Episode Transcript
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(00:00):
Hi. Welcome to the Living Onwards podcast, and I am authentically grieving.
As you heard in our first episode or trailer, I am your host, Sarah.
I have two beautiful cats who run the entire house, a beautiful adult daughter,
and a dog who does her best not to be managed by the cats.
In fact, this morning I woke up to the cat walking the dog around the coffee
(00:25):
And that might seem like a euphemism, but she was literally following the dog
around the coffee table in the living room.
And when the dog would slow down, the cat was slapping her in the tail or the
face. It wasn't aggressive.
It was just weird because it was like this slow chase, but gentle.
(00:46):
I jokingly said in a text to family that maybe she was walking the dog for me.
Anyways, I also work full-time, and you might wonder why I share this information
with you so up front, but I actually think it's important to share.
I am a widow who lost my husband in January 2024 to cancer after a 10-year battle together.
(01:09):
We were a cancer family, and losing him was absolutely devastating. dating.
That said, long before we lost Carlos, I grieved the loss of normality in our
life, the loss of a future, and the constant changes to reality that cancer brought.
So my point is that this podcast is brought to reality by me,
someone who's actually grieving and has grieved, by someone who legitimately
(01:33):
is trying to figure out how to go about living onwards herself.
More importantly, I want you to know that this podcast isn't specific to cancer
or those who lost loved ones to cancer. It's about all types of grief.
But in these early episodes, I will talk about our stories so that you hear
where I'm coming from and hopefully see how important this podcast and you are
(01:59):
important to me because of the fact that I'm going through it,
regardless of what caused it.
Life has a funny way of throwing us curveballs when we least expect it, doesn't it?
And one of the biggest curveballs anyone can face is to hear, you have cancer.
Whether it's you, or you heard it, or someone you love heard it,
(02:20):
the world just comes crashing down around you.
I don't mean that the world literally comes crashing down, like Chicken Little
isn't running around the town square yelling, the sky is falling,
the sky is falling. But in your world, the sky is falling.
And I literally could picture myself as being Chicken Little sometimes.
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And that might be an outdated reference for some of our younger folks.
But I would suggest going and looking up the movie or the cartoons because you
might see yourself in those moments.
My first reaction when my husband told
me that they thought he had cancer was a cold chill
just going through me head to tail and the
(03:02):
hair on my arm stood on end when the doctor told my husband of 14 years of at
that point that he had cancer he had gone to a doctor's appointment without
me because he was concerned he wasn't okay like something was going on but he
also just said You know what? It's okay.
Stay home and work. I'll let you know what they say.
(03:23):
He came home and told me to shut the laptop. And he told me that they wanted
him to go back to the hospital because they believed he had a pretty advanced stage of cancer.
And that was just the worst news I could have ever had to that point.
If you know anything about human behavior, you've heard of fight or flight reactions
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that happen instinctually.
I have to say, I get the concept of fight or flight, but I had neither that moment.
Just a cold wave over every bit of my body.
I kind of equivalent it to those of us who get scared watching horror movies, and I'm one of them.
I have to turn on all the lights if I watch horror movies.
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Maybe it's similar to what happens when we see the worst possible nightmare
happen in front of us or to our doppelganger in the movie.
Doppelganger, by the way, is your twin or the person you most identify with in this case.
So there I was sitting in the chair with my husband and he's telling me the
worst possible nightmare is happening to us.
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Suddenly, all of our carefully laid plans are turned upside down and everything
in the future is now in question.
We don't know what we don't know and we didn't know then what we didn't know.
And maybe that's a good thing. But in our shock, we had to navigate doctors,
surgery, child care logistics for our then 12-year-old daughter,
deal with our own fears, and help manage our daughter's life around cancer because
(04:52):
then she was still a 12-year-old going to school and living life with all of
the cares of a 12-year-old.
So today I'm going to share a bit about how we coped with the unexpected news
of cancer and found hope in the midst of that chaos. Even when cancer wasn't
part of our plan, we still wrote a new chapter filled with resilience, strength, and faith.
(05:14):
Now let's talk about the shock and emotions of receiving a cancer diagnosis,
or really a diagnosis of any severe type.
I think whether you're dealing with a diagnosis of heart disease or Alzheimer's
or anything that can cause a sudden death,
or at least an unexpected death, I think the shock and emotions are very similar.
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Receiving a cancer diagnosis specifically can be one of the most shocking and
emotionally overwhelming experiences a person can go through, period.
It can leave you just feeling completely blindsided, as if our entire world
has been turned upside down.
I know that for the both of us, we felt ambushed, and we each had our own reactions.
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Then we had to go ahead and support our daughter through it all and ensure she
was able to focus on school and do normal kid things in the middle of this.
Whatever stage of life you get bad news about a serious health condition or
a fatal health condition, I know this must be the same.
I know that it just must feel like you had all these plans and what happened?
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You know, it's like I just got ambushed with this horrible news and everything just stops.
The shock of receiving such a diagnosis often stems from the fact that it is just unexpected.
It's not like you can predict it. It's not like there's a book and a formula
that told you it was coming. It just happens.
And so most people do not anticipate being diagnosed with cancer or serious
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disease or medical problem, especially if they're young and healthy.
Specifically to cancer, this lack of anticipating cancer is somewhat odd considering
the lifetime time risk of having cancer is 42% for men and 40% for women,
according to the American Cancer Society.
That said, statistics be damned. Nothing prepares you to hear this news.
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There is nothing that you can do to brace for this reality.
For me, his sudden realization that his health and ultimately life is at risk
led to feelings of disbelief, confusion, and fear. We also both felt guilt.
In his case, I think it was a guilt for cancer being brought into our reality
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through him and guilt for the trauma it brought into his family.
I, in turn, felt guilty for what I could have done better, noticed sooner,
or thinking I must have missed something that would have led to a diagnosis
sooner or maybe even avoiding cancer altogether. It's crazy, right?
You're just just irrationally trying to understand an irrational problem.
(07:56):
You're trying to logic the illogical. In addition to the shock,
a cancer diagnosis also brings along a wave of various intense emotions.
Many people experience a roller coaster of emotions after receiving this news,
from anger and sadness to anxiety and hopelessness.
If you've experienced these or are now experiencing these, be kind to yourself.
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These emotions are completely normal and understandable given the situation.
I know as a caregiver, I tried to be strong and I tried to put on the encouraging game face, as they say.
I am and was human. It was impossible for me to bluff my way through,
to fake it like I was okay.
And he saw it, and he knew it. And sometimes I just had to be me and be authentic.
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One emotion that most people feel after receiving a bad diagnosis is fear.
Just fear of the unknown, fear of death, or fear of what's to come.
What type of treatment will be needed? What will happen next?
What will happen to my family? What will happen to my body?
What will happen to me financially?
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Fear for my future? Will they survive this? Will I survive this?
Will they have to make major life changes? Will we have to make major life changes?
What is the impact of this horrible diagnosis? diagnosis and so these fears
can be overwhelming and consume your thoughts.
I know they did for us and having little knowledge about the specific type of
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cancer or any bad diagnosis is scary.
My husband had colon cancer and overnight I needed to know everything and anything about it.
Unfortunately, Dr. Google is not kind because you hear what you don't want to hear.
You have confirmation of what you never wanted to know or believe.
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Another common emotion is grief. Grief for the loss of their previous sense of self.
Suddenly everything changes when faced with cancer.
You grieve the current reality. You grieve over the plans and dreams that seem
and might be unattainable now.
I grieved exactly because I had been doing some searching online line and feared the worst.
(10:13):
Carlos grieved because the diagnosis had caused immediately and for over 10
years extensive chemotherapy rounds, surgeries,
countless doctor appointments, and loss of his eyesight after five years.
Five years into his cancer battle, he lost his peripheral vision and ability
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to drive due to a craniotomy, a surgery of his brain to remove a tumor from his occipital lobe.
That was a source of much grief then and until he passed away.
Grief doesn't just happen and go away, right? It doesn't just go away after
diagnosis or after you learn more. It just keeps coming in waves.
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And this includes pre-grief before you lose the person.
As things happen, you grieve. And that shouldn't be underestimated.
And in the case of Carlos and I, we grieved separately and together throughout,
as realities changed and futures became uncertain.
We couldn't plan on or assume anything.
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I had to learn, and I hope you hear from me, that it's important to understand
that there is no right or wrong way to feel after receiving a dire diagnosis.
All of us process information differently, so it's essential to give yourself
time and space to process your emotions in your own way.
Be kind to yourself, and remember that it's okay not to be okay.
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You are human first and foremost, no matter how much you think otherwise. wise.
And then you are a patient, spouse, caregiver, family member,
or friend after being human.
Now, I'll tell you, there's plenty of books, blogs, and opinions about how to
handle crisis diagnoses, but there's absolutely no formula.
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There's no handbook. There's no flow chart for you to follow to refer every day or in the crisis.
There is no decision tree or anything Anything that says this is the solution
or this is the magic that you can do to solve this.
You are both humans dealt a terrible blow.
And with chronic illness such as cancer, the blows just keep coming.
(12:24):
Be kind to yourself and your loved one. Be kind to yourself before,
after, and during the process of a chronic illness or a loss.
Carlos and I both found it helpful to join online support groups,
especially ones which had separate spaces for patients and caregivers to share
separately and privately.
(12:47):
Before the diagnosis, I would have scoffed at the idea of joining support groups
in person or online, but they became a lifeline for both of us.
The other immediate action we took, when overwhelmed with texts and calls asking
for updates about his health, was to start a blog.
That blog became our voice of truth, a single resource everyone could read and
(13:10):
everybody could refer to.
That blog can still be found today at mylifeline.org slash carloschavez,
and I'll link to it in the episode notes as well.
The blog reduced the amount of telephone game or miscommunications.
I don't know if you played the game of telephone as a kid, maybe in camp or in school,
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but But it is when you tell someone a story without the next person hearing,
that person turns to the next person and repeats it.
And then the person goes to the next person and repeats it and on down the line.
It's always interesting at the end to have the last person in the line say what
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the story is and compare it to what the original story was.
And so we really needed to cut through the middle of that because people were
hearing crazy things and then they would repeat them back to us.
And a lot of our time was trying to figure out what the actual story was that
people were hearing. and then, of course, correcting when it was wildly wrong.
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It caused a lot of drama and a lot of trauma. And so doing the blog was important.
Unfortunately, you are not the first family or person to hear a diagnosis that is dire.
Try to be very self-aware of the major stressors and just work to control or
mitigate what you can control.
I think that's what drove me nuts the most is I love control.
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And at least in the case of cancer, there's not a lot you can control.
And so the loss of control was very difficult for me to accept,
even after 10 years of battling cancer.
And to be honest, that's the biggest thing that I had to surrender in my heart,
was my need for control, because it absolutely drove me insane not to have it,
(15:03):
and I knew I couldn't get it.
The emotions are real, and the roller coaster of feelings is the wildest,
most unforgiving ride of your life.
The emotions are both a part of and separate from our experiences going through
a chronic or bad illness or a death.
In the next episode, I'll share about what experiences we had at a broad level.
(15:23):
In later episodes, we'll talk more specifically about events or over the course of our journey.
Of course, our experiences were different as he was the patient and I was the caregiver.
I also am sharing in hindsight in the next episodes and without the benefit
of his being here by my side to tell it from his perspective.
I will try my best to speak for him and honor his story as well as mine.
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And as I mentioned in the trailer or episode one, I also intend to bring in
other guests and other people's stories because this is most definitely not
about cancer or cancer journey, but about the journey of grief,
whether you're grieving the loss of a loved one that happened suddenly or the
loss of a loved one that happened after a chronic illness or dire diagnosis.
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Hypnosis, and so know that while I am telling my story, I am also making sure to tell others.
Subscribe today to start your journey towards healing and discovering the resilience
within you during this journey called grief.
Share this podcast with anyone you think would be interested,
and know that most people find podcasts because a friend recommended it to them,
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not just because they stumbled upon it in a search.
Join us on our website also, And join the community as we walk together towards a brighter tomorrow.
There you can comment. There you can see the expanded blog article that I'll
share with this episode that goes into more of my thoughts or resources or anything
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that I think of interest that touch on this topic.
As always, be kind to yourself and know that you are human.
And together, we're authentically grieving. See you in the next episode and
on the livingonwards.com website.
I'm grateful to you for listening and for your support.