Ep45 Pulse 124: Scoliosis Awareness, Conference App, Medicaid Expansion Call to Action, Livestream

The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 

24 Hour Crisis Line: 941-312-0400

Scoliosis Awareness - Prader-Willi Syndrome Association | USA

United in Hope Conference

Home - 2025 United in Hope PWS Conference

How-to-Download-the-2025-United-in-Hope-PWS-Conference-Mobile-App.pdf

2025 United in Hope Welcome Packet

2025Family-Agenda-2.pdf

2025ClinicalScientific-Agenda.pdf

2025ProfessionalProviders-Agenda.pdf

2025Adults-with-PWS-Agenda.pdf

50th Anniversary

PWSA Memory: 1990_Vol-XVI-N1-Jan-Feb-1990.pdf

Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA

Events

Prader Silly: A Night of Rare Laughs - Campaign

Fundraisers

Hunter Lens Golf Tournament - Campaign

Hummus, Tahini, and PWS Awareness - Prader-Willi Syndrome Association | USA

United We Brunch - Campaign

PWSA Fundraising Pages - Campaign

Spotlight on Hope

Spotlight on Hope: Ada Thrives and Shines - Prader-Willi Syndrome Association | USA

Share Your Story - Prader-Willi Syndrome Association | USA

Advocacy

Help Expand Disability Services for PWS – Share Your Story - Prader-Willi Syndrome Association | USA

Family Support

Adults with PWS Advisory Board Spotlight: Abbott Philson - Prader-Willi Syndrome Association | USA

Family Resource Program - Parents/Caregiver Focus Groups

Family Resource Program - Sibling Focus Groups

Recruitment – SibTime II -English - Influents Innovations

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