Episode Transcript
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(00:01):
Welcome to the Parents Guide to Advocacy.
I'm your host, Ashley Hinkle.
My mission is to equip, empower, and support parents to become fierce advocates for their children's unique educational needs.
Our goal as a community is to be resourced and resilient parents continually growing to be the safe place our children need.
(00:24):
We will navigate the challenges of raising neurodivergent kids, highlight the joyful moments, and celebrate the successes our families experience when we see the spark in our children's eyes from learning something new.
If ending the feelings of overwhelm, guilt, and frustration to embrace courage, perseverance, and empowerment, Sounds good to you? Then let's go.
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Hey, everyone.
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One thing I've learned is that awesome intervention service providers are really difficult to find.
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If you've had a child in speech therapy, physical therapy or occupational therapy.
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For an extended amount of time, you know what I'm talking about? And Luke's journey.
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We have experienced a gamut of different providers.
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Some have done a good job and checked most of the acquired boxes in therapy.
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Others haven't clicked with Luke at all.
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And he didn't get much benefit from what they were trying to present.
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Only two so far have been incredible.
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Both have gone the extra mile to get Luke more services to advocate for his unique needs and to personally connect with him.
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Let's take a look at what characteristics.
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Made these two amazing speech language pathologists.
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Or SLPs stand out above the rest of the service providers we have encountered.
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First.
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They were willing and eager to collaborate with me as Luke's parent.
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They provided additional resources for me to study.
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Recommended different related therapies.
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I reviewed his IEP.
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And helped me write some customized goals.
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They would also let me in on insider tips to get more support.
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My questions were not a bother to them.
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In fact.
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Engaging with these SLPs helped me grow as an advocate for Luke.
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They encourage me to push for a more from the school system and advise me on best practices for Luke speech journey.
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Even when they wouldn't be providing therapy for him anymore.
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Incredible service providers have a vested interest.
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In your child's success as a person.
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This vested interest often starts with our next characteristic of high quality therapists.
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They develop personal connections with their clients and customize therapy to meet their unique needs.
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They don't subscribe to a one size fits all model of therapy.
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These therapists know if you've met one kid with ADHD.
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Then you've met one kid with ADHD.
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The same goes for any other child with different learning needs.
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Great providers, customized learning to meet the children where they are in gradually raised the bar.
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They create a scaffold of support.
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That will help your child grow and attain their goals.
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The best providers don't see autism listed on a child's paperwork.
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And create generic goals and lessons that aren't tailored.
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To that specific client.
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If they keep presenting your child with executive functioning exercises.
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When they really need support with sensory overstimulation, then your child is not benefiting much from this therapy.
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The therapist must use time wisely.
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And know your child's needs.
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If they are providing generic session content.
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Without customized experiences or modifications, then I would find a different provider.
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Lou can occupational therapist that had a plan in mind for months, and the pace was very slow.
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We had a healthy conversation about Luke schools and our needs as a family.
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I helped bring materials from home to support the sessions.
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But this therapist was not receptive to collaboration.
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Or making adjustments to our plans, even though they weren't aligned with what Luke needed.
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This provider was also out of network and costing us a small fortune.
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Please.
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Don't invest money into therapists who don't meet your child's needs, or don't collaborate with you.
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You're the expert on your child.
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You know, their specific needs, how they tick and what works for them.
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Keep searching until you find a therapist who is the right fit.
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And values personal connections with clients.
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Ultimately, we decided to switch to another OT provider.
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It's important to not waste time, money and your child's mental bandwidth on services that aren't beneficial.
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Another consideration is how they engage with the children in their care.
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Therapist who make a difference are trustworthy kind and gentle with their clients.
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They understand that these children learn differently.
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And just need a different approach to learning.
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The necessary skills.
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A big sign of an incredible therapist.
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Is they view their practice through a neurodivergent affirming lens.
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Uh, neurodivergent affirming perspective.
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Doesn't see a child as broken or needing to be fixed.
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Instead of focusing on deficits.
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Neuro divergent affirming therapists.
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And parents focus on the child's strengths.
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And how they can be used to help the child learn.
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So essentially this is a strengths-based approach to learning and living life.
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These therapists, aren't comparing the child to neuro-typical norms.
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They are embracing their differences and seeing them as potential superpowers.
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For instance, my husband was really fixated on computers from a young age.
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He built his own computer independently around age 12.
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His mom invested in that interest in computers, above other things.
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And now he has a great job in software engineering.
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Leverage a child's interests and strengths to encourage learning other content.
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You never know, it could become a career someday.
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Lou gloves, raccoons.
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He has stuffed reckons or configuring things and raccoons for different purposes.
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He calls them all.
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TT.
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There's homework, TT.
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Traveled TT.
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Outside T T inside T T.
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Little TT.
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Pillow T T an apron T T when he likes to cook or do art.
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I realized that if we used one of his small raccoon figurines during homework sessions, it increased his engagement.
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We let TT jump on uppercase letters and count numbers up to 20.
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It works really well.
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Most of the time.
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Sometimes TT has to go in the backpack.
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If he's distracting.
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But I adjust and find another creative way to practice homework with Luke.
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Maybe your child loves trucks.
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You could create a parking lot on a piece of paper and have them drive the truck onto the answers to math problems.
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Whatever the child's special interest.
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See how you can use it to make learning more exciting and enjoyable.
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Learning and traditional forms can be frustrating for neurodivergent learners.
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So let's find ways to do it differently.
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Remember.
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You don't have to do things the way they've always been done.
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The next of our characteristics, isn't surprising.
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We need to select providers that have strong credentials.
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They also need a reasonable amount of experience and are known to be extremely knowledgeable in the area of your child's needs.
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Luke has childhood apraxia of speech.
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General speech therapy is not.
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Beneficial for him.
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We have to find experienced SLPs that specialize in a Praxia.
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The techniques you use to encourage the motor planning he needs to speak needs specialized care.
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As parents.
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It's important to know our child's diagnosis.
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Well, And how it impacts them uniquely.
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So we can discern what services and providers will actually work for them.
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Finding knowledgeable providers leads us to our next characteristic.
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There are healthy boundaries and structure in place during your child services.
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The provider is well organized and prepared.
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They always have a plan being in maybe even a plan C if your child is struggling with the content.
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Or their self-regulation that day.
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The provider's flexible and easily adapts to whatever is happening in the session.
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They slide in plan B smoothly and adjust to the changing conditions.
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They don't become fixated on one plan.
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They know.
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If an activity isn't working, that it's important to make a change or scrap it and move on.
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Another indicator of a high quality provider.
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Is that they will guide and counsel you in the next steps of your child's journey.
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I didn't know about the child find process until our SLP mentioned it.
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Side note.
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Child find is a federal mandate under the individuals with disabilities.
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And education act that requires school districts to find and evaluate children who may need special education services.
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The law covers children from birth to age 21.
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Call your local school district and inquire about child.
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Find if you suspect your child needs special education services.
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Even if they are not yet school aged.
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There are lots of early childhood programs.
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That your child may qualify for for free.
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The same service provider was with Luke for two years.
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And guide us to new opportunities.
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Helped bump Luke up the OT, waitlist and consulted on his IEP for school.
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I learned so much information from her.
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That helped me become a stronger advocate for Luke.
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I'm a natural introvert, but throughout Luke special education journey.
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I've learned to ask tough questions.
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Be committed to constantly learning.
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And I've intentionally been networking with providers, teachers.
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And other parents of diverse learners.
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You never know what you will learn or what opportunities will become available when you build relationships with others.
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Relationship building brings us to our next point.
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High quality providers are happy to collaborate with other people involved in your child's developmental journey.
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Our private SLP communicated with Luke school-based SLP.
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By sharing documentation about Luke's progress and goals.
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She also provided resources.
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That were helpful to Luke in private therapy.
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So we could provide consistency between private speech.
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Uh, school, speech and learning at home.
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This private SOP, even consulted with Luke's classroom teacher.
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Having similar self-regulation strategies, visual supports.
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And accommodations present in all different contexts.
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Uh, including school, private services in home.
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We'll put your child's anxiety at ease ensuring a continuity of care that helps them build skills and confidence.
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Speaking of consistency across the board for our kids, our final characteristic for today.
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Is high quality providers, welcome parents into private sessions to carry over learning from the clinic setting to the home.
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They encourage parent observation to relay strategies and suggestions that can be implemented at home.
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When the family is actively using strategies from the private sessions.
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The child will make more progress at a faster rate.
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Then if practice only happens in the clinic.
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I understand that it may be difficult to be in a speech session.
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For example, when you have multiple children.
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You don't want the siblings distracting the therapy.
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But whenever Luke starts with a new provider, I try to coordinate schedules with my husband to be able to attend the first few meetings.
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There've been times that I've been able to get therapy appointments.
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Before or after school and work hours, which has allowed me to be present with Lukin session.
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Find what works for your family and try to poke your head in session.
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Whenever you can.
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Learning more techniques to use with your child will help improve the flow of your home environment as well.
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As you can tell I'm a big proponent of private early intervention services.
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When I was teaching in the elementary classroom.
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I saw too many students not receiving the therapy sessions.
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Required by their IEP S.
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There are many different reasons for that, including overwhelming case loads and not enough service providers.
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Even though I respect the school system.
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I cannot rely on them to make sure my child's needs are fully met.
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I have also found that there's better quality and more expertise in private therapy services.
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As always, these are just ideas to consider.
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Every family has different considerations and dynamics that impact what types of services.
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When, where and how they play out.
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Chicken to your insurance coverage and see what private services are available.
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And what's doable.
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Remember.
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You are resourced and resilient.
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Until next time.
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Ash.
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Hey there, before you go.
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Please go on iTunes and leave me a review.
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It will help more parents become resourced and resilient advocates for their children.
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Also, if you feel overwhelmed and unfamiliar with what services are available for your child and what to ask for in an IEP meeting, then visit my website, sparkeducationadvocacy.
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org.
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If you are ready to become your child's best advocate in IEP meetings and in social life experiences, I provide parent coaching.
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And IEP representation, both virtually and in person.
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I will help you break down the special education system and IEP documents in a relatable way so it's less complicated and more manageable.
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Together, we will defeat the inner voices of guilt, overwhelm, and frustration.
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You will be equipped with the knowledge and communication skills necessary to hold school staff accountable for meeting our children's educational needs.
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I'll also share the key questions and phrases I use in IEP meetings to get things done.
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If you're ready to take your seat as your child's expert at the IEP table, go to my website, ClarkEducationAdvocacy.
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org, and fill out the contact form.