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April 22, 2025 45 mins

The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 

VYKAT XR Town Hall: Meeting Registration - Zoom

United in Hope Conference

Home - 2025 United in Hope PWS Conference

High-Level 2025 Conference Schedule Family Conference

High-Level 2025 Conference Schedule Professional Providers

For info on sponsorship opportunities: development@pwsausa.org

50th Anniversary

PWSA Memory: 1976_Vol-II-N1-Jan-1976.pdf

Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA

Events

Financial Security Webinar: Webinar Registration - Zoom

VYKAT XR Town Hall: Meeting Registration - Zoom

NC Hope United 5K & Family Fun Run - Campaign

Zahra's Night of Light Shines Bright! - Prader-Willi Syndrome Association | USA

Fundraisers

United We Brunch - Campaign

PWSA Fundraising Pages - Campaign

Spotlight on Hope

Spotlight on Hope Library

Share Your Story - Prader-Willi Syndrome Association | USA

Advocacy

PWS Awareness Month Proclamation Toolkit

advocacy@pwsausa.org

etowle@pwsausa.org

Family Support

Celebrating Occupational Therapy Month: How OT Builds Confidence, Comfort, and Skills for Life - Prader-Willi Syndrome Association | USA

Post a Message for Mother's Day - Prader-Willi Syndrome Association | USA

Ask Nurse Lynn: Hygiene Concerns and Solutions - Prader-Willi Syndrome Association | USA

Ask Nurse Lynn - Prader-Willi Syndrome Association | USA Submit your own non-emergency medical question

PWS Awareness Month - Prader-Willi Syndrome Association | USA

Research

Health Care Professionals Webinar: Recognizing and Addressing Hyperphagia Early in Prader Willi Syndrome

Prader-Willi Syndrome Clinical Scholarship Announcement - Prader-Willi Syndrome Association | USA

Request for Prader-Willi Syndrome Research Grant Applications - Prader-Willi Syndrome Association | USA

Announcements/Resource Spotlight

Find Your Voice: Advocating for PWS Health Care Webinar Series - YouTube

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