PH Insights

Host: Jenna Olitsky, PAH and HHT patient, PHA’s Patient and Caregiver Education Committee member.

Guest: Allison Dsouza, a PAH patient, nurse and PHA Board member.

On this episode of PH Insights, Allison Dsouza discusses her journey pursuing a career in nursing after being diagnosed with pulmonary arterial hypertension as a teenager.

Together, Olitsky and Dsouza explore how Allison has balanced treatment, managed symptoms and ...

Guests:

Debbie Charlton, Scleroderma patient, advocate and support groupleader

Karen Brown, Scleroderma patient and advocate

On this episode of PH Insights, host Jolie Lizana discusses scleroderma with guests Debbie Charlton and Karen Brown, who are both patients and advocates.

They share their firsthand experiences living withscleroderma, its symptoms and the challenges to receiving an accurate diagnosis.

Brown and Charlton highlight t...

Guests: Steven H. Abman, MD, professor, Department of Pediatrics, director, Pediatric Heart Lung Center University of Colorado School of Medicine and Children's Hospital Colorado

Greg Elliott, MD, MACP, professor of medicine, University of Utah, emeritus professor of medicine, Intermountain Health

Karen A. Fagan, MD, chair, Department of Medicine, interim chair, department of family and community medicine, professor of medicine, The ...

Guest: Neal McDermott, pulmonary arterial hypertension and scleroderma patient

On this episode of PH Insights, Neal McDermott, a patient navigating scleroderma and pulmonary arterial hypertension, shares his journey from diagnosis to managing multiple chronic illnesses. McDermott’s story offers hope and encouragement, emphasizing resilience and the potential for improved quality of life through treatment and transplant evaluat...

Guests: Steven H. Abman, MD, professor, Department of Pediatrics, director, Pediatric Heart Lung Center University of Colorado School of Medicine and Children's Hospital Colorado

Greg Elliott, MD, MACP, professor of medicine, University of Utah, emeritus professor of medicine, Intermountain Health

Karen A. Fagan, MD, chair, Department of Medicine, interim chair, department of family and community medicine, professor of medicine, The ...

Guest: Michele Freeman, licensed professional counselor and PHA support group leader.

On the next episode of PH Insights, we continue our focus on mental health awareness with licensed professional counselor and support group leader Michele Freeman. Freeman discusses the mental health challenges faced by those living with pulmonary hypertension and their caregivers.

She explores the differences between depression and anxiety, the ...

Guest: Dan Lier, Amyloidosis patient and founder of Elevate Amyloidosis and co-author, The Rare Disease Playbook

On this episode of PH Insights, host Jolie Lizana speaks with Dan Lier, a rare disease patient and advocate. Lier shares his inspiring journey navigating an amyloidosis diagnosis and discusses how changing his mindset and choosing positive thoughts aided in overcoming the challenges of living with a rare disease.

Lizana ...

Guest: Dawn Grandell, PAH and Sjögren’s patient, PHA peer mentor and support group leader

Sjögren’s is an autoimmune disease that can lead to PH due to damage caused to the lung tissue. On this episode of PH Insights, peer mentor and support group leader Dawn Grandell shares her inspiring journey of living with pulmonary arterial hypertension and Sjögren's while discussing the importance of advocacy, support, and findin...

Host: Jolie Lizana, PAH patient and advocate

Guests: Matt Granato, LL.M., MBA, PHA's President and CEO; Kevin Heyen, PHA's Vice President, Development & Industry Relations; Jaeger Spratt, MSW, PHA’s advocacy and treatment access program manager; Eric Borstein, PAH patient and advocate; and Roopa Radhakrishnan, PH patient and advocate

On this episode, the Pulmonary Hypertension Association takes you inside the rooms where ...

Host: Jolie Lizana, PAH patient and advocate, PHA’s Patient and Caregiver Education Committee member

Guest: Mary Jo Farmer, MD, PhD; board certified pulmonary, critical care and sleep medicine physician, Mass General Brigham- Salem Hospital, associate professor of medicine at Tufts University School of Medicine

Sleep-disordered breathing is far more common in pulmonary hypertension than most people may realize. On this episod...

Host: Meghan M. Cirulis, MD, MS, medical director, Intermountain Health Pulmonary Hypertension Center, assistant professor, pulmonary and critical care medicine, Intermountain Medical Center, adjunct assistant professor, University of Utah Pulmonary and Critical Care.

Guest: Roberto Bernardo, MD, MS, ATSF, clinical assistant professor, Adult Pulmonary Hypertension Service, Vera Moulton Wall Center for Pulmonary Vascular Disease, Di...

Host: Jenna Olitsky, PAH and HHT patient, PHA’s Patient and Caregiver Education Committee member

Guest: Silvana Saleme Mooney, MSN, APRN, nurse practitioner with the Pulmonary Vascular Disease Program at the Medical University of South Carolina

On this episode, host Jenna Olitsky, a PAH patient and estate planning attorney, and nurse practitioner Silvana Mooney discuss how advance health care directives, health care power of ...

Guest: Katharine Clapham, MD, assistant professor of cardiology and co-director of the Pulmonary Hypertension and Dyspnea Program, University of Utah 

On this episode, host Megan Cirulis sits down with cardiologist Katherine (Katie) Clapham to discuss methamphetamine-associated pulmonary arterial hypertension. They explore the increasing prevalence of methamphetamine use, particularly in the western United States, and its seve...

Guests: Paul Critser, MD, PhD, pediatric cardiologist, Heart Institute Cincinnati Children's Hospital Medical Center; and Priya Pillutla, MD, associate chief, Division of Cardiology, director, Adult Congenital Heart Disease Clinic chair, Pharmacy and Therapeutics Committee Harbor-UCLA Medical Center

On this special episode, cardiologists Paul Critser and Priya Pillutla, discuss congenital heart disease associated pulmonary hyperten...

Guest Host: Courtney Durham, PHA’s director of individual giving

Guests: Judy and Ed Simpson, PHA co-founders

On this episode of PH Insights, Courtney Durham, PHA’s director of individual giving, speaks with PHA co-founders, Judy and Ed Simpson. They discuss the challenges and milestones of establishing PHA, the importance of connecting patients with physicians, and the significant advancements in pulmonary hypertension...

Host: Jolie Lizana, PAH patient and advocate

Guests: Debbie Kittel, BSN, RN, CCRN, nursing program manager, PAH program, Richard M. Ross Heart Hospital; and Tiffani Brown, PH patient, Ohio State University-Columbus support group co-leader.

Just in time for the holidays, the Pulmonary Hypertension Association shares the extraordinary impact of a simple, thoughtful gift. Host Jolie Lizana talks with Debbie Kittel, a PH nurse, and Ti...

Guest Host: Elizabeth Joseloff, PhD, vice president, Quality Care and Research, Pulmonary Hypertension Association

Guests: Ripla Arora, PhD, developmental geneticist and associate professor, Michigan State University; and Katelyn Enzer, MD, assistant professor of pediatrics, University of Colorado

On this episode of PH Insights, we highlight the women innovators who are transforming how we understand and treat pulmonary hypertensi...

Hosts: Jenna Olitsky, PAH and HHT patient, PHA’s Patient and Caregiver Education Committee member; Jolie Lizana, PAH patient and advocate; Meghan M. Cirulis, MD, MS, medical director, Intermountain Health Pulmonary Hypertension Center, assistant professor, pulmonary and critical care medicine, Intermountain Medical Center, adjunct assistant professor, University of Utah Pulmonary and Critical Care.

In this episode, hosts Liz...

Guests: Jenna Olitsky, PAH and HHT patient, PHA’s Patient and Caregiver Education Committee member

Jolie Lizana, PAH patient and advocate

Meghan M. Cirulis, MD, MS, medical director, Intermountain Health Pulmonary Hypertension Center, assistant professor, pulmonary and critical care medicine, Intermountain Medical Center, adjunct assistant professor, University of Utah Pulmonary and Critical Care.

In this episode, new show h...