Ep28 Pulse 116: Growth Hormone Pioneer, Advocacy Wins, TREND Report on Behavior, Job Announcement

The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 

Events

Hotel Reservations: Arizona Grand Resort & Spa - Reservations - Room Availability Search

Hotel Locator: PWSA (Prader-Willi Syndrome Association) | 2025 International Prader-Willi Syndrome Conference - 6/24/25 - 6/28/25 - Phoenix, AZ | Tempe | Advanced Reservation Systems

Home - 2025 United in Hope PWS Conference

For info on sponsorship opportunities: [e-mail]

Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA

Prader-Willi Hot Stove | Powered By GiveSmart

Donate to Diamonds & Denim 2025

PWSA Fundraising Pages - Campaign

Rare Disease Day 2025 – Join Us!

Spotlight on Hope

Spotlight on Hope: Cam, PWS Warrior - Prader-Willi Syndrome Association | USA

Share Your Story - Prader-Willi Syndrome Association | USA

PWS United

PWS United Podcast - YouTube

Advocacy

Victory for the PWS Community in Illinois - Prader-Willi Syndrome Association | USA

Illinois General Assembly - Bill Status for SB1651

Illinois General Assembly - Bill Status for HB2541

[e-mail]

Rare Disease Advisory Council - Frequently Asked Questions - National Organization for Rare Disorders

Find your State Legislator: p2a.co/O6Zyn8Q

Family Support

Steps Toward More Independent Living - Prader-Willi Syndrome Association | USA

Ask Nurse Lynn - Prader-Willi Syndrome Association | USA

Share Your "PWS in Adulthood" Story - Prader-Willi Syndrome Association | USA

Research

TREND Report on PWS and Emotional and Behavioral Patterns: 2025_1_31_FINAL_PWS_Report_3.pdf

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