The latest in PWSA | USA events and PWS news in research, family support, and advocacy.
24 Hour Crisis Line: 941-312-0400
Direct Support Professionals Week
In Recognition of Direct Support Professionals - Prader-Willi Syndrome Association | USA
PWSA Memory
Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA
Events
PWSAUSA 50th Anniversary: Journey of Hope Celebration - Campaign
Hotel Options: Where Can We Take You? | Endless Experiences & Top Locations | Marriott Bonvoy
Journey of Hope Gala Honoree Spotlight: Janalee Heinemann - Prader-Willi Syndrome Association | USA
Fundraisers
Cocktails for a Cause- A Night for Prader-Willi Syndrome - Campaign
PWSA Fundraising Pages - Campaign
Spotlight on Hope
Share Your Story - Prader-Willi Syndrome Association | USA
Advocacy
Calling Minnesota PWS Families - Prader-Willi Syndrome Association | USA
Calling Montana PWS Families - Prader-Willi Syndrome Association | USA
Calling Alaska PWS Families - Prader-Willi Syndrome Association | USA
Help Expand Disability Services for PWS – Share Your Story - Prader-Willi Syndrome Association | USA
Family Support
Grandparent Perspectives - Prader-Willi Syndrome Association | USA
Ask Nurse Lynn: Glucose Monitoring - Prader-Willi Syndrome Association | USA
Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA
Research
Social Skills in Children with Prader-Willi Syndrome: A Survey of Caregivers | QuestionPro Survey
KKrukowski1@thechicagoschool.edu
Harmony Biosciences TEMPO Trial Webinar Recording: Harmony Biosciences TEMPO PWS Study Webinar
Aardvark Therapeutics HERO Trial: U.S. Sites Now Open - Prader-Willi Syndrome Association | USA
Gainesville, Florida UF Shands Childrens Hospital Contact: Jennifer Miller, MD Phone: (352) 294-8229 Email: millejl@peds.ufl.edu
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