The latest in PWSA | USA events and PWS news in research, family support, and advocacy.
Events
United in Hope Conference
Home - 2025 United in Hope PWS Conference
Mural: 2025 PWS Conference Mural Photo Submission - Prader-Willi Syndrome Association | USA
For info on sponsorship opportunities: development@pwsausa.org
50th Anniversary
Journey of Hope Gala: PWSAUSA 50th Anniversary: Journey of Hope Celebration - Campaign
Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA
Other Events
BIPOC Listening Sessions: Listening Session: Prader-Willi Syndrome
Fundraisers
Prader-Willi Hot Stove | Powered By GiveSmart
Zahra's Night of Light - Campaign
PWSA Fundraising Pages - Campaign
Spotlight on Hope
Share Your Story - Prader-Willi Syndrome Association | USA
Advocacy
Call to Action for Illinois Families: Witness Slip
Illinois General Assembly - Full Text of HR0173
Family Support
Her Own Home with Family Nearby - Prader-Willi Syndrome Association | USA
Ask Nurse Lynn: Interventions for Rectal Picking - Prader-Willi Syndrome Association | USA
Ask Nurse Lynn - Prader-Willi Syndrome Association | USA
Share Your "PWS in Adulthood" Story - Prader-Willi Syndrome Association | USA
I Am Full – Stories for Jacob Book Club Discussion: dan_yashinsky@hotmail.com
Research
TREND Report: Gastrointestinal Issues in the PWS Community - Prader-Willi Syndrome Association | USA
Harmony Biosciences Initiates TEMPO PWS Study - Prader-Willi Syndrome Association | USA
Announcements/Resource Spotlight
Call for Nominations or Board of Directors
Community Publications - Prader-Willi Syndrome Association | USA
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