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December 17, 2024 33 mins
In the first hour of today's edition of Ryan Schuiling Live, Ryan looks at the famous Duke rape accuser admitting her accusations were falseified, and George Stephanopoulos's embarrassing legal settlement steming from his treatment of rape survivor Rep. Nancy Mace.

Then, Lori Wise joins Ryan to discuss the importance of family conversations about health during the holidays.

Lori was diagnosed with Fabry disease at age 14 and considers herself fortunate. Many people with this condition suffer for decades before being diagnosed. Lori credits her early diagnosis and ability to manage her symptoms to open conversations with family members about their shared health history. She hopes to inspire other families to have similar conversations.

Finally, Ryan closes the hour with more Deep Thoughts with Kamala Harris.
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Transcript

Episode Transcript

Available transcripts are automatically generated. Complete accuracy is not guaranteed.
Speaker 1 (00:00):
Yeah, we're a Colorado Now, this is a live look.
Now the sun is up there in that state, and
police have now detained fourteen people and reported armed home invasion.
That's the same apartment complex where a lot of people
were complaining about the armed in Venezuelan gang members roaming
the halls. Reports indicate that investigators said that several suspects
entered the apartment and had two people inside. The suspects

(00:23):
that reportedly moved the victims to another apartment complex, rather
another unit on the property where police said they were
found threatened and bound. An adult man sustained a non
life threatening stab wound.

Speaker 2 (00:38):
At the moment, police say it's unclear of.

Speaker 1 (00:40):
The suspects are connected to connected rather to the Venezuelan
game trendy of Arragua.

Speaker 2 (00:45):
But we'll get a live report in Colorado thirty minutes.

Speaker 1 (00:47):
Away and bring you the latest on that developing story.

Speaker 3 (00:50):
Bill Hemmer, Fox News, Ryan schruleing live with you here
in our number one and this first segment.

Speaker 2 (00:57):
Is going to be dedicated to the inn.

Speaker 3 (01:00):
Me have a fake news story, now that's real news,
that's actually happening in Aurora.

Speaker 2 (01:06):
But his nine News.

Speaker 3 (01:07):
Kyle Clark comrade, Kyle, Jared Polis, Mike Johnston, even Mike Kaufman,
a mayor of Aurora. What have you believe that's been
trumped up? That's not just a figmentute, it's a feature,
not a bug of Danielle Jirinsky's imagination. Aurora City councilwoman,
it's the Aurora conservatives on the city council, don't you

(01:28):
know that are amplifying this story and exaggerating it. According
to Kyle Clark, I got to do a Twitter slash
ex war with him, but he asked me to produce receipts.
It's hard to disprove a negative. He either wouldn't cover
the story, or if he did, he would soft pedal it,
serve it up short, and attribute it to conservatives. Republicans

(01:51):
like John Fabrigatory pouncing on the story.

Speaker 2 (01:54):
It really wasn't that big of a deal.

Speaker 3 (01:56):
It's the product of xenophobic feeling and sentiment from the
right against Venezuelan immigrants.

Speaker 2 (02:03):
Let me make one thing absolutely clear.

Speaker 3 (02:06):
If a Venezuelan immigrant is here in this country legally
wanting to escape communism, goes through the proper channels, wants
to contribute to American society and work hard. I want
that person here, no hesitation, full stop. But the ones
who are coming here illegally in many cases, are coming

(02:29):
here illegally for a reason, because there's no way in
hell they get through legally. Thus, the members of trendy
Aragua who have taken over the apartment complex that one
Cindy Romero once lived in and that she and her
husband had to escape, and she and her husband ed
were two of the last to leave that complex that

(02:52):
was then run rough shot over by members of the
Venezuelan gang Trendy Aragua here illegally.

Speaker 2 (02:58):
And now we're hearing almost in a day le.

Speaker 3 (03:00):
Basis violence, erupting, drive by shooting, shootouts, and then today
what you just heard on Fox News, people being bound
and held at gunpoint then released.

Speaker 2 (03:13):
I wonder who that could be. Well, it's not happening,
or if it is happening, it's being exaggerated.

Speaker 3 (03:19):
We'll see if nine News covers this, We'll see if
Kyle Clark says anything about it. My bet is no,
because there's no way to cover it without admitting they
were wrong. They were wrong not to cover it. They
were wrong. Kyle Clark was wrong to ignore a direct
email and plea and attached video from Sidney Ramero that
ended up being on the Doctor Phil Show that is

(03:40):
still circulating not just nationally internationally as the very Eyes
and Ears basis supporting the assertion that yes, there are
gang members with automatic weapons invading apartments and homes and
ruling the roost. We break down another fake news store.
I've been kind of marinating on this one for a

(04:02):
couple of days, but I just want to illustrate how
this all plays out in real time. First, the look
back by Brian Stelter of CNN on the lawsuit by
Donald Trump against ABC that was settled for fifteen million
dollars a donation to his presidential library, which I find
to be quite hilarious.

Speaker 2 (04:23):
Why did ABC settle?

Speaker 3 (04:26):
Why didn't ABC stand by their man, George Stephanopolis and
his intrepid reporting and his journalistic integrity and say no,
not today, Donald Trump, you will not bring us down
with your threats of lawsuits.

Speaker 2 (04:40):
They caved. Why did they cave?

Speaker 4 (04:43):
Trump has a long history of filing lawsuits, including against
news outlets. Most of the time those cases get thrown out.
Judges see right through those frivolous cases and throw them out.

Speaker 5 (04:55):
Trump right now has a.

Speaker 4 (04:56):
Litigation depending against CBS, for example, over a sixteen minute
interview of Kamala Harris.

Speaker 2 (05:01):
So these cases oftentimes.

Speaker 4 (05:03):
Do not work out for Trump, but this ABC case
is a major victory. I talked to renowned First Amendment
lawyer Floyd Abrams last night. He said, Look, there's no
way to say other than this is a big win
for Trump. It's going to embolden him to file more
of these suits. But as Abram said, he called it
disturbing that this could turn fifteen million dollars could be

(05:24):
paid around the use of the word rape versus sexual
abuse in that interview on ABC's This Week.

Speaker 3 (05:32):
He's trying to say rape versus sexual abuse is a
distinction without a difference. It most certainly is not the
Big Potato, not known for his own journalistic integrity. If
this was such a frivolous lawsuit, Brian, then why did
ABC settle? Look?

Speaker 4 (05:45):
Stephanopolis has been a Trump target for a long time,
so he was very aggressive in this interview that aired
in March. Yeah, so Trump decided a file suit about
a week later, and a judge did not throw it out.
A judge let it go forward. Through the discovery process. Yeah,
it's possible that ABC decided to settle this Jim because
there might have been embarrassing emails or text messages on
ABC's servers, right that we're going to become public. Welly,

(06:08):
everybody remembers that's what happened to Fox News when.

Speaker 5 (06:10):
Dominion sued Fox.

Speaker 4 (06:11):
So this might have been a case where ABC is
avoiding public embarrassment by paying fifteen million dollars. But look,
there's a lot of people to say that payment is
embarrassing as well.

Speaker 2 (06:22):
So this is not the end of the story.

Speaker 3 (06:23):
It is because of George Stefanopolos and his staff and
his producers did nothing wrong. Then what would they have
to risk by going to discovery and having those emails
and text messages revealed.

Speaker 2 (06:33):
Well, let's go to the tape as we know it.

Speaker 3 (06:34):
To be, and that's George Stefanopoulos sitting down with Representative
Nancy Mayce, herself a victim of rape. And this is
just a disgusting display of journalistic in quotes bullying by Stephanopoulos.
Nancy Mace doesn't blink and she doesn't back down, and you.

Speaker 6 (06:49):
Even gores Donald Trump for president by judges and two
separate juries have found him liable for rape and for
defaming the victim of that rate long, how do you
score your endorsement of Donald Trump the testimony.

Speaker 7 (07:00):
We just saw, Well, I will tell you I was
raped at the age of sixteen, and any rape que
will tell you I've lived for thirty years with an
incredible amount of shame over being raped. I and come
forward because of that judgment and shame that I felt.
And it's a shame that you will never feel, George.
And I'm not going to sit here on your show

(07:22):
and be asked a question meant to shame me about
another potential rape victim.

Speaker 8 (07:27):
I'm I'm not going to do that.

Speaker 5 (07:28):
It's actually not about shaming you.

Speaker 8 (07:29):
It's a question about No, you are shaming you.

Speaker 2 (07:31):
She's right, He's wrong.

Speaker 3 (07:33):
He says rape at least twice in that exchange in
forty two seconds.

Speaker 2 (07:38):
That's not what the finding was by the jury. It
was for some kind.

Speaker 3 (07:42):
Of alleged sexual abuse that took place in a changing room,
which a none of it makes sense logistically, and Trump
has explained it and defended himself as to why. But
Stephanopoulis continues, and he continues to purposefully use the word rape,
which was not the finding of the jury. This was
a civil case, not a criminal one. Donald Trump was

(08:05):
not convicted of the crime of rape.

Speaker 6 (08:08):
We've endorsed Donald Trump for present. Donald Trump has been
found liable for rape by a jury.

Speaker 2 (08:13):
Correct.

Speaker 6 (08:14):
Donald Trump has been found liable for defaming the victim
of that rape by a jury.

Speaker 5 (08:19):
It's been affirmed by a judge.

Speaker 9 (08:20):
It was not a criminal court case. Number one, number
two correct. I live with shame, and you're asking me
a question about my political choices, trying to shame me
as a rape victim, and I find it disgusting and
quite frankly Eging Carroll's comments when she did get the judgment,
joking about what she was going to buy, it doesn't

(08:40):
it makes it harder for women to come forward when
they make a mockery out of rape, when they joke
about it.

Speaker 3 (08:46):
Let's go back in time, shall we. I have the
receipts I always do. I have an audio archives here
that I've assembled since twenty eighteen. We go back to
June twenty nineteen. Egen Carroll, allegedly a rape victim, sitting
down with Anderson Cooper and CNN. Rape is terrible it's awful,
it's disgusting, it's a nightmare. It's a horror for any

(09:06):
woman who has to endure it.

Speaker 2 (09:08):
Name me any woman.

Speaker 3 (09:09):
Who's been the victim of that crime, who is as
cavalier about it in its description an odd as Egene Carrol.

Speaker 2 (09:17):
Every person's different.

Speaker 3 (09:18):
I get that, But to make light of it, to
try to soft serve it, here to Anderson Cooper and
define rape as being sexy? What in the actual hell, people,
you don't feel like a victim.

Speaker 10 (09:30):
I was not thrown on the ground and ravish, which
the word rape carries so many sexual connotations.

Speaker 8 (09:36):
This was not, This was not sexual.

Speaker 10 (09:40):
It just it hurt, It just it just you know what,
I think most.

Speaker 8 (09:44):
People think of rape, and as I mean, it is
a violent assault.

Speaker 2 (09:48):
It is not.

Speaker 10 (09:48):
I think most people think of rape as being sexy.

Speaker 8 (09:53):
Think of the fantasies.

Speaker 2 (09:56):
We're just going to take a quick bravery.

Speaker 8 (09:58):
If you can stickground, we'll talk mort the other side.
You're fascinating to talk to.

Speaker 3 (10:03):
Is that something a victim of rape would say, any
victim of rape would say, A normal victim of any
victim normally abnormal? I don't think so. Then flashback. Here's
January twenty twelve. I found the Law and Order SVU episode.
The details of the rape described by Kevin Pollack here
identical to what Ejen Carroll put together in her story

(10:25):
so many years later. She doesn't remember what year.

Speaker 2 (10:27):
It happened in a public.

Speaker 11 (10:30):
Place, Yes, there was one, a bit plain and it
was not her fantasy. It was mine, okay, world place
took place in the dressing room of Burgdors while she

(10:50):
was trying on lingerie.

Speaker 2 (10:51):
I would burst.

Speaker 11 (10:52):
Into bull.

Speaker 12 (11:03):
When did you and she.

Speaker 8 (11:05):
Have your day six weeks ago?

Speaker 2 (11:08):
Maybe dressing room of a bergdarf Goodman.

Speaker 3 (11:11):
That's exactly what she described to the letter of the
law in the store there also uses the word fantasy
what she used in that conversation with Anderson Cooper and
then to me, this is the Koudei gra. After the settlement,
the money judgment is awarded. The verdict announced in the
civil case Donald Trump liable for so called sexual abuse,
A big dollar amount awarded to Eging Carroll. I might

(11:33):
note Donald Trump still hasn't paid a dime. I hope
he doesn't. I hope he never does. January twenty twenty four,
Rachel Maddow asking Ejen Carroll, how she was going to
use this money for the forces of good.

Speaker 13 (11:44):
You've talked about using some of Trump's money that you're
about to get to help shore up women's rights. Do
you know what that might be, what that might look like?

Speaker 8 (11:54):
Rachel?

Speaker 10 (11:55):
Yes, tell me I had gotch great ideas for all
the good I'm gonna do with this money.

Speaker 8 (12:03):
First thing, Rachel, you and I aren.

Speaker 10 (12:05):
Go shopping for to get completely new wardrobes, new shoes,
motorcycle for Crowling, new fishing rod for Robbie.

Speaker 8 (12:14):
Rachel, what do you want? Penthouse?

Speaker 2 (12:17):
Rachel?

Speaker 8 (12:17):
Penthouse? Pant France? You want France?

Speaker 10 (12:21):
You want to go fishing in France.

Speaker 9 (12:22):
No, that's a joke.

Speaker 13 (12:29):
Although if if me fishing in France could do something
for women's rights, I would take the heads, you know, obviously,
take one for the team.

Speaker 2 (12:38):
Nice.

Speaker 3 (12:38):
Try to salvage it, Rachel, But there was no salvaging that.
No victim of rape is going to talk about a
chateau in France, a penthouse, new fishing equipment for her attorney.
That's where her head goes. Okay, that's the backdrop. We
continue now, Nancy Mace going toe to toe with George Stephanopolis.

Speaker 5 (12:56):
Doesn't make harder, so I'm going to come forward with me.

Speaker 9 (12:58):
It makes harder when other wins men joke about it
and she's choked about it. I find it offensive, and
I also find it offensive that you're trying to shame me.

Speaker 2 (13:05):
With this question.

Speaker 5 (13:06):
I'm not trying to shame you are.

Speaker 2 (13:07):
In fact, I had dealt with.

Speaker 8 (13:08):
This for thirty years.

Speaker 9 (13:09):
You know how heart it was to tell my story
five years ago when they were doing a fetal heartbeat
bill and there were no exceptions for rape, incest and
rape or incest in there. I had to tell my
story because no other woman was coming to for no
rape victims were represented.

Speaker 8 (13:23):
And you're trying to shame me this morning.

Speaker 9 (13:24):
I'm just I find it offensive, and this is why
women won't come forward.

Speaker 6 (13:28):
Women won't come forward because they're defamed by those who
perpetrate rape.

Speaker 9 (13:31):
Donald they are judged and they're shamed, and you're trying
to shame me this morning.

Speaker 5 (13:35):
I think it's disposed.

Speaker 8 (13:36):
I told my story.

Speaker 9 (13:37):
Took me twenty five years to tell my story I
was judged for I still get judged for it today.

Speaker 3 (13:41):
Asking you a very simple question, and again go back
to the contrast between and Nancy Mace very reluctantly came
forward and told her story about being rape because she
felt strongly about there being exceptions to an abortion bill.
She didn't champion it, she didn't use it as some
kind of badge of honor or something to collect money
for war or celebrating whatever money damages she might be

(14:02):
awarded for it. She was truly a victim in her case.
And I just don't believe Egene Carroll And another important
note right here from Nancy Mace asking you a very
simple question, and.

Speaker 9 (14:17):
I answered ithing me for my political choice.

Speaker 6 (14:19):
I'm asking you a question about why you endorse someone
who's been found liable for rape.

Speaker 8 (14:24):
You're not a criminal court.

Speaker 5 (14:26):
This was a civil it was a civil war.

Speaker 9 (14:28):
And by the way, she joked about the judgment and
what she was going to do with all that money,
and I find that offensive. I'm asking you, but ask
a rape victim who's been shamed for years now because
of her rape.

Speaker 8 (14:38):
You're trying to shame me again by asking me repeated ques.

Speaker 5 (14:41):
You repeated that again.

Speaker 8 (14:44):
As a woman. I find her I find it offensive.
My political choices.

Speaker 9 (14:48):
I've endorsed the man that I believe is best for
our country.

Speaker 8 (14:51):
It's not Joe Biden. And you looked at the dueling.

Speaker 9 (14:53):
Rallies yesterday in Georgia Lake and Riley's family was with
Donald Trump.

Speaker 8 (14:57):
They weren't with Joe Biden, the same.

Speaker 9 (14:59):
Guy yesterday that apologized for calling her killer and illegal
who wasn't illegal? And here you are trying to shame
a rape victim. I find it disgusting.

Speaker 2 (15:07):
Fact check true.

Speaker 3 (15:08):
Lincoln Riley's family was at a Donald Trump rally because
they felt heard and supported by him. Meanwhile, Joe Biden
apologized to her attacker.

Speaker 2 (15:18):
Yep, that happened during your response to her heckling of you.

Speaker 3 (15:22):
You used the word illegal when talking about the man
who allegedly killed.

Speaker 14 (15:28):
An undocumented person, and I shouldn't have used the legal
as undocumented. And look when I spoke about the difference
between Trump and me, one of the things I talked
about on the border was is the way he talks
about vermin, the way he talks about these people polluting
the blood. I talked about what I'm not going to do,
what I won't do. I'm not going to treat any

(15:49):
of these people with disrespect. Looked to build the country.
The reason our economy is growing. We have to control
the border and more orderly flow. But I don't share
you at all.

Speaker 2 (16:00):
So you regret using that word? Yes, disgusting.

Speaker 3 (16:04):
Jose Obarra, the monster who raped and murdered Lake and Riley,
who attempted to do that. She struggled for seventeen minutes
that nine to one one call. The audio of it
was captured. She fought for her life until the very end. Yes,
Jose Obarra is vermin He does not deserve any kind

(16:25):
of genuflecting about his immigration status from the President of
the United States or anybody else. He is scum, He
is filth. He is a waste of space on this planet.
And if there were justice, he would be receiving a
death penalty. Stephanopoulos put on defense here by Nancy Mays,

(16:45):
going back to that interview.

Speaker 5 (16:46):
I mean, you keep saying I'm shaming you this.

Speaker 8 (16:48):
You are the question it is? It is?

Speaker 6 (16:50):
How is the question asking about a presidential candidate.

Speaker 8 (16:53):
You're asking a rape victim.

Speaker 6 (16:55):
And there's no question about that, and you.

Speaker 8 (16:58):
Can because I'm raped. I think that's just no.

Speaker 6 (17:01):
I'm questioning your political choices because.

Speaker 8 (17:03):
You're sharing me.

Speaker 6 (17:04):
You's someone who's just found liable for fred to Actually,
I'm not trying.

Speaker 12 (17:07):
To you are.

Speaker 8 (17:07):
That's exactly not answering the question. I think it's disgusting.

Speaker 3 (17:10):
It is disgusting. But George Sephanopolis, if you notice, he
is very purposefully saying the word rape, it is incorrect.
That is not what the finding of the civil lawsuit was.
And if you're going to be accurate and be a
reporter like Stephanopoulos pretends to do. Even though he was
a Democratic operative for Bill Clinton in the nineties, he
was part of the Bimbo eruption squad not my term,

(17:32):
along with James Carville, to silence the likes of Paula
Jones and James Carvill's saying you can drag a dollar
bail through a trailer pocket. You don't know what you're
gonna find. You remember this if you experienced the nineteen nineties.
They were there to discredit the women who accused Bill
Clinton of forcing himself on them sexually.

Speaker 2 (17:53):
This absolute hypocrite slug.

Speaker 6 (17:56):
Well, and you're welcome to say that, but you're also
you have to answer the question, ready, someone who's been
found liable for rape.

Speaker 8 (18:01):
I just answered your question.

Speaker 2 (18:03):
What is the answer?

Speaker 8 (18:03):
He was not, He was not.

Speaker 9 (18:05):
Found guilty in a civil and a criminal court of law.

Speaker 8 (18:08):
It was a civil it was sexual abuse.

Speaker 9 (18:10):
It wasn't actually rape, by the way, and Egene Carroll
joked about all the money she's going to get and
made a mockery out of out of this case, and
I think that's offensive.

Speaker 8 (18:19):
There's a reason why women don't come forward.

Speaker 9 (18:22):
And when you have someone who says that they're raping
and they make a mockery out of this civil court judgment,
it's offensive to other women. It makes it harder for
other women to come forward when another woman has made
a mockery.

Speaker 5 (18:33):
You said, women don't come forward because they are afraid.
They are afraid.

Speaker 8 (18:36):
They're just shame you're trying to shame they are.

Speaker 6 (18:40):
They are afraid to come forward, as you said, because
they are defamed by those who commit the rape. That's
what Donald There's been guilty of doing.

Speaker 9 (18:47):
He defended himself over that and denies that it ever happened,
but he was not found guilty in a criminal court
of law.

Speaker 3 (18:54):
Full credit to Nancy Mays for standing her ground on
that issue against those disgusting attacks from George Stephanopoulos, who
was trying to equivocate and saying Hey, look, you're a
rape victim.

Speaker 2 (19:03):
How can you support a convicted rapist? Is what he
was alleging here.

Speaker 3 (19:07):
And if George Stephanopolis was so right journalistically, why didn't
ABC News stand by him? Why did they settle for
the fifteen million dollars? And they knew they were checkmated
on the chess board and they didn't want it to
go to Discovery. And that is the anatomy of a
fake news story, right there.

Speaker 2 (19:26):
A time out.

Speaker 3 (19:26):
When we come back, Kamala Harris goes full Shooter mcgaffn.
You'll hear how after this and Ryan Schuling Life Bursday's
not quite gone yet, but we're gonna get you there
between two and four pm and the Mountain time zone.
If you're listening live, appreciate you tuning in to Ryan

(19:46):
Shuling Live. When I heard Kamala Harris, We've got I
think three other editions of deep thoughts coming from this
conference where she was addressing supporters before the holidays, I
heard her rhyme fight bright with Light, and I immediately
shot back to Happy Gilmore and the scene in the

(20:06):
bar where Shooter McGavin rhymes himself and then Happy Gilmore
fires back at him as you just heard five seven,
seven thirty nine. You can join us by tex at
any point throughout today's program, with that coming up a
little bit later on Kumbe Janayne False Rape Shield, founder
of that organization, to react to the recent news of

(20:29):
the Duke Lacrosse case rape accuser, confessing to making the
entire story up out of whole cloth. Also reflecting upon
the backlash of the hashtag me too movement, I don't
believe all women that almost derailed Britt Kavanaugh his nomination
for Supreme Court of the United States. Basically, his organization
is designed to help protect men against false rape and

(20:51):
sexual assault allegations. Kumbe went through a very similar experience firsthand,
and he'll be joining me live in studio to start
our number two and then coming up in about one hour.
Cindy Romero, of course, she was basically chased, along with
her husband, ed from her Aurora apartment complex, shot the
video from the keyhole cam that eventually went nuclear, not

(21:13):
just viral nationally internationally, landed her a spot on Doctor Phil.

Speaker 2 (21:18):
She's appeared with Me.

Speaker 3 (21:19):
In studio twice talking about what she encountered when the
Venezuelan gang trendy Aragua did take over her apartment complex,
and not just one. She noticed and ed noticed her
husband Venezuelan gang presence in several, maybe up to a
dozen other apartment complexes in Aurora and Lo and behold

(21:39):
the latest violence erupting from a housing unit in that city,
reportedly attributable to trend de Aragua. We'll get Cindy's comments
coming up at the bottom of our number two joining us. Now,
you get together for the holidays, you might compare family trees.
You know, you might designate somebody that's me and my
family as the family historian and you go on to
an set dot com and you trace your family trees

(22:02):
back and a lot of that has a purpose. You
want to know if there's anybody in your family tree
and your ancestry that might have specifical tendencies for diseases.
And when you go through that screening process, it can
do a lot in stealing yourself against such diseases, in
including those that maybe a little bit off the radar.

(22:22):
And that's what we're talking about with our next guest,
Lourie Wise, and she's looking to raise awareness about fabriy
disease during the holidays as you're getting together, this could
be a time for a conversation along those lines, and
early detection, as with the case in many diseases, is
critical to surviving and to treating such a disease. Laurie
herself diagnosed with favory disease at the age of fourteen.

(22:45):
Loriwise joins us on Ryan Schuling Live. Laurie, Welcome to
the show.

Speaker 12 (22:50):
Hi, mister Schulling, thank you so much for having me.

Speaker 3 (22:53):
Well, appreciate your time very much, and I just want
you to walk listeners through because fabory disease, while it's
also rare, it can happen to just about anybody. And
when you first noticed symptoms and put the pieces of
the puzzle.

Speaker 12 (23:04):
Together, yeah, So fabric disease is actually considered a lipid
storage disease. People with fabric are missing key enzyme whose
job is to break down a particular lipid in the body.
And so when that enzyme is not doing its job

(23:25):
or is missing, that same liquid lipid accumulates through the
vascular system and affects the brain, heart, kidneys, and actually
all the organs. So there's no cure for that. There
are working on things, but there is enzyme replacement therapy

(23:45):
that's been out for about just under twenty years, so
that's been a great plus for people with fabric and
has helped immensely. It's easily passed on pretty much. If
you have fabtriy disease, you can pass it on in
fifty to fifty percent of each pregnancy. So once you

(24:09):
diagnose one person in the family, they often come up
with probably a good five that also might have it,
joining us.

Speaker 3 (24:18):
As we mentioned Lori why she does suffer from the
disease and was diagnosed at age fourteen. Now you say
you consider yourself to be fortunate, but as I look
through some of these symptoms, Laurie, it might be difficult
to distinguish it from maybe symptoms of some other kind
of malady, disease, or temporary condition. You mentioned high fevers,
wide range of symptoms that include chronic pain, fatigue, heat intolerance,

(24:42):
hearing loss, progressive organ damage. That's, like I said, a
wide spectrum of symptoms. But what helped narrow it in
your case to fabric disease and how you were able
to identify it or how doctors were.

Speaker 12 (24:55):
The reason I do consider myself fortunate is because my mom,
who had fabric and passed it on to my siblings
and myself. She had a great uncle who just happened
to be in the right place at the right time,
near Mayo clinic, went in with some pretty vague symptoms,

(25:16):
several of which you just mentioned, and they diagnosed him.
So having that background, we just we came to know
who had it and who didn't. In my mom's days,
she just knew that my little brother had fabri there
weren't They weren't really testing for it then as they

(25:39):
are now, but she had just seen the same symptoms
in her brothers and in her family.

Speaker 3 (25:46):
Laurie, when it comes to treatment, what kind of course
of treatment have you endured over these years. Obviously you've
been able to survive it, and that's a tremendous blessing.
But detecting it early, i'm sure is critical to treating
it effectively. So how would you advise people out there
look out for this sort of thing? And, as you said,
there is no cure, but it is treatable and they

(26:07):
are working every day, I would imagine on potential cures
for this, where does it go from there?

Speaker 2 (26:12):
Once diagnosed?

Speaker 12 (26:14):
You're right, the reason it's often well I've been misdiagnosed
till I was almost forty years old. I was treated
for irritablebilel which I don't actually have, migraines, which I
also don't actually have. None of those are due to fabory.
So several medications I've tried over the years have not

(26:38):
worked until finally got the correct diagnosis, you know, one
of the more significant symptoms. Even kidney specialists will will
recommend that several of their nurses, if who have kidney patients,
might just ask the simple question if you're able to sweat.

(27:01):
Most people are able to sweat. Non sweating is actually
a very key thing about fabric patients, and a simple
question can kind of help diagnose somebody early. Otherwise. They're
working on adding it to the newborn screening panel in Colorado.

(27:21):
It's already been included in a couple skates as of now,
and they hope maybe in two to three years it'll
be part of that newborn screening panel because, as you said, Ryan,
once earlier diagnosis is obviously better for everyone involved.

Speaker 3 (27:41):
Fascinating to medicine and the rate at which you can
accelerate once they find kind of a key to unlock
what causes this disease, and we pray and hope for
that day when a cure does come down the line.

Speaker 2 (27:53):
But final word from you.

Speaker 3 (27:54):
Laurie's we approach these holidays and I wish you a
merry Christmas.

Speaker 2 (27:57):
In a happy New Year.

Speaker 3 (27:59):
Is where people can go if they're just hearing about
this for the first time, and you know, they hear
a radio interview, it could fly past them at a
high rate of speed.

Speaker 2 (28:06):
Is there a website they can check out?

Speaker 3 (28:08):
Is there a Facebook page, anything that you would advocate
for people to find out more information.

Speaker 12 (28:13):
Yes, they're actually two wonderful websites. One is f SIG.
It's Fabriary Support and Information Group.

Speaker 3 (28:22):
F s I G.

Speaker 12 (28:25):
I think it's f FIG dot org. And then there's
also n f d F National Foundation or Fabric Disease.
Both of those have lots of information people to contact
to get help in your area. H you know physicians

(28:47):
who are knowledgeable. We're fortunate to have a children's hospital
in our backyard that is very factory familiar. They have
a metabolic clinic there and see lots of patients for
fabri and also University Hospital the adult genetics department is
also very familiar. So we're, like I said, fortunate in

(29:10):
that regard. And I guess that's all I got on that.

Speaker 3 (29:17):
We appreciate that information and your time. And for those
that heard those, various outlets you can check out. I'm
looking at one of them that's National Fabric Disease Foundation
and it's simply online at Fabridisease dot org. Fabry disease
dot Org. Again, you might be hearing about symptoms for
the first time. If it helps just one person out
there kind of put this all together, then we will

(29:39):
have done our job here, and she does their job
on a daily basis and raising awareness and especially during
this holiday season when you're meeting with friends and family
and especially your family members can have these conversations, do
that research and hopefully be able to nip something like
this in the budge. He is Lori Wise. Laurie, thank
you so much for your time today. Have a wonderful
holiday season. We'll talk to you again down the line.

Speaker 12 (30:00):
Thank you, Ryan, Merry Christmas and happy New Year to
you Show.

Speaker 2 (30:03):
Thank you indeed, Merry Christmas, Happy New Year.

Speaker 3 (30:05):
Lorie Wise joining us raising awareness on fabric disease and
one more time that website Fabridisease dot Org for the
National Fabric Disease Foundation. A time out, We're back wrapping
up our number one on this Tuesday edition of Ryan'
Shrewling Live.

Speaker 2 (30:18):
After this and now deep thoughts by Vice President Kamala Harris.

Speaker 15 (30:37):
The true test of our commitment is weather. In the
face of an obstacle, do we throw up our hands
or do we.

Speaker 2 (30:50):
Roll up our.

Speaker 15 (30:55):
And as we approach, and I ask you to remember
the context in which you exist.

Speaker 8 (31:06):
Yeah, I did that.

Speaker 3 (31:16):
Thank you Donald John Trump and all of you who
voted for him out there. This person is not a
serious person, not equipped or ready in any way, shape, man,
or form or regard to be President of the United States,
to be leader of the free world. A case of
the giggles whenever anything gets awkward. This is not the

(31:39):
person you wanted representing the United States of America on
the world stage. And just watch what is happening already.
Donald Trump hasn't even been sworn in yet. All the
big tech CEOs are flying down to mar A Lago
to meet with him because they know the way forward
is through the Orange Man. You saw the ceo stand
up there promising one hundred million dollars in research and

(32:02):
developing new jobs in the United States and Donald Trump
just impromptu it.

Speaker 2 (32:06):
You know what, how about two hundred million? What do
you think can we do it?

Speaker 3 (32:10):
And the guy says he's a master negotiator. You know,
art of the deal right on display there. And it's
not just in the political realm or the financial realm.
It's in the interest of national security and in foreign policy.
And it's Trump's way across the board, and his way works.

(32:30):
It might not be the exact method you're looking for,
but there is a method to the madness that just
seems to come out on the right side of each negotiation.
That he has a time out coming up here in
our number two, we've got a stacked deck for you.

Speaker 2 (32:47):
Koombe j nine joining me.

Speaker 3 (32:49):
He is the founder of False Rape Shield to start
off our number two. And then Cindy Rameri, former Aurora resident,
will get into the reasons why she's a former at
the bottom of the hour. Another violent episode in Aurora yesterday,
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