Episode Transcript
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(00:02):
Welcome to Grannies Talking Dementia.
We're your hosts, Rayna Neises.
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And Tonja Moon, we are in cahoots with the Grandbaby Project, Offering whimsical wisdom, inspiring support, and joyful engagement for everyone involved in the dementia care journey, whether you're a family caregiver.
or a professional in the field.
Each of our episodes is designed to uplift, educate, and empower you as we navigate this caregiving life together.
(00:29):
Today's episode is brought to you by The Grandbaby Project.
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Knock, knock, Who's there? Daryl.
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Daryl, who? There'll never be anyone as crazy as you.
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Oh, I love the knock knock jokes.
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So speaking of crazy, you know, years ago, that's how people referred to folks with dementia was they were just crazy and it was just accepted.
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That's kind of what brought us here, Rayna.
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So talk to me and ask a little bit about why dementia education and encouragement is so important to you.
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Well, sadly, I have walked that walk and when you say that about people being crazy, I remember a great grandmother that my parents talked about that had senility, right? The word that we used to use.
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But sadly, I actually have lost both of my parents to alzheimer's disease.
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My mom was only 53 years old when she was diagnosed and she lived 12 years with the disease.
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I was just 16.
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And that was way back in the eighties and there was just no information available.
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Obviously as a teenager, they probably weren't talking to me about it a whole lot anyway, but everything I learned came from my senior English writing, project that I had to do.
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And there was so little information out there.
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It was really difficult.
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Just seven years after my mom passed away, my dad was diagnosed and he lived 14 years with the disease and we just lost him in 2018.
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There was so much more information, but even then there wasn't the support that I think that's available today.
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I'm excited to be able to be here, to be part of Grannies Talkin Dementia, to add that to the repertoire of things that I have done to help support others between writing my book, No Regrets, Hope for Your Caregiving Season and offering other services at A Season of Caring.
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I'm excited to be a part of this time.
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I know for me, one of the number one things in caring for my dad was to remember that I always wanted to care for him through the lens of what made him happy and healthy.
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and so no matter what those choices were, if it made him happier or healthier, I was willing to jump in and do that with him.
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and so I think learning to find ways to do that is so important and that's what I'm excited to be able to share with our listeners.
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Yeah, so thank you for that.
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And one thing I know that was important to you and me as well, as we kind of embarked upon this podcast journey was bringing the things through the lens of faith.
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So we just share with our listeners a little bit how faith played such a vital role in really being so young and having to deal with your mom.
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Yeah, I was so blessed that and I mean, at the time, I certainly didn't feel that way, but when I was just in junior high, my very best friend moved away and we had so many plans.
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We were just teenage girls that were looking forward to doing high school together and she moved and that was a turning point in my faith.
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Because I just had to learn to lean on the Lord and he actually became my very best friend.
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So I can remember that time just a few years later when my mom was diagnosed with this terminal illness that I just didn't really understand what was happening.
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I would just, pour my heart out to Him.
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And so really having that relationship, he became my BFF.
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And so just having that relationship with the Lord helped me to be able to find peace, even in the middle of those really hard and confusing things and has continued to be such an important cornerstone in my life.
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Yeah, that's fantastic.
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And it led to your book, which is amazing.
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So I've felt so blessed to have been able to share our story and just offer practical tips and stories that can help others in their journey, because there are no two journeys that are the same, but we can learn so much from each other.
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And by being able to share those things, it's just been a blessing to be able to help yeah.
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So Tonja, I know Alzheimer's impacted your life.
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Share with us a little bit about you and The Grandbaby Project and Granny.
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Yes, so my, my grandmother, had senality.
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So she's been gone going on 17 years and we didn't know anything about dementia.
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No one talks about dementia.
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I mean, I was 35 actually at the time.
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And I just thought that everybody just got old and lost their memory and you just put them in a nursing home.
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I mean, that's kind of, I just, that was normal.
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That's what I thought.
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And so, anyway, I had the honor, I can call it an honor today looking back, but in the moment, it was hard of helping to care for my grandmother.
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And as her disease progressed, so did her aggression.
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And I had never in my life seen someone go from sweet to totally salty.
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I mean, she was a handful.
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And That's how The Grandbaby Project was birthed.
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God put a very specific seed in my heart after her passing.
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And one of the ways that we became able to connect with my grandmother was through giving her a baby doll.
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And everyone thought we were crazy and nuts.
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I even thought it was kind of kooky.
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We gave it to her and she literally thought she'd been handed a newborn baby.
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And we always joked that nanny loved her grandkids way more than she loved her regular children.
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I mean, she made that pretty obvious and let everybody know it.
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And so the Lord planted a seed in me before I even knew what dementia was, what it meant.
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And that seed was one day you will put dolls in the arms of people with dementia.
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And so we launched The Grand Baby Project, our nonprofits going on four years ago, we deliver thousands of dementia therapy dolls to seniors all across the country that are living with dementia or other cognitive challenges.
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And it's just been an amazing, amazing blessing.
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And when I look back on how it all came about, God is so good.
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I was in corporate sales at the time of my grandmother's passing.
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And while I helped to care for her and she went on hospice, I loved her hospice nurse.
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And I left corporate sales and went into hospice where I spent almost 17 years, worked my way up the ladder.
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And I was always so drawn to dementia patients at the end of life.
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And so I've seen so many things up close and personal.
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And I took a little bit of all of those experiences with me and those relationships I was able to build really help project and propel The Grand Baby Project forward.
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And so, yeah, here we are.
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And our mission in the project is to bless people living with dementia with, beautiful little companions.
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Then we've since launched a whole other company that is focused on training caregivers.
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So it's been a journey that was super hard, but every one of those hard steps got us to today, and the Lord knows our steps before we ever take 'em, right? And so I can look back and finally take a big, deep breath and say, okay, I'm on the right track.
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So, yes, it is very, very near and dear to my heart.
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If I could make a living, just spending every day with people with dementia, I just would love on 'em and hung on 'em.
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I just love them.
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Well, and I love you mentioned to their dolls, but their, their therapy, and that's something that through research and really investing in the people you're caring for, you found so many great things about understanding this and helping to educate people about that.
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You know, it's very interesting.
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So I'm like, okay, I have this idea.
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Now what? So I did what every, red blooded American does when they want to do something new.
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I went on Google and typed in Dementia Doll Therapy Class and there was nothing in the United States.
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There was nothing.
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And I knew from my hospice days that it was very common to walk into a skilled nursing facility and see a little lonely lady with a, eight to 10 inch plastic baby doll.
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But there was no training, no nothing around it.
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And so I literally, for years, had to study under a neurologist in the UK because there was nothing here.
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And it is absolutely a form of therapy.
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It is unbelievable to see what we're able to see every single day from people who haven't spoken in years to start singing an old lullaby to this little beautiful baby that they may or may not think is real, but there's a connection there and, here we are delivering thousands of dolls.
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I mean, we have dolls in Africa, in Mexico City, New Zealand and then all throughout the United States.
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And so, it's also very, very precious to me that Nanny's legacy can live on as do her earrings dangling from my ears.
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She wore gigantic jewelry all the time.
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So for our podcast, I'm wearing her big earrings.
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bold red earrings.
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I know if I had known your nanny that she would have been my favorite person.
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Oh, she was a hoot girl.
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Let me tell you, she was a hoot church didn't start till she walked in and it certainly wasn't over.
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And so she said it was over.
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So yeah.
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I'm so excited that we get to go on this journey and share obviously with each other, but really remind the listeners of all of those great memories of people that have, passed on.
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And my grandmother, like a lot of grandmothers was a huge force in my life.
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So just super excited to pay homage to her, you know, really every day I got to get to heaven and her be proud of me.
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Cause I can't be walking through those gates with that, with that finger.
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You know, brainies have a finger and they point that finger at you and they move that finger and I'm like, girl, when I walk in those gates, I want it to be a high 5.
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I don't I don't want the pointing the finger, you know? So, anyway, Yeah.
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So important.
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One of the things we hope to bring is a little more laughter because it is such a difficult journey and there are so many struggles out there, but at the same time, you've got to laugh.
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And you've got to keep your faith in the middle of it all.
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I think with those two key ingredients, we can really bring so much joy and information all in the same boat.
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Absolutely.
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There's a lot of amazing podcasts out there that are related to senior care, senior caregiving, dementia, Alzheimer's, of course, gets a lot of recognition But there's nothing quite like what we're going to offer.
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And we want to be that space where you can just grab a cup of coffee or tea and sit down and just laugh or cry.
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You know, we don't know it all, but man, we've lived some stuff and we just want to be that little space of comfort for people.
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And I'm not sure that that's out there in a fun, whimsical way that is still extremely respectful of those that we ultimately enjoy serving.
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Yeah, definitely.
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We want to be the podcast where wisdom meets wit in the world of caregiving.
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Imagine us just all sitting down to that cup of tea with the spunkiest, most insightful, grainy friends, where we'll just be there and through thick and thin talking about our loved ones and how we're caring for them with dementia.
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So gathering around the kitchen table, Each with our own story of love and challenge and faith and navigating this journey of dementia care together.
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Yeah, I mean, every episode that we do is going to be brimming with real life tales sprinkled with laughter and then seasoned with practical wisdom.
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Can't you just see Granny in the kitchen cooking and doing all of that? But also really deep rooted in faith that lights the way.
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From navigating the ups and downs of memory care, and there are many, to sharing the secret recipes for keeping our spirits high.
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And then, you know, we've got to discuss the hard stuff, the emotions or sharing those moments of grace.
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So our podcast is a testament to facing the trials of dementia with the spirit of gratitude and ultimately just trusting God's plan.
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Yeah.
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We want to have respect and laughter.
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So Grannies Talkin Dementia is here to remind you that you are not alone and that joy can be found in the toughest of days.
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So grab that mug and let's let the comforting blend of humor, advice and faith uplift you right now.
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So Make sure that you're joining us for every episode of Grannies Talkin Dementia.
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We are so excited to be able to, guide you through caregiving with wit, a smile, and an open heart.
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Yes.
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Thank you so much for joining Grannies Talkin Dementia.
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It's been a joy to have some fun, share some stories and tips with you.
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May the Lord guide us on this journey of understanding compassion and love.
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May he grant us the wisdom to see the beauty and dignity in every moment, even in the challenges of dementia.
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Let us remember that in every word we speak, in every story we share, we are not alone.
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God's love and strength are in ever present support.
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May all who listen find solace, understanding, and a sense of community in his name.
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And we pray for blessing upon all of our listeners, their loved ones and the journey ahead.
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Amen.
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Amen.