The latest in PWSA | USA events and PWS news in research, family support, and advocacy.
Awareness Topics
Nutrition in the PWS Family - Prader-Willi Syndrome Association | USA
Nutrition Discourse in the PWS Community - Prader-Willi Syndrome Association | USA
2025 DD Awareness Month: We’re Here All Year! – NACDD
Women in PWS: Moving Forward Together - Prader-Willi Syndrome Association | USA
What is neurodiversity? - Harvard Health
Neurodiversity and Prader-Willi Syndrome - Prader-Willi Syndrome Association | USA
United in Hope Conference
High-Level 2025 Conference Schedule
Home - 2025 United in Hope PWS Conference
Mural: 2025 PWS Conference Mural Photo Submission - Prader-Willi Syndrome Association | USA
For info on sponsorship opportunities: development@pwsausa.org
50th Anniversary
Journey of Hope Gala: PWSAUSA 50th Anniversary: Journey of Hope Celebration - Campaign
PWSA Memory: Vanja Holm's contribution to our knowledge of PWS - IPWSO
Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA
Events
Recognizing and Addressing Hyperphagia Early in Prader Willi Syndrome
Fundraisers
Zahra's Night of Light - Campaign
PWSA Fundraising Pages - Campaign
Spotlight on Hope
Share Your Story - Prader-Willi Syndrome Association | USA
Advocacy
Soleno Sibling/Family Member Stories: stories@soleno.life
Soleno Caregiver Photo & Story Release Form (for minor siblings) Feb 2025.docx
Soleno Adult Sibling Photo & Story Release Form Feb 2025.docx
Family Support
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I’m Jay Shetty host of On Purpose the worlds #1 Mental Health podcast and I’m so grateful you found us. I started this podcast 5 years ago to invite you into conversations and workshops that are designed to help make you happier, healthier and more healed. I believe that when you (yes you) feel seen, heard and understood you’re able to deal with relationship struggles, work challenges and life’s ups and downs with more ease and grace. I interview experts, celebrities, thought leaders and athletes so that we can grow our mindset, build better habits and uncover a side of them we’ve never seen before. New episodes every Monday and Friday. Your support means the world to me and I don’t take it for granted — click the follow button and leave a review to help us spread the love with On Purpose. I can’t wait for you to listen to your first or 500th episode!
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