Episode Transcript
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(00:03):
Welcome to the Parents Guide to Advocacy.
I'm your host, Ashley Hinkle.
My mission is to equip, empower, and support parents to become fierce advocates for their children's unique educational needs.
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Our goal as a community is to be resourced and resilient parents, continually growing, to be the safe place our children need.
(00:26):
If ending the feelings of overwhelm, guilt, and fear and frustration to embrace courage, perseverance, and empowerment.
Sound good to you? Then let's go.
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Hey friend.
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One thing that I know.
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Is that the special education process is long and confusing.
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Several of my friends joke about how thick their binders are when they carry them into IEP meetings for their children.
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The small nugget to take away here though, is to keep detailed records.
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The special education journey is a marathon, not a sprint.
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Conditions change quickly, whether it be your child's growth staff changes or adjustments to the curriculum.
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We have to be informed parents.
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Who are aware of our trials needs and rights to services.
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With the documentation to back up our requests.
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So what things should you save and add to a binder or your digital files? I save every assessment report, even if it is from a private therapist or provider.
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Uh, progress reports.
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Student work samples.
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Relevant medical information or diagnoses and research on your child's unique wiring or strong additions to your records.
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Think about what will help me get more services and support for my child.
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Then keep those things.
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These can be very helpful in applying healthy pressure on the IEP team.
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To provide a certain service or intervention for your child.
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When you come in with your own data from private practice or reputable academic research.
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It can be very influential.
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And yes.
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You can bring in outside research to support your claims or requests.
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I bring our research from the national Institute of health.
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And I H or N I M H for mental health.
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To insist that a child is entitled to a certain testing or services.
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When you bring out academic research to support your ask for.
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For instance more speech services.
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It is very difficult for the school to say no.
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And one more tip.
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If any requests you make is denied.
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Or they deny services or interventions.
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Say will you provide us with prior written notice on that decision with research support? Then the IEP team will have to formally deny your child services.
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Or interventions in writing and explain why.
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Just asking for prior written notice or what they call pwn can suddenly change the conversation to.
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Let's pursue testing or evaluations.
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For your given request.
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Now that we understand the power of recordkeeping.
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And using that documentation to get results.
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Let's look at early identification in the special education process.
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Every child's journey with extra needs is different and children can be identified as having challenges at different ages.
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Some children show signs early by missing those developmental milestones.
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Like walking and talking as toddlers.
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Other children's behaviors are more subtle and aren't noticed until they start carrying more responsibility and independence.
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Maybe in middle or high school.
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Regardless of when your child shows signs of struggling, seek a medical provider's guidance and ask for educational support at school.
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As parents, we are our children's first teachers.
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And experts and how they experienced the world.
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Our job is to notice the challenges and provide the best support possible.
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So if your child is experiencing difficulties in early childhood, Reach out to a developmental pediatrician.
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They will put you in contact with local support resources, like county, government based infants and toddlers programs.
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Programs like this will often provide speech and physical therapy for free in the child's home.
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Start investigating what services are available in your community.
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To support your child's developmental journey.
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When you agree to these local government based services, they develop an I F S P.
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Or individualized family service plan for your child.
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Since the child is so young, that document is focused on setting up the family with the support needed for the child to learn and acquire missing skills.
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When your child is ready to enter pre-K or pre-kindergarten.
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Contact the child find office at your local board of education.
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Share that your child has a suspected or confirmed disability, and this will start the IEP process.
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Remember IEP or individual education plans.
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If you haven't already.
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Start keeping data on your child.
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All of the things we mentioned that you should save in a binder or in digital form.
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Should be happening now.
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Go back and see if there's any documentation you have saved.
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From previous years also.
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The key is to enter the first IEP meeting.
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Prepared and confident that you understand your child's unique needs and behaviors.
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The first meeting and the IEP process is the screening meeting.
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The purpose is for the IEP team to review data, to decide whether or not your child has a suspected disability.
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According to the individuals with disabilities education act and whether or not the school pursue the required testing to find out for sure.
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The screening meeting is important because it is your opportunity to make a strong first impression.
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You as the parent are representing your child.
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And if you aren't knowledgeable about the IEP process and what your child needs, then you won't be taken very seriously.
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Subconsciously, if you show up unprepared, confused, or treating it as anything less than a professional business meeting.
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The staff won't see you as a parent, they need to watch out for.
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And we want them to watch out for us.
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We want school staff to make sure our child gets their services.
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Even if time is constrained.
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The systems in place are overwhelmed and we have to advocate to make sure our children.
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Get access to the services that will help them succeed.
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When their case loads are overwhelmed and they need to cut some students speech services.
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We want them to skip over our kids.
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Because they know you will hold them accountable for any missed time.
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The screening meeting.
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Is the first opportunity to start building a relationship of respect and also holding school employees responsible for cutting corners or not providing adequate supports.
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We will get more into the delicate balance of creating collaborative relationships.
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And asking tough questions that keeps school staff on their toes.
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While also respecting each other.
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In future episodes.
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So back to the purpose of the screening meeting.
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It's to determine if your child needs educational, psychological, or developmental testing.
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If the IEP team.
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Nope.
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You are a vital part of this team.
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If the IP team decides to pursue testing.
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Then assessments will be scheduled in a followup meeting will happen within 60 days.
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Now notice, we're starting to talk about time blocks here.
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In the IEP process.
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The schools have to provide you with assessment results in different documentations within certain periods of time.
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I'm currently working on an IEP meeting timeline that will show parents.
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Exactly what those time markers are and what they are entitled to throughout the process.
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And it will be posted on my website shortly.
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After the 60 days you can expect to attend the next meeting in the IEP process.
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That's the eligibility meeting.
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As the parent bring any student work samples, research and private testing data that you may have to support design services and qualifications under idea.
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Which is the individuals with disabilities education act.
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I never leave home for an IEP meeting without all of your data and information.
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Not only does it show.
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Impressive credibility as a knowledgeable parent.
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But a piece of information in your files.
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I could be the key to your child receiving a service or support that they need.
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The school staff will review the assessments conducted.
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And provide recommendations on whether to write an IEP for the child or not.
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I don't mean to be cynical here, friends.
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But I've seen children who need IPS get denied in the pipeline many times.
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We can respect the school employees, but we aren't going to trust them with the power.
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For all of our child's educational decisions.
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I remember you're the head of the IEP team.
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You have a lot of power, especially when you know the law and when to enforce it.
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No, the IEP process, no special education law.
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And be ready to speak up and advocate for your child.
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You're the expert on your child and how they are uniquely wired.
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When you combine advocacy knowledge and the understanding of your child's unique needs.
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You will be unstoppable.
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You'll be able to create custom solutions.
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To your child's educational challenges.
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Knowledge is power and we have to equip ourselves to be successful.
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So if you feel that the assessment results are inaccurate or do not demonstrate an accurate reflection of your child's abilities.
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Then you can request an I E.
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Or an independent education evaluation.
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The I E requires the school district to pay for a third party.
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To evaluate your child at their expense.
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Yes.
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If you dispute the school's findings.
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They will have to pay for outside testing at no cost to you.
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Remember.
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Knowing these rules inside the special education system gives your child protection.
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And options for access.
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When the IEP team agrees that your child needs an IEP.
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We move on to the IEP draft meeting.
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I need to pause this right here.
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There are occasions when an IEP team.
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We'll slide a pre-written draft.
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And ask you to sign it right there at the eligibility meeting in an effort.
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Of convenience or saving your time.
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Yes, I'm doing air quotes.
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Whatever you do.
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Don't sign that generic draft.
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Insist on your right to the IEP draft meeting to occur within 30 days.
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Your child deserves a customized education plan.
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With modifications.
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And accommodations that match how they are uniquely wired.
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At my first IEP meeting for Luke the school staff had no idea that I was a former teacher in current advocate.
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They just knew me as Luke's mom.
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When one of the staff members said.
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Here's an IEP to sign for Luke and we can get the ball rolling now.
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I thought to myself.
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Yeah, you're funny.
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Did this joke or really think I would sign a document for my child that I had not even read.
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Don't trust that everything you asked for will be in the IEP.
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Go back and proofread it before signing.
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I've had instances where we have decided on actions at the IEP table.
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And they didn't make it into the document.
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When I sent an email to remind the IEP team that a particular service was given to Luke, and it wasn't included in the IEP.
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Then they got it right away.
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Never forget if it is not written in the IEP, then it didn't happen.
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Don't let anyone tell you.
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Oh, it's fine.
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I added it to the meeting notes.
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Because those aren't legally binding.
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The legal document that gives you the most protection is the IEP.
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Always go over this document with the fine tooth comb.
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I politely told the IEP team.
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I would like to exercise my right to an IEP draft meeting within 30 days.
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I would also like to take this draft to my private speech therapist.
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To consult on the proposed goals, services, accommodations, and modifications.
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So we can co author this document for Luke.
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If you have a private support team.
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Always ask them to consult on your child's IEP.
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They will catch things that you may not see that are specific to their subject matter expertise, like speech physical therapy or occupational therapy.
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Another tip to be taken seriously by the IEP team.
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Is to carry your notes in a notebook and leave it open on the table as you speak.
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Let them see you referring back to it and making additional notes.
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The IEP team at my son's school asks me now.
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Is there anything else you want to discuss in your notes? Because I bring that same butterfly notebook to every meeting.
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Sometimes they seem a little anxious as they watch me.
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Right.
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Who knows, maybe they're wondering what is she writing down? Now you are sending the message that you're informed.
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Involved in documenting what is happening.
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Okay.
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Back to the IEP meeting pathway.
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Let's say the 30 days has passed.
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You've consulted with private service providers and it's draft time.
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At the draft meeting, have all of your data and records with you.
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You're going to keep hearing me repeat that.
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If you have recommendations from outside professionals, share them.
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Request to add accommodations or modifications.
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To what has been proposed by the school.
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I find that this section, which is the supplemental aids and services area of the IEP document needs the most review and customization.
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Your job here as the parent.
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Is to add details, request supports.
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And provide evidence or research to bolster or strengthen your child's IEP.
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You can help write accommodations, modifications, goals, and objectives.
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You are a coauthor of this IEP document.
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If anyone at the table tries to prevent you from being a co-author.
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Remind them that they are blocking your legal right to participate.
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As an equal member of the IEP team.
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I'm sure they'll back off a little bit after that.
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I hope that the IEP team is eager to collaborate and bolster your child's IEP with you.
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But be mindful that each person at that table has different interests.
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In addition to educating your child.
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The general education teacher may not mention that the special educator has not met your child service hours.
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For fear of tension in the workplace.
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Or the principal may feel pressure about not having adequate resources.
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And may therefore hold back or refuse to approve services.
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Another tip here.
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Legally the IEP team cannot deny your child is service or support.
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Based on the reason, lack of funds.
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I'll link to a great article from understood.org
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in the show notes.
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That Cher's 10 smart responses for when the school cuts or deny services.
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All of their responses are supported by special education law.
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So you will have very strong comebacks that will be difficult to counter.
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Many members of the IEP team feel handcuffed in some way by the rules in place.
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Politics within the school or district the lack of resources or inadequate staffing.
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The goal is to balance your communication with respect.
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While also holding them responsible.
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You want to get the team talking, sharing information and opening up to collaboration.
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Instead of siloing off on their own.
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Often the IEP team is not communicating as fluidly as they should about student needs.
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Uh, busy schedules and overwhelmed.
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Caseload's don't help.
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But conflict with parents is one of the triggers that can shut down any hope of healthy problem solving.
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And decision-making.
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So we want to be intentional and patient.
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With these relationships.
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We don't want any doors to be closed with ourselves and our children on the outside.
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Back to the draft.
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After meeting the draft IEP thoroughly.
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Consulting your private therapy providers.
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And making some notes about what accommodations and modifications.
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You would like to see in the IEP.
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Bring all of this information to the IEP meeting.
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Allow the IEP team to walk you through each section of the draft.
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Speak up and contribute the information you have and anything you would like to add as an author of the IEP.
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Pay particular attention to the supplementary aids and services section.
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Because that is where most of your child's needs will be met.
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As the meeting comes to a close.
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Requests that they send you the revised draft, including your additions to the IEP for you to review.
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Then take a couple of days to review the changes.
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And sign it when you're ready.
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If you're not comfortable with the changes or draft at this point.
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Share that with the team and don't sign the document.
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You can proceed on your own or hire an advocate to help smooth out the process.
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Never sign the IEP, unless you're confident in what is being provided.
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Assuming you signed the draft.
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It begins to take effect immediately.
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Your child will begin receiving their supports in the classroom, speech services, reading interventions, or whatever the IEP team decided on in the last meeting.
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It's important to know that the IEP is a legally binding document.
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And the school staff are responsible for providing all of the educational support, documented.
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IEP.
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These are also fluid documents that can be updated at any time.
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Also, you have the ability as the parent to call an IEP meeting at any point.
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If your child isn't meeting goals.
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By the end of the second quarter, you could call an IEP meeting to see if more supports are needed.
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If different strategies should be implemented.
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Or if the goals should be modified.
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If certain behaviors arise, it may be beneficial to call an IEP meeting, to create a behavior plan.
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If there are any obstacles impacting your child's academic experience or daily functioning call an IEP meeting.
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If things are going smoothly and no adjustments are needed to the IEP.
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Then the next meeting is the annual or review.
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The annual review meeting is used to review all testing data.
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Student progress and other relevant information to update the IEP.
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For the following school year.
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This will happen each school year, as long as your child has an active IEP.
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For the annual review, you will collect all of the same types of information and research you did for the IEP draft.
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This meeting will be important in making any adjustments needed to the IEP.
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Based on their current educational and developmental performance.
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Bring any new information from private services.
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Or academic research to support your child's needs.
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As our children learn and grow new strengths and needs may emerge.
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Our job at the annual review is to keep up with their changing development and make sure the supports in place are still effective.
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If not, we need to adjust the IEP and possibly add or introduce different services or supports.
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When the child is doing well as supports that are in place, fight to keep them.
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If services and supports are working, they should be continued.
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Sometimes schools will try to remove supports because a child is showing improvement.
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But that is exactly why the services, accommodations and modifications should stay in place.
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The school may determine if your child qualifies for extended school year services at this meeting also known as ESY.
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If your child is eligible, they will receive summer educational support, like speech therapy or academic programs in the local public schools at no cost to you.
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ESY is designed to continue special education support.
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So there's no summer loss of learning or acquired skills.
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If your IEP team has not mentioned ESY.
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I ask if your child qualifies.
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The last stage in the IEP meeting pathway.
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Is the reevaluation meeting.
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Which occurs every three years.
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At this meeting, your child is reassessed to determine if they are still eligible for an IEP.
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Your preparation is the same as the previous IEP meetings.
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Bring all relevant data and academic research to support your child's current educational performance.
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If the IEP team tries to remove any support or service, make sure that the data confirms that this is a helpful decision for your child.
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The IEP team may say that a support.
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Or the IEP itself is only required if your child's condition impacts their education.
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Pay close attention to the word education.
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in this context.
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Legally, it means much more than sitting at a desk doing classwork.
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A child's education.
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Maybe impacted by anything happening on school grounds.
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And also factors that inhibit a child's ability to focus on schoolwork, like lack of sleep due to their disability.
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The IEP should ensure that your child has an equitable educational experience.
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We acknowledged that they may not be starting at the same place as their peers and changes must be made to adjust the imbalances.
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To allow access to FAPE.
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A free and appropriate public education.
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Keep equity in mind, as you continue advocating for your child.
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At the tri annual re-evaluation meeting.
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Ask yourself, does this plan adjust the imbalances to give my child appropriate access to learning? Uh, socialization.
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And the educational experience.
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So.
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That was a lot.
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I hope you had a notebook.
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You've made it though.
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Through.
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The entire IEP meeting pathway.
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If you're starting this journey with a younger child.
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This three-year cycle.
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May repeat a few times in your child's educational journey.
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Stay prepared, resourced and resilient.
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If you have any questions about the content shared today? Contact me via my website.
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Spark education, advocacy.org.
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I would love to hear from you about your unique experience in special education.
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Until next time.
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Ash.
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Hey there, before you go.
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Please go on iTunes and leave me a review.
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It will help more parents become resourced and resilient advocates for their children.
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Also, if you feel overwhelmed and unfamiliar with what services are available for your child and what to ask for in an IEP meeting, then visit my website, sparkeducationadvocacy.
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org.
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If you are ready to become your child's best advocate in IEP meetings and in social life experiences, I provide parent coaching.
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And IEP representation, both virtually and in person.
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I will help you break down the special education system and IEP documents in a relatable way so it's less complicated and more manageable.
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Together, we will defeat the inner voices of guilt, overwhelm, and frustration.
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You will be equipped with the knowledge and communication skills necessary to hold school staff accountable for meeting our children's educational needs.
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I'll also share the key questions and phrases I use in IEP meetings to get things done.
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If you're ready to take your seat as your child's expert at the IEP table, go to my website, ClarkEducationAdvocacy.
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org, and fill out the contact form.