PH Insights

Guests:

Scott E. Olitsky, MD, MBA, Global Center of Excellence outreach director, Cure HHT;

Marla Olitsky, PH and HHT patient of over 20 years;

Monica Penaranda, PH and newly diagnosed HHT patient

On this episode of PH Insights, guest host Scott Olitsky explores the connection between pulmonary hypertension and hereditary hemorrhagic telangiectasia. Olitsky, along with guests Marla Atkins and Monica Penaranda, discusses the sign...

Guests: Abby Sickles, program manager, Patient & Caregiver Programs and Marcie McGregor, PH patient and PHA Support Group Leader

In this episode of PH Insights, guest host Abby Sickles welcomes Marcie McGregor to discuss her experience as a PHA support volunteer. Marcy shares her personal journey with pulmonary hypertension, the impact of peer support and the importance of community in navigating a chronic illness. They dive in...

Guest: Abby Sickles, program manager, Patient and Caregiver Programs, Pulmonary Hypertension Association

In this episode of PH Insights, Abby Sickles discusses the various Pulmonary Hypertension Association support programs available to individuals affected by pulmonary hypertension. She shares insights into peer mentoring, support groups as well as resources for caregivers, emphasizing that no one has to navigate their PH journe...

Guest: Oksana A Shlobin, MD, medical director and pulmonary hypertension program director of education and outreach, Advanced Lung Disease and Transplant Program, Inova Fairfax Hospital

On this episode, PH expert Oksana Shlobin provides a detailed overview of sarcoidosis-related PH. She reviews common signs and symptoms, outlines treatment options and shares insight into the complexities of diagnosing and managing SAPH. Shlobin a...

Guest: Mitzi McIver-LaBarge, PHA Peer Mentor

On this episode, peer mentor Mitzi McIver-LaBarge shares her journey as a parent and caregiver following her daughter’s pulmonary hypertension diagnosis at 1 year old. In honor of Volunteer Appreciation Month, Mitzi discusses the importance of connection, the power of community and how volunteering with the Pulmonary Hypertension Association helped her find purpose and support. She als...

Guests:

Navneet Singh, MD, ScM, MBA

Assistant Professor of Medicine

Associate Fellowship Program Director for Research

Division of Pulmonary, Critical Care & Sleep Medicine

The Warren Alpert Medical School, Brown University

Christopher Mullin, MD, MHS

Assistant Professor of Medicine, Clinician Educator

Director of the CTEPH Program;

Associate Director of the Rhode Island Hospital Pulmonary Hypertension Center 

The Warren Alpe...

Guest: Naomi Habib, MD, co-director Pulmonary Hypertension Program at Arizona Pulmonary Specialists

On this episode, Naomi Habib, co-director of the Arizona Pulmonary Specialists PH Center of Excellence and recent PH Community Workshop-Phoenix co-chair, shares key takeaways from her experience and explains why these workshops benefit both patients and health care providers.

The Pulmonary Hypertension Association’s PH Community Wo...

Guest: Colleen Connor, PHA Board of Trustees, PH patient and advocate

The Pulmonary Hypertension Association accredited care center network was established over a decade ago to raise the quality of pulmonary hypertension care and expand patient access to specialized care and resources.

In this episode, Colleen Connor shares the importance of PHA-accredited care centers, their approach to building your PH care team and its impact ...

Guest: Mrinalini Krishnan, MD, FACC, regional director of pulmonary hypertension, MedStar Heart and Vascular Institute

In this episode of PH Insights, Mrinalini Krishnan discusses pulmonary hypertension due to left heart disease, the most common cause of PH.  Approximately 60% of people with LHD develop PH. Krishnan highlights the risk factors and signs and symptoms of PH-LHD that you should monitor over time. She also provides a...

Guest: Akshay Muralidhar, MD, co-director Pulmonary Hypertension Program at Arizona Pulmonary Specialists

In this episode, Akshay Muralidhar provides an overview of pulmonary arterial hypertension and how a PAH diagnosis may affect a person’s daily activities and quality of life. He also shares the benefits of exercise and how a safe regimen can improve cardiovascular health and lead to reduced symptoms. Muralidhar provides a summa...

Guest: Michele Freeman, licensed professional counselor and PHA support group leader.

In this episode, Freeman provides an overview of the impact of stress and trauma to a person’s body while living with a chronic illness. She then leads listeners through a mindful meditation exercise designed to help manage stress. Additionally, she shares information about the importance of supportive care and why those in the PH community shou...

Nadine Al-Naamani, assistant professor of medicine with the Division of Pulmonary, Allergy and Critical Care at University of Pennsylvania and past recipient of the PHA/ATS Research Fellowship and the Aldrighetti Research Award for Young Investigators; incoming Steering Committee Chair of the PHA Registry

Matthew R. Lammi, associate professor of medicine of Johns Hopkins University and current Research Committee Chair and PHA Board...

Guests:

Todd Bull, recipient of 2006 PHA/ATS Research Fellowship Award and incoming Scientific Leadership Council Chair, past Chair of the SLC Research Committee and Rachel Hopper, Associate Director, Pulmonary Hypertension Program, Lucile Packard Children’s Hospital Stanford recipient of Robyn Barst Pediatric PH Research and Mentoring Award

In this episode, Todd Bull, professor of medicine and director of University of Colorado ...

Guest: Paul Critser, MD, PhD; Pediatric Cardiologist, Heart Institute Cincinnati Children's Hospital Medical Center

In this episode, Critser provides an overview of Pediatric Pulmonary Hypertension and how it may differ from adults living with PH. Critser shares the unique challenges a child living with PH may face from diagnosis to long-term management. He shares his insights on the signs a parent should look for, the latest tre...

In this episode of the PH Insights podcast, Angela Michelle and Mark Porter share their personal journeys with CTEPH and the pivotal decision to undergo pulmonary thromboendarterectomy surgery. They offer candid insights into their diagnoses, the challenges they faced and the life-changing impact of PTE surgery. Listeners will learn about the emotional and physical toll of CTEPH, the decision-making process behind pursuing surgery ...

Guests: Jordan Whitson, MD, transplant pulmonologist, Duke Pulmonary and Specialty Services Clinic and Diane Ramirez, PHA Board of Trustees member and heart and lung transplant recipient

Transplantation may be a treatment option reserved for patients who are not improving on medical therapies. While transplantation can prolong survival, improve quality of life and offer a potential cure for pulmonary hypertension, it also carries...

PHA’s Advocacy and Treatment Access program manager, Jaeger Spratt, guest-hosts this episode for Open Enrollment Season. They invited Kim Everett, a pulmonary arterial hypertension and lupus patient, to talk about her experiences with insurance over the years and share how current Medicare changes have improved her prescription experience. Guest Amy Niles, chief mission officer at the PAN Foundation, tells listeners everything you ...

Guests: Jeff Spiwak, a patient with pulmonary hypertension and interstitial lung disease; and Ahmad Abu Homoud, MD.

In this episode of PH Insights, Spiwak, a pulmonary hypertension and interstitial lung disease patient, joins Hamoud to discuss the impact of PH-ILD on daily life and the importance of exercise or physical activity to manage the condition. Homoud and Spiwak share the importance of support and maintaining a positive ...