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October 10, 2025 66 mins

Meet Sarah- she’s navigating life with POTS, MCAS, and Autism. She has entrenched herself in advocacy and the disability community, providing many recommendations to learn more about bias and the medical system. Topics we discuss include appointment fatigue, fat phobia, chronically ill women/minorities and more. Tune in to hear her story, approach to living with chronic illness, and recommendations for sources of education, community and joy!

Sarah's recommendations for the disability and chronic illness community, highlighting creators and resources to follow: Nina Tame (@nina_tame), Imani Barbarin (@crutches_and_spice), Shane Burcaw (@shane_burcaw), Tiffany Hammond (@fidgets.and.fries), Open Future Learning (@open_future_learning), as well as the Maintenance Phase podcast and Aubrey Gordon’s work—including her books and the documentary Your Fat Friend—as resources for understanding anti-fat bias and its impacts.

Podcast recommendation re: women and pain in the medical system- The Retrievals Podcast

Thank you to Nurse Mates for your continued support of Dysunderstood and The Dysunderstood Podcast. Discount Code: ELLA20

Find us on instagram @dysunderstood.

For a transcript of the episode, click here or visit: https://www.dysunderstood.com/s2e5transcript

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