In this episode Mel chats with Stacey Phillips of Tubie Fun, a business that makes products to support families and people who tube-feed. Tubie Fun was inspired by Stacey's son, Callum, who’s been tube-fed for pretty much his whole life. Callum is now six, and is one of three boys being raised by Stacey and her husband, Anthony, in Brisbane.
Both Callum and his brother Harry, 8, have NDIS plans supporting various diagnoses including level-two autism, ADHD and Ehlers-Danlos syndromes (EDS), which is a group of conditions that affect the body’s connective tissue.
Stacey, like Callum and Harry, has EDS. She also has a condition called postural orthostatic tachycardia syndrome (POTS), which is a blood circulation disorder. Stacey is in the process of applying for her own NDIS plan and shares some of this experience, as well as her son Harry’s transition out of early childhood early intervention (ECEI) to the over-7s' arm of the NDIS.
Mel and Stacey also talk about the benefits of having allied health therapists supporting kids at home, rather than in clinics, and share some nitty-gritty NDIS admin advice.
Visit Stacey's business, Tubie Fun: https://tubiefun.com.au/
Find top-notch support workers for your family: https://hireup.com.au/
See omnystudio.com/listener for privacy information.
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I’m Jay Shetty host of On Purpose the worlds #1 Mental Health podcast and I’m so grateful you found us. I started this podcast 5 years ago to invite you into conversations and workshops that are designed to help make you happier, healthier and more healed. I believe that when you (yes you) feel seen, heard and understood you’re able to deal with relationship struggles, work challenges and life’s ups and downs with more ease and grace. I interview experts, celebrities, thought leaders and athletes so that we can grow our mindset, build better habits and uncover a side of them we’ve never seen before. New episodes every Monday and Friday. Your support means the world to me and I don’t take it for granted — click the follow button and leave a review to help us spread the love with On Purpose. I can’t wait for you to listen to your first or 500th episode!
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