Ep42 Pulse 123: Awareness Ideas, Prader Silly, Adults with PWS Spotlights, In Memory of Jim Gardner

The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 

24 Hour Crisis Line: 941-312-0400

PWS Awareness Month - Prader-Willi Syndrome Association | USA

United in Hope Conference

Home - 2025 United in Hope PWS Conference

High-Level 2025 Conference Schedule Family Conference

Clinical and Scientific Program

High-Level 2025 Conference Schedule Professional Providers

50th Anniversary

PWSA Memory: 1995_Vol-XX-N1-Feb-1995.pdf

Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA

Events

The Zuzu Secret Novel for Elementary and Middle Grade - Beardies, Prader-Willis Syndrome, Baseball — Miriam Chernick - Author & Educator

Prader Silly: A Night of Rare Laughs - Campaign

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Fundraisers

Lyra Mills's fundraising page for Prader-Willi Syndrome Association

Filling Cups with PWS Awareness - Prader-Willi Syndrome Association | USA

United We Brunch - Campaign

PWSA Fundraising Pages - Campaign

Spotlight on Hope

Spotlight on Hope: Lydia and Dalyas Dreamers - Prader-Willi Syndrome Association | USA

Share Your Story - Prader-Willi Syndrome Association | USA

Advocacy

PWSA Advocates Represent Disability Needs and Rights in DC - Prader-Willi Syndrome Association | USA

PWS Awareness Month Proclamation Toolkit

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Family Support

Adults with PWS Advisory Board Spotlight: Conor Heybach - Prader-Willi Syndrome Association | USA

PWSA | USA Family Support Webinar: Creating Financial Security for a Loved One with PWS

Family Resource Program - Parents/Caregiver Focus Groups

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