SpineCare's 40 Voices for 40 Years Podcast To observe World Spinal Cord Injury Day on 5 September 2024, Radio 2SER FM and the SpineCare Foundation launched SpineCare's 40 Voices for 40 Years podcast series. The podcast series is designed as a resource to inform, empower and enlighten families who have found themselves impacted by childhood acquired spinal cord injury or dysfunction. The launch is a way of celebrating the event through 40 voices from the community, insights from young people who have grown up with their spinal cord injury, their parents and caregivers, as well as academics and clinicians working in the field. Along with personal stories there will be tips, shared experiences on school-life, childhood rehabilitation, bowel and bladder management, going on family holidays, and the latest research and innovations on living with spinal cord injury. SpineCare's 40 Voice for 40 years is created in the studios of Radio 2SER FM in partnership with SpineCare Foundation.
In this final episode, we hear two powerful perspectives on life with spinal cord injury: growing up with SCI and parenting through a child’s injury in the teenage years.
Carolyn Emeny, mother and entrepreneur, reflects on her family’s journey after her son sustained a spinal cord injury at 17. She speaks openly about the trauma of those early days, the value of mentoring programs like We Care and the resilience, skills...
In this episode, we continue our deep dive into clinical trials and research that are shaping the future of spinal cord injury rehabilitation. Senior Research Fellow Dr. Claire Boswell-Rice at Neuroscience Research Australia (NeuRA), shares insights from her work on respiratory muscle training, sitting balance and transcutaneous spinal cord stimulation combined with body weight supported treadmill training. Clare discusses Pro...
This impactful episode explores one of the most fundamental aspects of being human—sexuality, relationships and the right to safety and self-expression. Featuring three esteemed and highly experienced guests, the conversation offers vital insights for parents and caregivers of children and young people with spinal cord injury.
First, we’re joined by Amanda and Pat, specialist counsellors from Northcott’s Sexuality...
In this episode, we explore rehabilitation strategies for children with spinal cord injury, featuring insights from two expert guests: Adrian Byak, an expert spinal specialist physiotherapist, and Angela Pulini, a parent whose teenage son has lived with a spinal injury since he was one. This episode offers a unique blend of professional expertise and personal experience, providing valuable perspectives on how to incorporate rehabil...
Tune into this poignant episode where we explore the journey of adolescence with a spinal cord injury, with content relevant to both newly acquired conditions and those experienced since early childhood. Our first guest, highly experienced physical therapist Cathi Duggar, brings nearly two decades of expertise from her work with a specialised adolescent spinal cord team. Cathi highlights the vital roles of healthy competition and p...
Episode description
The future is yours, and in this episode, we dive into the journeys of three young men—Jarrod Emeny, Chad Graham, and Dean Pan who each share their expert tips on igniting their passions and navigating the paths to fulfillment many years following spinal cord injury.
First, we hear from Chad, an adrenaline-seeking elite athlete. He discusses the invaluable support from his parents and the innovative solutions h...
Episode description
Get ready to feel motivated! In this inspiring episode, we dive into the world of recreational and sports activities for children with spinal cord injuries, featuring two dynamic and highly experienced guests: consultant physiotherapist and para-sports classifier Joan Hacken, and sport, recreation, and leisure professional Seb van Veenendaal.
Joan shares her extensive experience in working with young athletes wi...
Episode description:
This is an episode you may wish to share with friends and family, an opportunity to deepen their understanding and compassion regarding the resilience and adjustments necessary when a spinal cord injury impacts childhood and family life. We feature two emotionally intuitive guests who will guide us through the psychological, social, emotional and spiritual aspects of spinal cord injury in children.
First, we he...
Join us for an eye-opening episode as we explore the vital yet less visible topic of bowel and bladder health in children with spinal cord injury. We kick off the conversation with Jodie Thompson, a seasoned clinical nurse consultant with decades of experience in paediatric spinal cord injury care. Jodie shares her expert insights into how spinal cord injuries can impact these critical bodily functions and provides practical strate...
In this episode, we explore the vital topic of pressure injuries, commonly known as skin wounds or pressure ulcers. Joining us are two expert guests: Lis Hunter, a clinical nurse specialist with decades of experience in adult and paediatric spinal cord injury, and Kirsty Kinch, a senior occupational therapist with specialist skills in complex seating and wheeled mobility. Together, they provide an in-depth look at what constitute...
Meet our guests:
Ashlee Morton is a mum to 2 children as well as being a full time wheelchair user. She is passionate about exploring the world and making it easier for others with a disability to do so as well.
Through her work as General Manager at Accessible Accommodation she aims to make the travel sector a more accessible and inclusive place. In her spare time Ashlee plays Para Ice Hockey for the Melbourne Walers and rides a m...
Expand your horizons and ignite your passion for meaningful education and vocation in this insightful episode featuring two seasoned experts.
First, hear from Skye Palethorpe, a Vocational Consultant and Occupational Therapist, as she shares valuable mindsets and strategies for exploring work and study options beyond school. Skye discusses the guiding principles of the In-VOC program at Royal Ryde Rehab, highlighting the research-b...
Join us for an insightful episode dedicated to equipment and home modifications! We’re thrilled to welcome two expert guests. First, specialist occupational therapist Toni Blanche will share key insights on selecting the right equipment and planning home modifications for both immediate needs and future adaptability. Then, young adult Jess Pellow will recount her journey, illustrating how assistive technology and home adaptations s...
Join us for an enlightening episode dedicated to neuromuscular scoliosis, a common challenge arising from childhood spinal cord injury and dysfunction (SCI/D). We’re excited to feature three exceptional guests: athlete and scholar Victoria Simpson, along with her mother Deanne, who will share their personal journey from monitoring Victoria’s spine throughout her growth to selecting the best surgical option during her teenage years....
In this episode, brimming with expert advice and practical guidance on navigating school life, we are joined by two distinguished guests. First up is Hayley Slocombe, an elite para-athlete, University scholar pursuing a Bachelor of Education, and NSW Wheelchair Sports Experience Presenter. Having lived with a spinal cord injury since infancy, Hayley shares invaluable tips, strategies, and a positive mindset to enhance your school e...
Join us for an engaging podcast where we delve into the latest advancements in spinal cord injury (SCI) research, with a special focus on children. In this episode, we are honoured to feature two esteemed experts: Professor Mary Galea, Professorial Fellow in the Department of Medicine at the University of Melbourne and Academic Director of the Australian Rehabilitation Research Centre at the Royal Melbourne Hospital, and Associate ...
Understanding the injury. And ways that parents can help their children understand what happened to them and what can be expected growing up with Spinal Cord Injury.
Guests :
Dr. Mary Clare Waugh - A Child Specialist in Rehabilitation at Westmead Hospital Sydney
Maya Dove - She is a youth case worker and also works as a model
Having had a spinal cord injury since birth, Maya is passionate about spreading disability awareness. From ...
Let's get excited about an enlightening podcast series to help you feel connected and be informed. All about why SpineCare decided to do this series and what these series of podcasts will talk about. And what it's like for a mother of a child who has spinal cord injury.
Guests:
Sam Frain - Chairperson for SpineCare Foundation
Gillian Moreland - Mother of a child who has spinal cord injury
Image: by SpineCare Foundation
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