All Episodes

August 19, 2025 29 mins

The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 

24 Hour Crisis Line: 941-312-0400

Planned Giving

Your PWS Story Matters—And the Legacy You Leave Can Echo Far into the Future - Prader-Willi Syndrome Association | USA

Planned Giving | PWSA USA

PWSA Memory

Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA

Events

PWSAUSA 50th Anniversary: Journey of Hope Celebration - Campaign

Journey of Hope Gala Honoree Spotlight: Dr. Dan Driscoll, MD, PhD - Prader-Willi Syndrome Association | USA

Journey of Hope Gala Honoree Spotlight: Dr. Suzanne Cassidy, MD - Prader-Willi Syndrome Association | USA

Aaron Weber Stand-Up: Having a Newborn, Urgent Care | The Tonight Show Starring Jimmy Fallon

Fundraisers

Cocktails for a Cause- A Night for Prader-Willi Syndrome - Campaign

PWSA Fundraising Pages - Campaign

Spotlight on Hope

Share Your Story - Prader-Willi Syndrome Association | USA

Advocacy

Michigan PWS Families - Your Voices are Needed! - Prader-Willi Syndrome Association | USA

Federal Budget Proposals Could Undermine Critical Supports for Students with Prader-Willi Syndrome - Prader-Willi Syndrome Association | USA

PWS Advocates Participate in Rare Across America Congressional Meetings - Prader-Willi Syndrome Association | USA

Help Expand Disability Services for PWS – Share Your Story - Prader-Willi Syndrome Association | USA

Family Support

The Importance of Caring for your Relationship - Prader-Willi Syndrome Association | USA

Empowering PWS Families in IEP Meetings – Registration for Parent Training

Ask Nurse Lynn: Bowel Blockage, Edema, and Hospital Stay - Prader-Willi Syndrome Association | USA

Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA

Research

Harmony Biosciences TEMPO Trial Webinar: Webinar Registration - Zoom

Aardvark Therapeutics HERO Trial: U.S. Sites Now Open - Prader-Willi Syndrome Association | USA

Minneapolis, Minnesota University of Minnesota Masonic Childrens Hospital Contact: Bradley Miller, MD Phone: (612) 624-5409 Email: mille685@umn.edu

www.heroforpws.com

Prader-Willi Syndrome Clinical Scholarship Announcement - Prader-Willi Syndrome Association | USA

Request for Prader-Willi Syndrome Research Grant Applications

Announcements/Resource Spotlight

School Success Summit - Prader-Willi Syndrome Association


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