Episode 53: Follow me, I’ve got this.

Kimberly talks with Annie Lapidus about the joys and challenges of being in an immersive theater production about blindness, the importance of connection, and living with a rare disease.

To learn more about Von Hippel-Lindau, visit vhl.org

Thanks to Chris Ankin for use of his song, “Change.”

The book "A Celebration of Family: Stories of Parents with Disabilities." is available from Amazon here.

Be sure to follow the Advocado Press Facebook page

Visit Appalachian Assistive Technology Loan Fund for assistance.

Visit Moving Forward, the Advocado Press blog.

Send comments and questions to [e-mail]

Demand and Disrupt is sponsored by the Advocado Press and the Center For Accessible Living.

You can find the transcript in the show notes below when they become available.

Transcript AI voice You're listening to Demand and Disrupt, the podcast for information about accessibility, advocacy, and all things disability.

Kimberly Parsley Welcome to Demand and Disrupt, a disability podcast. I'm your host, Kimberly Parsley.

Sam Moore Hello, Kimberly Parsley.

I am Sam Moore.

Kimberly Parsley Hey, Sam, how are you doing?

Oh, better now that I'm in your Zoom presence.

Kimberly Parsley It took us a while, didn't it?

Zoom was having a day.

Sam Moore Yes, you folks miss that, but we had to work extra hard to get Zoom to cooperate.

I mean, we needed a different passcode because the one I've been using to get in, you know, the last two or three times, it was no longer valid.

They of course had to give me a new passcode to work with.

So I'm sure by the time we do this again in a couple of weeks, Kimberly, I'll need another new passcode.

Kimberly Parsley Zoom likes to keep us on our toes, doesn't it ?

Sam Moore It does.

That's a, that's a nice way of putting it.

Kimberly Parsley Yup.

And there's a, I believe there's severe thunderstorm warning as we record here in Bowling Green, but all seems well.

Sam Moore So yeah, you're, you're still, you know, you're still with power.

That's a plus.

Kimberly Parsley All, all good, all good there.

So it's a stormy May 2nd here in Bowling Green.

It's right before Derby Day in, by the time this comes out, the Derby will have, well, hopefully have been run and decided.

Sam Yeah.

Unless they postpone it, which, you know, they'll, they'll run in the rain, but, but if there is lightning, no doubt, they'll have to take some precautions.

And just for the record, Kimberly, the, the horse that I am choosing is that the name is Sandman.

Kimberly Okay.

Now you're putting that out there and so it's, it's going to be on the record.

Sam So I'm putting that out there.

It's not Sam man, but it's close.

Kimberly Now, do you, apparently people bet on everything these days.

Do you, do you gamble on, uh, on the horse races?

Sam Not, not generally when I've gone to the local racetrack here in Henderson Ellis park, uh, uh, a few times.

And, and when I go there, I'll, you know, I'll play some small bets, but I've never, I've never betted on the Derby or anything.

I