Meet Zuly; A story about strength, rare disease, advocating, medical miracles, Systemic Juvenile Idiopathic Arthritis and Secondary Hemophagocytic Lymph Histiocytosis.

She is more fierce than a mountain lion in Big Ben! Meet Zuly, a mom of three, a courageous advocate for her children and other parents who have children with rare diseases. From standing up to the medical industry to taking on Capitol Hill, Zuly has worked tirelessly to not only save her daughter’s life, but to make the changes necessary to save others. Her journey began when her third child was diagnosed with Systemic Juvenile Idiopathic Arthritis and Secondary Hemophagocytic Lymph Histiocytosis. Join us in the Bunker to day to discuss mama trauma, motherhood, momsday moments, Mexico, Iraq, refugee, pregnancy, Systemic Juvenile Idiopathic Arthritis and Secondary Hemophagocytic Lymph Histiocytosis, survival, anxiety, medical miracles, medical establishments, medical mysteries, rare diseases, and HOPE!  

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