All Episodes

October 21, 2025 36 mins

Ep63 Pulse 133: Nile Hope Workshop and Camp, Department of Education Layoffs, Prader Silly Live Auction

The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 

24 Hour Crisis Line: 941-312-0400

Prader-Silly Live Auction

Prader Silly: A Night of Rare Laughs

PWSA Memory

2001_Vol-26-N5.pdf

Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA

Events | Fundraisers

Golf | The RMC Foundation

PWSA Fundraising Pages - Campaign

Spotlight on Hope

A Halloween Party with Heart: Dancing Silly for Prader-Willi - Prader-Willi Syndrome Association | USA

Share Your Story - Prader-Willi Syndrome Association | USA

Advocacy

Cuts to Department of Education Affect Individuals with PWS – Call to Action! - Prader-Willi Syndrome Association | USA

Dr. Destiny Pacha on Instagram: Dr. Destiny Pacha (@_empowered_solutions) • Instagram photos and videos

Dr. Destiny Pacha on Facebook: EmpowerED Solutions | Facebook

Family Support

PWS Families Gather in Egypt for Nile Hope Workshop and Camp - Prader-Willi Syndrome Association | USA

PWS-Community-Day-Invite.pdf

PWS Community Day Survey

Ask Nurse Lynn: New Forgetfulness and Neurological/Psychological Concerns - Prader-Willi Syndrome Association | USA

Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA

Research

Enrolling now VNS4PWS

Prader-Willi Syndrome Clinical Scholarship Announcement - Prader-Willi Syndrome Association | USA

Request for Prader-Willi Syndrome Research Grant Applications

Announcements/Resource Spotlight

Dental-Health-in-Children-and-Adults-with-PWS.pdf

 

Intro Music: https://www.bensound.com/  License certificate #2242442 

 

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