PH Insights

Guests: Jenna Olitsky, PAH and HHT patient, PHA’s Patient and Caregiver Education Committee member

Jolie Lizana, PAH patient and advocate

Meghan M. Cirulis, MD, MS, medical director, Intermountain Health Pulmonary Hypertension Center, assistant professor, pulmonary and critical care medicine, Intermountain Medical Center, adjunct assistant professor, University of Utah Pulmonary and Critical Care.

In this episode, new show hosts ...

Guest Hosts: Sarah Smith, PHA’s director of fundraising events, and Courtney Durham, PHA’s director of individual giving.

In this episode, PHA fundraising team members Sarah Smith and Courtney Durham discuss the role and impact of charitable giving. They highlight the value of broad-based donor support, how fundraising events like the O2breathe Walk series empower community members to make a significant impact, and preview upcomi...

Guest: Jaeger Spratt, MSW, PHA’s advocacy and treatment access program manager

In this episode, Jaeger Spratt shares what you need to know to prepare for the 2026 open enrollment period. They explain how cuts to Medicaid and other social safety net programs in the recently passed budget bill will affect the PH community and what to expect from 2026 Health Insurance Marketplace plans.

Listen now to learn how to navigate potential ...

Guests: Traci Stewart, RN, MSN, CHFN, PHA Board of Trustees chair and PH nurse coordinator at the Heart and Vascular Center of University of Iowa;

Guest stories from: Doug Taylor, PHA Board of Trustees member, support group leader and PH patient; Kimberlee Miller, PH patient; Amy Burant, PH patient; Casey Perez, PH patient; Priya Bavalia, PH community supporter; Shirley Duggan, family member of person with PH and bereaved family me...

Guests: James H. Tarver III, MD, cardiologist at AdventHealth Medical Group – Central Florida Division; and Nicole Creech, PHA Board of Trustees member, SCD and PH patient, and support group leader

On this episode of PH Insights, guests Nicole Creech and James Tarver explore the connection between sickle cell disease and pulmonary hypertension. They discuss the complexities of diagnosis, the challenges faced by patients and the r...

Guests: Patti Tripathi, ATS Breathe Easy host; Susan Jacobs, RN, MS, research nurse manager at Stanford University; and Jaeger Spratt, MSW, advocacy and treatment access program manager

The Supplemental Oxygen Access Reform Act is pending legislation that would establish requirements for the payment and provision of supplemental oxygen and related services under Medicare. But how would this legislation affect patients, and how is t...

Guest: Keisha Jackson, PH patient and support group member

In this episode, we celebrate PH Insights’ one-year anniversary with Keisha Jackson, who shares her inspiring journey of resilience while living with pulmonary hypertension, scleroderma and lupus. She reflects on the daily challenges of managing her health, raising a family and coping with the often-unseen toll these conditions take on her personal and social life.  

Jackso...

Guests: Jaeger Spratt, advocacy and treatment access program manager; Amy Burant, pulmonary arterial hypertension patient of 12 years; and Colleen Connor, PH patient of 18 years.

This episode of PH Insights is the second in a two-part series about the Supplemental Oxygen Access Reform Act, created in collaboration with the American Thoracic Society’s Breathe Easy podcast. Visit “How the SOAR Act Can Keep Patients' Oxygen Flowing” t...

Guests: Elise Whalen, DNP, MSN, APRN, FNP-C, CPN, nurse practitioner at Texas Children’s Hospital, assistant professor at Baylor College of Medicine and PHA PACE committee member; Jess MacLean, MSN, FNP-BC, Children's Hospital Colorado, Heart Institute - Pulmonary Hypertension

Emergencies don’t wait. For people living with pulmonary hypertension, preparedness isn’t just peace of mind — it is essential. In this episode, Elise Whal...

Guest: Jenna Olitsky, PAH and HHT patient, PHA’s Patient and Caregiver Education Committee member

On this episode of PH Insights, Jenna Olitsky shares five travel tips she’s learned while living with pulmonary arterial hypertension and hereditary hemorrhagic telangiectasia. She discusses the unique challenges a person with rare illness faces, including navigating accessibility and managing her medications across time zones and inte...

Guests:

Scott E. Olitsky, MD, MBA, Global Center of Excellence outreach director, Cure HHT;

Marla Olitsky, PH and HHT patient of over 20 years;

Monica Penaranda, PH and newly diagnosed HHT patient

On this episode of PH Insights, guest host Scott Olitsky explores the connection between pulmonary hypertension and hereditary hemorrhagic telangiectasia. Olitsky, along with guests Marla Atkins and Monica Penaranda, discusses the sign...

Guests: Abby Sickles, program manager, Patient & Caregiver Programs and Marcie McGregor, PH patient and PHA Support Group Leader

In this episode of PH Insights, guest host Abby Sickles welcomes Marcie McGregor to discuss her experience as a PHA support volunteer. Marcy shares her personal journey with pulmonary hypertension, the impact of peer support and the importance of community in navigating a chronic illness. They dive in...

Guest: Abby Sickles, program manager, Patient and Caregiver Programs, Pulmonary Hypertension Association

In this episode of PH Insights, Abby Sickles discusses the various Pulmonary Hypertension Association support programs available to individuals affected by pulmonary hypertension. She shares insights into peer mentoring, support groups as well as resources for caregivers, emphasizing that no one has to navigate their PH journe...

Guest: Oksana A Shlobin, MD, medical director and pulmonary hypertension program director of education and outreach, Advanced Lung Disease and Transplant Program, Inova Fairfax Hospital

On this episode, PH expert Oksana Shlobin provides a detailed overview of sarcoidosis-related PH. She reviews common signs and symptoms, outlines treatment options and shares insight into the complexities of diagnosing and managing SAPH. Shlobin a...

Guest: Mitzi McIver-LaBarge, PHA Peer Mentor

On this episode, peer mentor Mitzi McIver-LaBarge shares her journey as a parent and caregiver following her daughter’s pulmonary hypertension diagnosis at 1 year old. In honor of Volunteer Appreciation Month, Mitzi discusses the importance of connection, the power of community and how volunteering with the Pulmonary Hypertension Association helped her find purpose and support. She als...

Guests:

Navneet Singh, MD, ScM, MBA

Assistant Professor of Medicine

Associate Fellowship Program Director for Research

Division of Pulmonary, Critical Care & Sleep Medicine

The Warren Alpert Medical School, Brown University

Christopher Mullin, MD, MHS

Assistant Professor of Medicine, Clinician Educator

Director of the CTEPH Program;

Associate Director of the Rhode Island Hospital Pulmonary Hypertension Center 

The Warren Alpe...

Guest: Naomi Habib, MD, co-director Pulmonary Hypertension Program at Arizona Pulmonary Specialists

On this episode, Naomi Habib, co-director of the Arizona Pulmonary Specialists PH Center of Excellence and recent PH Community Workshop-Phoenix co-chair, shares key takeaways from her experience and explains why these workshops benefit both patients and health care providers.

The Pulmonary Hypertension Association’s PH Community Wo...

Guest: Colleen Connor, PHA Board of Trustees, PH patient and advocate

The Pulmonary Hypertension Association accredited care center network was established over a decade ago to raise the quality of pulmonary hypertension care and expand patient access to specialized care and resources.

In this episode, Colleen Connor shares the importance of PHA-accredited care centers, their approach to building your PH care team and its impact ...

Guest: Mrinalini Krishnan, MD, FACC, regional director of pulmonary hypertension, MedStar Heart and Vascular Institute

In this episode of PH Insights, Mrinalini Krishnan discusses pulmonary hypertension due to left heart disease, the most common cause of PH.  Approximately 60% of people with LHD develop PH. Krishnan highlights the risk factors and signs and symptoms of PH-LHD that you should monitor over time. She also provides a...