos and you cannest as you are. The Cambridge is
algo super poor, came tennis aloss to the Antes tennis
much as as Pharmacetica Center, the novaci on Tnas laboratorious
tennis hen Tekey is super intelligent, mental to a.
Speaker 4 (03:29):
Party, the Porte.
Speaker 1 (03:34):
Los Key post understand and in Partidos and Juana football.
Speaker 4 (03:42):
Is the console only former prefer Charlie is a d
You know this is.
Speaker 3 (03:53):
To say t N and you don't be inable look.
Speaker 1 (03:56):
You come off with near the Mexico can be still
burgets nor tan cercaultural inso Bernanda did.
Speaker 2 (04:10):
The masiado the mass different is formaspensari the different parame
and shock I don't know and malo al and el.
Speaker 1 (04:24):
Is the.
Speaker 2 (04:26):
Louis the lost much other personas personas persona historia. Yes
they like in the so yes, it's comsstadus in former
relation in formas ing.
Speaker 4 (04:41):
Culos so yes.
Speaker 1 (04:45):
The most formal relation so vinculas the main contact to
his story, the coma at all stas siendo and Departamento
Investigation quanta sendo.
Speaker 2 (04:56):
Aura aurita when not res toy travajando, Elbro Institute partner
con m T and Harvard the Sona Institutions, so the
investigation and as different not in a differentest project to
cit in a different dramas your testy and project.
Speaker 3 (05:19):
Count me.
Speaker 4 (05:21):
Car significa county and count me in.
Speaker 2 (05:25):
Count me in ason project to investigation Basado and relation
partnerships caned los Mith, Most Pacientes er miss Paciente SLK,
the participar quanto quan com party experiences kars is the
elk SLK quanto.
Speaker 1 (05:47):
Paciente thedades or the tamientos.
Speaker 2 (05:53):
Is the looks the conman s invocado and cancer okay
concertmo those participants on the cancer, the qualitre cancer see
the cancer po tambien the most different projects. The differentis
the cancer vermenton cancerrados aria coma soma is on cancer,
(06:21):
uh is pediatrical effects see there is matriste is murismo on.
Speaker 3 (06:36):
Cancer. Your party is the cancer so lament effect infanti.
Speaker 4 (06:43):
Qual care demographico CD and is that the.
Speaker 1 (06:51):
Color or bilga sona geographica qualquierra.
Speaker 3 (06:58):
Pedro Clark.
Speaker 2 (07:03):
And focando es k participants spanos since cleban and you
know so lameter suppose the cancers you know and care
cancer industrians look here on different different theos affect and
different the.
Speaker 3 (07:25):
Different.
Speaker 2 (07:26):
It was a personasport presenters na yahmos.
Speaker 1 (07:32):
Provados claro equans start organization coming and cost projecto zoom
projecto l paciente no zoom project and I know pecon
lament zoo projecto specific parapacientes e commodical control compart.
Speaker 4 (08:00):
To specifictas a cen do can't count me and.
Speaker 2 (08:04):
Can't count me okay us too sake they count me
in and I don't think boy, special man organizations, spanos, Latinos, com.
Speaker 1 (08:24):
A lot.
Speaker 2 (08:27):
O s callativa or in las various lukas and.
Speaker 3 (08:38):
Sat todos.
Speaker 2 (08:40):
Lok locas dific participation in an investigation special Man, the poor.
Speaker 3 (08:47):
I felt the confidence.
Speaker 1 (08:48):
Claros to information on eami too that its familiar guando
cancers or to Latinos and the most cultural mente on
tabu and the the ocurres compart and fermo porke or
(09:09):
no curses to the no curres dam and the.
Speaker 4 (09:14):
Pasana poor momentary.
Speaker 1 (09:18):
Equan lat and on the poetes balls privac yells information necessary,
pro endotos recursos or asta la solution no the vermeidades
(09:40):
ma joseo quando count me and commence comments m bosom standing.
Speaker 3 (09:46):
No no no count me a soon project and persons milking.
Speaker 2 (09:52):
And coma Okay, it's the I movie most outrus projects
and cancer, the Mama metastastico real cancer, the prostata bring
two more a through us cancers, case on and coma.
Speaker 4 (10:14):
In there in the.
Speaker 1 (10:16):
Quanta processor hemplo, como, como participants, personal casta pass and
not the school cancer and the casvi mentes pediatric participants
(10:36):
or comas candida participants.
Speaker 4 (10:41):
Programers now call care.
Speaker 2 (10:43):
Persona diagnosticata co cancer and n and personamento persona importa.
So I mean care participant is visitestro city webcase join
me in conto I s the stantto los pasos s
(11:04):
been seen place la concentimento contests questionnarios then el pacente
contestadic pacento, the c the security that contentmento or the
sposal consentimento the contests formularios, celebrita, kenos provia mostras.
Speaker 1 (11:25):
But milo used in basi le symbasio, No, no, it's not.
In basibo le persona, most.
Speaker 2 (11:42):
Kid and personas sang the most total possibly persona is
the whether that is a most basivo seeing scenes creates
the album contract.
Speaker 1 (11:58):
Can start the transt just in best so some medicos
and on lauratorio ne vers that can start trans pests.
Speaker 2 (12:08):
Losatos is the coloss pro sevan rtos, portales investication, the
big gap and cia portal. The los tatos prob los pasies.
So the identificados stall in the number and that not
in adas implemented, So sonatos standardentificados narisa so narises and
(12:34):
is a part.
Speaker 3 (12:35):
The center is SABA.
Speaker 2 (12:41):
Insticators, then of the s I investication Schumo employ terminum
in place.
Speaker 1 (12:51):
Yeah boss can probabi statistical I m P tomando. The
couerdo a loos locos la meta is squalen contra cee
la metta is the mass participations on lyvestigation, the the
(13:13):
dolls p contry, mass participants in hors chances sokay, scubran minentos,
pesta ciendo and coming in see CNN and alien kireen
(13:33):
saver mass is importante. Yesmassto's programs per quantas based non
semos and contrado and most pestar or como podkiri or
as mental nostro square post medicamente you know se comfia
(13:56):
and los medicos met and lost expertos see embargo tambi
tro poemos a u are al prohimo participant a liaanse,
the fermedades and contralaura norrielas exceptional cantela communida, DNA and
(14:21):
luga and the impactar to comentastro center in novacion como
elenova medica mene lenoir contolo loc contamos especial Men in
Boston is a Latin TNX jos mara joke, repeated traves
(14:43):
and pomos and contral information com and participant and lost programs.
Speaker 2 (14:48):
Okay is intro website is joined count me in punto
se alguna personal contact personal mente me email is a
l A e a Roba broad Institute punto.
Speaker 1 (15:08):
Yellow sem contact and Norriela Amasa kinformanoles mosque and Toolo
success Recursos comunidore it Boston Albion Connectors and Consoltros bajando
l I heard app press Electionnando kept us a Boston
commos podcast proximal Mingo which is as grasses consult no
(15:31):
reela jaquentas control and comparatist information
Speaker 2 (15:36):
Which is grasses mules purdose that T was passio, which
is grassiest
Buenos Dias, Boston, Esta Domingo, tbejaac calorcitotamos, cone frie o,
caia antesake these fruits, al la cage AGAs her cicio, perness,
paquestamos les massi storias, then Estra Communida mark cursos in Maskenada,
(00:20):
Una spiracion total pro conoscan amiga Noriela Eliya, ken starts
super in bolocrad and look vercon investigation, the salude in
investigation as Americas Aga, nos quente, satamente, kelo, esta seno
e comesta juando and Maestra communda Latina in Boston, Menida,
(00:43):
nor Elia.
Speaker 2 (00:44):
Which is grassies, cavit, the hermes, the plat loke, the sports,
pasio lokeso and investigation quenta medles so your yeah, the Mexico.
Speaker 3 (01:03):
So the Northes.
Speaker 1 (01:06):
Is bam tan patrio that the Mexico Okay, se quanto
jo ki is the.
Speaker 2 (01:24):
Mill y yaqui ya stays too.
Speaker 1 (01:32):
Yes, it's to the stand on the stube and bonker Hill. Okay,
it's stay jo Then bachelor huh see then going bachelor
and marketing, Okay, Mexico it was to a q yeah, yeah,
(01:53):
reports it was yesty Maravios, the Boston Boys.
Speaker 3 (02:00):
Megugusta, much.
Speaker 1 (02:06):
Historia, Scolas mexican A, Mexicanos and inner German Musilado in
nostrospaces the Nemos muche estoria yeah.
Speaker 4 (02:22):
Ja the step is in nostern Rico and cultura.
Speaker 1 (02:28):
Ato yeah solos two bib and and Boston.
Speaker 2 (02:35):
See this is yes, okay, Magusta and Mexico is standrico
and architect to ura and just cause us it was
on DNA, so yes, it's okay.
Speaker 1 (02:46):
I mean emails perfect Jasa Boston and on the establish
you a stablesco and the Cambridge Square actually no, is
it main like culture Tennis, dolas, macs Unversity that does
(03:06):
allowed the Harvard University, the m T like paralos and
cos and you cannest as you are. The Cambridge is
algo super poor, came tennis aloss to the Antes tennis
much as as Pharmacetica Center, the novaci on Tnas laboratorious
tennis hen Tekey is super intelligent, mental to a.
Speaker 4 (03:29):
Party, the Porte.
Speaker 1 (03:34):
Los Key post understand and in Partidos and Juana football.
Speaker 4 (03:42):
Is the console only former prefer Charlie is a d
You know this is.
Speaker 3 (03:53):
To say t N and you don't be inable look.
Speaker 1 (03:56):
You come off with near the Mexico can be still
burgets nor tan cercaultural inso Bernanda did.
Speaker 2 (04:10):
The masiado the mass different is formaspensari the different parame
and shock I don't know and malo al and el.
Speaker 1 (04:24):
Is the.
Speaker 2 (04:26):
Louis the lost much other personas personas persona historia. Yes
they like in the so yes, it's comsstadus in former
relation in formas ing.
Speaker 4 (04:41):
Culos so yes.
Speaker 1 (04:45):
The most formal relation so vinculas the main contact to
his story, the coma at all stas siendo and Departamento
Investigation quanta sendo.
Speaker 2 (04:56):
Aura aurita when not res toy travajando, Elbro Institute partner
con m T and Harvard the Sona Institutions, so the
investigation and as different not in a differentest project to
cit in a different dramas your testy and project.
Speaker 3 (05:19):
Count me.
Speaker 4 (05:21):
Car significa county and count me in.
Speaker 2 (05:25):
Count me in ason project to investigation Basado and relation
partnerships caned los Mith, Most Pacientes er miss Paciente SLK,
the participar quanto quan com party experiences kars is the
elk SLK quanto.
Speaker 1 (05:47):
Paciente thedades or the tamientos.
Speaker 2 (05:53):
Is the looks the conman s invocado and cancer okay
concertmo those participants on the cancer, the qualitre cancer see
the cancer po tambien the most different projects. The differentis
the cancer vermenton cancerrados aria coma soma is on cancer,
(06:21):
uh is pediatrical effects see there is matriste is murismo on.
Speaker 3 (06:36):
Cancer. Your party is the cancer so lament effect infanti.
Speaker 4 (06:43):
Qual care demographico CD and is that the.
Speaker 1 (06:51):
Color or bilga sona geographica qualquierra.
Speaker 3 (06:58):
Pedro Clark.
Speaker 2 (07:03):
And focando es k participants spanos since cleban and you
know so lameter suppose the cancers you know and care
cancer industrians look here on different different theos affect and
different the.
Speaker 3 (07:25):
Different.
Speaker 2 (07:26):
It was a personasport presenters na yahmos.
Speaker 1 (07:32):
Provados claro equans start organization coming and cost projecto zoom
projecto l paciente no zoom project and I know pecon
lament zoo projecto specific parapacientes e commodical control compart.
Speaker 4 (08:00):
To specifictas a cen do can't count me and.
Speaker 2 (08:04):
Can't count me okay us too sake they count me
in and I don't think boy, special man organizations, spanos, Latinos, com.
Speaker 1 (08:24):
A lot.
Speaker 2 (08:27):
O s callativa or in las various lukas and.
Speaker 3 (08:38):
Sat todos.
Speaker 2 (08:40):
Lok locas dific participation in an investigation special Man, the poor.
Speaker 3 (08:47):
I felt the confidence.
Speaker 1 (08:48):
Claros to information on eami too that its familiar guando
cancers or to Latinos and the most cultural mente on
tabu and the the ocurres compart and fermo porke or
(09:09):
no curses to the no curres dam and the.
Speaker 4 (09:14):
Pasana poor momentary.
Speaker 1 (09:18):
Equan lat and on the poetes balls privac yells information necessary,
pro endotos recursos or asta la solution no the vermeidades
(09:40):
ma joseo quando count me and commence comments m bosom standing.
Speaker 3 (09:46):
No no no count me a soon project and persons milking.
Speaker 2 (09:52):
And coma Okay, it's the I movie most outrus projects
and cancer, the Mama metastastico real cancer, the prostata bring
two more a through us cancers, case on and coma.
Speaker 4 (10:14):
In there in the.
Speaker 1 (10:16):
Quanta processor hemplo, como, como participants, personal casta pass and
not the school cancer and the casvi mentes pediatric participants
(10:36):
or comas candida participants.
Speaker 4 (10:41):
Programers now call care.
Speaker 2 (10:43):
Persona diagnosticata co cancer and n and personamento persona importa.
So I mean care participant is visitestro city webcase join
me in conto I s the stantto los pasos s
(11:04):
been seen place la concentimento contests questionnarios then el pacente
contestadic pacento, the c the security that contentmento or the
sposal consentimento the contests formularios, celebrita, kenos provia mostras.
Speaker 1 (11:25):
But milo used in basi le symbasio, No, no, it's not.
In basibo le persona, most.
Speaker 2 (11:42):
Kid and personas sang the most total possibly persona is
the whether that is a most basivo seeing scenes creates
the album contract.
Speaker 1 (11:58):
Can start the transt just in best so some medicos
and on lauratorio ne vers that can start trans pests.
Speaker 2 (12:08):
Losatos is the coloss pro sevan rtos, portales investication, the
big gap and cia portal. The los tatos prob los pasies.
So the identificados stall in the number and that not
in adas implemented, So sonatos standardentificados narisa so narises and
(12:34):
is a part.
Speaker 3 (12:35):
The center is SABA.
Speaker 2 (12:41):
Insticators, then of the s I investication Schumo employ terminum
in place.
Speaker 1 (12:51):
Yeah boss can probabi statistical I m P tomando. The
couerdo a loos locos la meta is squalen contra cee
la metta is the mass participations on lyvestigation, the the
(13:13):
dolls p contry, mass participants in hors chances sokay, scubran minentos,
pesta ciendo and coming in see CNN and alien kireen
(13:33):
saver mass is importante. Yesmassto's programs per quantas based non
semos and contrado and most pestar or como podkiri or
as mental nostro square post medicamente you know se comfia
(13:56):
and los medicos met and lost expertos see embargo tambi
tro poemos a u are al prohimo participant a liaanse,
the fermedades and contralaura norrielas exceptional cantela communida, DNA and
(14:21):
luga and the impactar to comentastro center in novacion como
elenova medica mene lenoir contolo loc contamos especial Men in
Boston is a Latin TNX jos mara joke, repeated traves
(14:43):
and pomos and contral information com and participant and lost programs.
Speaker 2 (14:48):
Okay is intro website is joined count me in punto
se alguna personal contact personal mente me email is a
l A e a Roba broad Institute punto.
Speaker 1 (15:08):
Yellow sem contact and Norriela Amasa kinformanoles mosque and Toolo
success Recursos comunidore it Boston Albion Connectors and Consoltros bajando
l I heard app press Electionnando kept us a Boston
commos podcast proximal Mingo which is as grasses consult no
(15:31):
reela jaquentas control and comparatist information
Speaker 2 (15:36):
Which is grasses mules purdose that T was passio, which
is grassiest
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