On this episode we brought in Lynn Garrick, PWSA | USA's Medical and Research Coordinator and the woman behind Ask Nurse Lynn. We pulled three previous submissions to discuss on this episode, based on some common questions that families in the PWS community have. Nurse Lynn discussed when and why to start growth hormone, tips for helping your loved one with skin-picking issues, and what are GLP-1s and why they may or may not work on individuals with PWS.
Our Ask Nurse Lynn library is growing by the week! Please take a moment to look through those articles at Ask Nurse Lynn Archives - Prader-Willi Syndrome Association | USA
If you have a non-emergency medical question and would like a response from Lynn, please visit Ask Nurse Lynn - Prader-Willi Syndrome Association | USA
Research Study of the GLP-1 Tirzepatide: Looking for participants with PWS aged 18-26.
To take part in this research study or for more information, contact the Endocrine Research Team at EndocrineResearch@seattlechildrens.org or 206-987-2540
Download our Medical Alert Book: MedicalAlertsBooklet-GIChart-2022.pdf
Download our third edition Growth Hormone booklet: Growth-Hormone-booklet-third-Edition_FINAL.pdf
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