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August 12, 2025 57 mins

On today’s episode, we welcome Destiny Pacha, Ed.D., the president of EmpowerED Solutions, an organization dedicated to providing educational consulting, IEP advocacy, and support for families and professionals navigating the complex needs of children with Prader-Willi syndrome (PWS) and other genetic disorders in school settings.

 

Dr. Pacha was a recent speaker at our United in Hope Conference and graciously offered to extend her discussion time with caregivers. She created a form for people to submit questions and then came onto the podcast to share those responses with our community. Topics included why or why not to disclose a PWS diagnosis, service requirements in relation to public vs private schools, the differences between modifications and accommodations in an IEP, special diplomas, how to know if an IEP is being implemented, the differences between language therapy and speech therapy, and more. This discussion is a wealth of information for anyone with a child with PWS in school. Listen to this episode to learn more about IEP and school support, along with an upcoming training for parents from Dr. Pacha, “Empowering PWS Families in IEP Meetings.”

 

LINKS

Empowering PWS Families in IEP Meetings training registration: https://docs.google.com/forms/d/e/1FAIpQLSdv4Y73t_n-xjOr2QHH5J4pcvyaqGqaKB2dTqORemXzPnHZCA/viewform

 

Dr. Pacha’s website: https://www.empoweredsolutions.org/

Instagram: https://www.instagram.com/_empowered_solutions/

Facebook: https://www.facebook.com/empowerededucationsolutions

 

Sign up for our Pulse Newsletter and stay informed at: https://www.pwsausa.org/join-newsletter/

PWSA | USA Instagram: https://www.instagram.com/pwsausa/

PWSA | USA Facebook: https://www.facebook.com/PWSAUSA

 

Intro Music: https://www.bensound.com/; License certificate #2242442 

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