The latest in PWSA | USA events and PWS news in research, family support, and advocacy.
24 Hour Crisis Line: 941-312-0400
Gala Live Auction
PWSA | USA's 50th Anniversary: Journey of Hope Gala AUCTION
50th-Gala-How-to-Bid-on-the-Silent-Auction.pdf
PWSA Memory
1982_Vol-VIII-N5-Sept-Oct-1982.pdf
Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA
Events
PWSA | USA's 50th Anniversary: Journey of Hope Gala - Campaign
Fundraisers
2nd Annual Dance Silly for Prader-Willi - Prader-Willi Syndrome Association | USA
Cocktails for a Cause- A Night for Prader-Willi Syndrome - Campaign
Prader-Silly: A Night of Rare Laughs - Prader-Willi Syndrome Association | USA
PWSA Fundraising Pages - Campaign
Spotlight on Hope
Rising Star in the PWS Community and Beyond - Prader-Willi Syndrome Association | USA
Share Your Story - Prader-Willi Syndrome Association | USA
Advocacy
2024-Rare-Roadmap_Rare-Research.pdf
Global PWS Registry - Prader-Willi Syndrome Association | USA
TREND Community - Prader-Willi Syndrome Association | USA
Help Expand Disability Services for PWS – Share Your Story - Prader-Willi Syndrome Association | USA
Family Support
Adults with PWS: Living a Happy, Healthy Life - Prader-Willi Syndrome Association | USA
C15 Foundation – Where Unlimited Potential Can Grow and Thrive
Affecting Sleep with PWS - Prader-Willi Syndrome Association | USA
Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA
Research
Aardvark Therapeutics HERO Trial: U.S. Sites Now Open - Prader-Willi Syndrome Association | USA
Seattle, Washington Seattle Children's Hospital Contact: Isabella Niu, MD / Stephanie Purdy Phone: (206) 987-2640 Email: stephanie.purdy@seattlechildrens.org
Prader-Willi Syndrome Clinical Scholarship Announcement - Prader-Willi Syndrome Association | USA
Request for Prader-Willi Syndrome Research Grant Applications
Announcements/Resource Spotlight
NICU-Booklet-Rebranded-2022.pdf
Intro Music: https://www.bensound.com/ License certificate #2242442
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