In this episode, we dive into the unique story of Aisha, a young Black woman who stepped into the role of caregiver when her mother was diagnosed with frontotemporal dementia. Facing the dual challenges of her youth and a lack of caregiving resources tailored for her cultural background, Aisha's journey is one of remarkable resilience and innovation.
Aisha shares her personal struggles and triumphs, detailing how she navigated uncharted territories to create a supportive and essential community and resources for caregivers like her.
Among the highlights in this episode:
01:11: Aisha explains her entry into caregiving at age 27 and the adjustments she made, including leaving her job to care for her mother
03:40: Aisha describes her evolving role as a caregiver, from companion to handling more complex tasks as her mother's condition progressed
04:48: Aisha discusses the lack of available caregiving resources for her specific demographic as a young, African American woman
06:05: Aisha details her initiative in creating "Our Turn 2 Care" to support young caregivers of color and those in the LGBTQ community
10:19: Dr. Ferguson, Director of Education Development at GHLF, highlights the significant issue of resource scarcity for specific caregiver groups
10:54: Mike Eidsaune, CEO of Caregiving.com, emphasizes the importance of tailored solutions and representation in caregiving resources
13:16: Aisha stresses the importance of a strong support network for caregivers
14:36: Aisha shares how music and the arts played a crucial role in her caregiving experience
19:52: Aisha advises caregivers on the importance of self-prioritization and reflects on her caregiving experience
22:11: Dr. Ferguson comments on the non-linear nature of the caregiving journey and the importance of self-patience
23:42: Aisha lists various organizations and resources useful for caregivers
28:43: Mike concludes by suggesting ways for caregivers to educate themselves and find local resources
Contact Our Host
Dr. Laurie Ferguson, Director of Education Development at the Global Healthy Living Foundation: lferguson@ghlf.org
A podcast episode produced by Ben Blanc, Manager of Programs & Special Projects at GHLF.
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