Understanding PDA From A Professional Mom

Resources:

Ability Innovations

https://www.abilityinnovations.com

https://www.facebook.com/groups/1752959375267838

Therapy Unmasked

https://www.therapy-unmasked.com

Kathryn's Providers:

1. Dr. Sara Rice Schiff: my kids’ PDA specialist neuropsychologist; based in CA, but also licensed in UT; [phone] or [e-mail]
2. Madison Martinez, CSW: my kids’ PDA-affirming therapist; she also offers super helpful parenting sessions; Tree of Life Children’s Center; [phone]
3. Dr. Lindsey Tubaugh: my kids’ PDA-affirming pediatric audiologist; Kai and Shipton have Misophonia and Auditory Processing Disorder and wear low-gain hearing aids; lowering sensory overload has been helpful to managing PDA; Little Heroes Pediatric Hearing Clinic; [phone]
4. The Neurobehavioral Center for Growth: my kids had positive experiences in private and teens’ group therapy here in the recent past until their provider moved locations. One of my IRL friends was able to get the PDA profile added onto her child’s Autism diagnoses when evaluated here recently. [phone]
5. The OCD & Anxiety Treatment Center: Exposure and Response Therapy; Kai qualified for the Intensive Outpatient Treatment Program; at the time Kai participated, the program was child-led; many of our PDA’ers also have high levels of anxiety; when addressed at the right time (ie-Kai was 15 YO), with the right providers, and in the right ways, managing anxiety can be helpful for PDA. Have courage to modify or even walk away if it isn’t a good fit; [phone]
6. Stacey Browning: Shipton’s PDA-aware feeding therapist at the ARFID/intensive feeding clinic at Primary Children’s Rehab; (801)-397-8721
7. Emily Wilcox, DNP, APRN, PMHNP-BC: Consider speaking with your kids’ doctor about medications; while there are no medications currently available for PDA specifically, managing anxiety and offering support for ADHD and Autism through medications, paired with therapies, has been helpful for my kids. My two youngest kids (under 18 YO) have their medications managed by Emily at Matt’s Place; (801)-614-8400
8. Alysha Stokes, APRN FNP-C: my kids’ favorite provider at their pediatrician’s office; I cannot say enough good about her intuition and collaborative nature; Farr West/Brigham City Pediatrics; (435)-734-2433
9. PDA North America PDA-affirming providers list: listed by state; we currently don’t have many options in UT, but I’m hopeful it will grow!  https://pdanorthamerica.org/pda-affirming-providers/

Social Media Support Groups:

1. PDA North America: https://www.facebook.com/share/19GtAx2EcZ/?mibextid=wwXIfr
2. Kristy Forbes; Adult coach who has PDA herself: https://www.facebook.com/share/1C8RW8SDGz/?mibextid=wwXIfr
3. Sally Cat’s; Adult coach who has PDA herself: https://www.facebook.com/share/1EsHACizug/?mibextid=wwXIfr
4. Neurowild; Adult coach who has PDA herself as well as one of her children: https://www.facebook.com/share/1BHve5Nsuv/?mibextid=wwXIfr
5. No