Episode 27: A Baby with Spina Bifida, with Lucy Ware

KEY TOPICS: 1 birth, gender reveal, spina bifida (myelomeningocele), frank breech, caesarean, disability, positivity

 

We're meeting Lucy Ware in this episode, mother to little ray of sunshine toddler Lottie! This is the most impressive gender reveal story so far, at the concert of a famous pop star in 2023 (that even made the news!) A few weeks later however, Lucy and her partner Jake were told that anomalies seen at the 20 week scan showed their little girl had spina bifida. This lead them on a journey away from the Rock for stressful scans and medical consultations... Lucy describes those weeks as being the worst of her life, as the couple grappled with questions and uncertainty.

 

A naturally positive couple, they decided to continue with the pregnancy and learn how best to support their daughter. They discovered that her bowel, bladder, ankles and feet would be most affected, and that her birth was too high-risk for Gibraltar. Lucy describes how in her third trimester, she and Jake undertook a roadtrip, relocating to London for the caesarean birth and specialist care. Lottie was born safely but then underwent major surgery within hours, spending weeks in hospital before the family could travel back to the Rock.

 

Lucy speaks so eloquently about Lottie's journey, and what it's like learning to care for a child with a physical disability. Lottie is developing into a bright and happy little girl, handling her physiotherapy and follow-up appointments well and settling into nursery. This is a proud loving family raising awareness and promoting inclusivity within the community, with a message of hope and positivity in the face of a difficult diagnosis. It's been a real privilege to capture this story (recorded May 2025), and I'm so grateful to Lucy for sharing.

For support, UK Charity Shine: https://www.shinecharity.org.uk/

Local charity PossAbilities: https://possabilities-gib.com/

Find 'Born on the Rock: Gibraltar Birth Stories' on Facebook and Instagram for more

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