Episode Transcript
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S1 (00:15):
On Vision Australia Radio. This is Vision Extra with Peter Greco.
S2 (00:22):
It's always great catching up with Meredith Prime, one of
our finest advocates, particularly there of deaf blind, but just
generally one of our finest advocates. Meredith, lovely to speak
to you again.
S3 (00:32):
Thanks, Peter, for that lovely introduction. Good to speak to
you too.
S2 (00:35):
We only speak the truth on this program, Meredith So
do you take it as gospel? Meredith, just before we
talk about what we going to talk to you about
later on this month, in the month of June? DeafBlind
Awareness Week, Such an important week for awareness and obviously
for advocacy.
S3 (00:53):
It is it ties in with Helen Keller's birthday every year,
which is the 27th of June. So always the last
week of June is a very important week on the
deafblind calendar and lots of things going around happening in
Australia this year. But I know you're going to speak
to my colleagues about that in an upcoming show.
S2 (01:11):
Yes, you've given us some leads and we will follow them.
So thank you so much for that. But you're involved
with a pretty exciting stuff yourself at the moment. Yes.
S3 (01:19):
So with our DeafBlind Information Australia project that's funded by
the National Disability Insurance Agency, we started through Covid, but
we're so excited to finally be able to travel again
and run face to face workshops all around Australia. So
we've got quite a few coming up. We're going to
every capital city. So good to get out to your
(01:41):
listeners as early as I can. We've already been to
Brisbane and Melbourne, but next, sorry, this month we're in
June already, we're in Darwin next week and then in
Perth at the end of the month and then Sydney
and Canberra workshops are coming up at the end of
August and Hobart and Adelaide later in the year. So
(02:04):
I'd really encourage people to go to the DeafBlind Information
Australia website to see when those workshops are, when the
dates are and to register or to get on our
mailing list or our Facebook page. Also shares all the
information about the workshops, which is if you just go
deafblind information in Facebook. But just yeah, wanted to touch
(02:24):
on some of the topics that we cover. So it's
relevant for anybody at all working with people born with
Geoff Blindness. So it could be children or adults. So
even in day services or adult group homes or kids
in school or any kids receiving the NDIS, but we
focus a lot on different communication methods, but also touch
(02:48):
is so much involved, so really looking at different ways
of touching and and how you can guide and support
learning through touch. I think a lot of people tend
to just grab kids hands or adults hands and there's
a variety of other different ways you can do it.
So we focus a lot on that and just learning
(03:08):
a bit more about vision and hearing how you can
optimize any residual vision and hearing. Because most people with
deaf blindness do have some functional residual vision and hearing.
So looking at how you can adjust environments to to
optimize communication and independence. So yeah, a variety of topics there.
That's not all we cover, but most of our participants
(03:32):
walk away pretty happy with the two days and come
away with lots of practical strategies that they can apply
immediately with their clients moving forward.
S2 (03:41):
It's going to ask you about that a couple of days.
I mean, it sounds like it's quite intense, but I mean,
apart from the sort of practical interactions, there is kind
of stuff they can take away with them to, you know,
refer to in the future as well.
S3 (03:53):
Yes, definitely. So. I mean, there's all the PowerPoints, but
they get some hands on like practical experience and there's
a lot of workshop components where they have to think
about the people that they're working with and how they
would apply these ideas to to the people that they
do work with.
S2 (04:10):
Yeah, well, I probably wasn't the greatest at geography, but
when you went through the cities, you pretty much are
covering all of Australia, which is fantastic. And as you said,
I mean the online stuff has been tremendous, particularly with
Covid and the inability to be able to travel. But
there's nothing like the face to face stuff, is there?
S3 (04:27):
That's right. For a couple of reasons for this particular topic.
So I think with deaf blindness, because you're always doing
something in the tactile mode, so to actually be face
to face, to support people, to have a go at
it and learn how to do it while you're there
present and can work with them, that's really important. But
the other thing is that deaf blindness we know is
(04:50):
a is a low incidence disability. So it's really nice
for people to actually meet other people in their city
who are working in this area. And it's been wonderful
to see that connection and networks building just through the workshop,
bringing people together with. Interest and experience. So it's that
double whammy that you don't get to have those chats
over a coffee or at lunchtime when it's online or
(05:13):
even just a quick aside in the room. I think
when everyone's online, you can't have those those social chats
so much. It's a whole group discussion rather than the ah,
you work in that area, Oh, I want to catch
up with you and actually the opportunity to be able
to do that. So yeah, two really good reasons why.
Why we think the face to face sessions are so
(05:34):
important for this group.
S2 (05:35):
It's a bit like, you know, when the G7 or
the G20 or whatever meet and they talk about the
things going on on the sidelines, they're probably more important
than what's happening in the big room, aren't they really.
S3 (05:47):
So true, Peter I think we lose sight of that.
And this like I'm big for working remotely. It's it's
a huge advantage to me in lots of ways. But still,
it's so important to be back in the office as well.
And for these workshops, yes, a lot of the work
happens in the in between bits. You're exactly right.
S2 (06:08):
What about kind of coming up with the curriculum, if
you like, or what's going to be discussed? How do
you kind of arrive at that? Because, you know, probably
no two people or deafblind are the same as in
no two people are just blind or no. Two people who,
you know, work as accountants are the same. How do
you kind of come up with something that you think
is going to be, you know, encompassing what what people
(06:31):
are wanting to to cover?
S3 (06:32):
It's a great question, Peter. And the two trainers, myself
and Melanie Roberts and have yeah, over 30 over 40 years.
S2 (06:41):
Between us there wasn't a leading question.
S3 (06:45):
No, no. Um, but guess we yeah. Go on our
own experience and and yes that no two people are
the same. And so a lot of it is around approaches.
It's not, it's not prescriptive do this or do that.
But these are the things to consider for any person
that you're working with. And something we start on is
(07:06):
a life space model and get people thinking about what
aspects of the world can this individual access with their vision,
with their hearing, with their grasp, like with their sense
of touch, really thinking about individual and the the best
way of providing information to them and then all the
different ways that you can provide information. But it's very
(07:28):
much around it's more about ideas and approaches than do
it this way, do it this way, do it this way.
And we give a lot of video examples. People get
to have a bit of a go themself at trying
out different things, seeing what you know, what they do
and don't like and the person they're with, how they respond.
So yeah, not, not too prescriptive. A lot of ideas
(07:51):
for people to walk away with to try.
S2 (07:53):
Now I'll ask you, Dorothy Dixon, I'm assuming that people
are deaf, blind, have had an input into this as well.
It's not someone that's I've got this really good idea. Yeah,
it's been much more consultative and inclusive than that. Yes.
S3 (08:07):
So there's a couple of ways we do that. So
we have a reference group that has two parents and
for people with deaf blindness on it and any resource
that we develop, including the training they look over to
make sure there think it's accessible and that it's relevant
and meaningful. But we also have people with deaf blindness
(08:30):
in each state that come along to to share their
experiences as well. That ideal, yes, would be that we
had a deaf blind presenter throughout, but we're not quite
at that point. But yes, definitely. Um, very much. There's
been plenty of involvement from people with deaf blindness and
great to see a few family members attending these workshops
(08:53):
as well, which is always great that they will share
their personal experience as we go through also and people
with deaf blindness attending as well. So a real mix
of people and yeah, definitely always part of the sessions
are presented by people with deaf blindness or family members.
S2 (09:08):
You talked about deaf blindness being a low incident condition,
if you like, or disability. I call it what you like.
Can that kind of be at strength as well that
because obviously there maybe aren't that many people who are deaf,
blind or fit into that category, if those services can
be provided at the ultimate level or the very best level, yeah,
(09:28):
that can kind of be a very big positive as well.
Like if you can be an expert, but if you
can be really good in this area, it's going to
be a huge benefit.
S3 (09:37):
Yes, I think part of the problem is the geography.
So you might have one person in one region, may
only have one deaf blind client. But just on the
low instance disability. I'm glad you brought that up, Peter,
because increasingly we're thinking the numbers are a lot higher
than originally thought and that our way of estimating prevalence
(10:02):
are a bit lacking for a variety of reasons. I
think more and more people are recognizing that people with
complex disability often have visual and auditory processing issues, and
so deaf blindness strategies are very much relevant to them
and that they can be considered as deaf blind themselves.
I think often if there's a cognitive impairment or a
(10:24):
physical impairment or other disabilities, the deaf blind has come
so far down the list that it's not considered that much.
And of course, with our aging population, that's the highest
growing population of people with deaf blindness. And that group
also just go, Oh, well, I'm just old and don't
actually recognize that there is that combined vision and hearing
(10:45):
impairment that really creates a more significant disability that that
isolation and that there are strategies and services and approaches
that could be benefiting them. It's tricky with with in
service delivery. I think here a lot of things market
(11:05):
is referred to often and they would say that this
group is a thin market, which is very much what
these workshops are about. It's building networks, building support for
people so that there's other people they can contact in
their area, but just building their capacity and willingness to
have a go. I think people get referred someone with
blindness and go, Oh no, I wouldn't know what to do.
So just starting to build people's sort of willingness and
(11:29):
confidence in taking on deaf blind clients don't want.
S2 (11:32):
To get too much off topic, but I was speaking
to someone the other day from Dementia Australia and they
were saying what a role that hearing loss can play.
Not so much in dementia, but you know, sometimes that
can make people feel excluded and all of a sudden
they don't communicate as much. They feel more socially isolated.
And if they have got, you know, propensity, if you like,
to to be vulnerable to dementia, that can also be
(11:56):
a very important factor that can sometimes be overlooked or
maybe can be corrected if that attention is given to
their hearing impairment.
S3 (12:03):
Definitely. Peter. That's right. And I think and you know,
it's that that age group, I think people often do
just think, well, it's just aging and there's so much
more that can be done. And and that isolation is
really a big issue. And people who understand deaf blindness
can provide strategies or link them in with other services
(12:26):
and support networks. I think even just finding other people
who have the same issues is really valuable. That peer
support is critical in deaf blindness because people, the people
themselves feel really isolated and the families and the service providers.
So a lot of it's about linking people for peer
support and learning from others who have walked the path
(12:46):
before them.
S2 (12:47):
Yeah, well, if you kind of feel like someone is
getting what you're saying, you know, not just saying that
they get it, but you can sort of sense that
they get it. It can make a huge difference to the.
S3 (12:56):
Outcome It does. I have a vision impairment myself, and
I know when my friends who have a vision impairment go, oh,
don't you hate that? And you know, they really get it.
Like people will say, Oh, that sounds annoying or that
must be annoying. And it's like, Yeah, but you don't,
you know, they can't fully appreciate what it's like. And
then when someone who, you know, has the same really
(13:18):
does have the same experience, that sense of belonging and
connection is really great.
S2 (13:23):
So your road tour is underway. Well, it's started. It's
already underway, as I say. So just give us the
areas that you're going to and also how people can
find out more. There was one.
S3 (13:35):
Other thing I wanted to mention as well. While I'm
here for people who can't get to these sessions, they
will be recorded.
S2 (13:42):
Oh, excellent.
S3 (13:43):
But also a lot of the resources that we've developed
are now all part of a deaf blind course. And
so it's not just our group that are making stuff,
but anything developed in Australia or around the world. We
are uploading in partnership with Nexans, who were formerly the
Royal Institute of Deaf and Blind Children, and I will
(14:05):
send a link out so this is not just deaf
blind information Australia. This is a broader, more national group
working on this because we recognize there's just a lack
of training generally for people working in this area. So
I'll answer your first question, which so coming up, we're
in Darwin and in Perth in June, then the end
(14:27):
of August and into September we're in Canberra and Sydney.
And then I don't think the dates have yet even
been set for Hobart in Adelaide, but they'll be, yeah,
sometime between September, yeah, October I would say. But just
in terms of that deafblind resources course, there's a huge
amount of content in there. It's self-guided and self-paced. It's
(14:49):
pretty easy to click through and find what you want there.
Stuff on orientation, mobility, stuff on early communication. There are
peer support networks around Australia that you can link with,
so just a great resource to work through and lots of.
Online webinars, video content and even the Q&A sessions from
(15:10):
video content is sorry from webinars is available. I'm tripping
over my words a bit today, Peter, but I'll I'll,
I'll send you I'll send you the links to our
DeafBlind Information Australia webinars. Sorry, we have webinars as well
so people can access the webinars, but also those face
to face workshops, just the website itself, the link to
(15:33):
the Facebook page, but also to this decline resources course.
So yeah, a whole heap of information there for anybody interested. Alright, we'll.
S2 (15:40):
Put that up on our Facebook page. Meredith, always great
to catch up. We'll speak again soon.
S3 (15:44):
Great. Thanks for your time, Peter.
S2 (15:46):
Part of the problem there, talking about issues dealing with
deaf blindness. That is it for the program. If you've
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