Episode Transcript
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Robyn (00:01):
Welcome in.
And happy Monday or whatever dayyou're listening to this.
This is Quiett mom, POTS talk.
We today we have a little bitdifferent approach.
Today because we wanted to sortof.
do something a little bit more.
I guess we could say in formalso we're going to talk about
(00:23):
this month.
October is dysautonomia.
Awareness month is.
Did I say that right?
Zoe.
I hope so.
I think so.
So let's talk about whatdysautonomia is.
Word for.
The group of.
Disorders.
(00:43):
I do it.
Okay.
You telling me what'sdysautonomia, Zoe.
zoe (00:47):
Dysautonomia is.
The umbrella group of disorders.
Orders that Haas's a part of.
Okay.
It is a.
The dysfunction of the autonomicnervous system or the ans.
Ans which controls all of theinvoluntary parts.
Of your body, all of theinvoluntary functions in your
(01:08):
body.
Okay.
So pop.
Is.
Is, it stands for.
Postural orthostatic.
Caca cardio syndrome did.
Party.
Yeah.
Syndrome.
Okay.
Say it.
You say it the right way.
Zoe postural or.
Hispanic tachycardia syndrome.
Okay.
So that's what POTS.
(01:29):
That's it.
And if you haven't listened orif this is your first episode,
With us.
Zoe has POTS Let's stick withDysautonomia how do you get
dysautonomia?
You can get dysautonomia from.
A.
Illness or injury.
Like some sort of physical.
Physical trauma.
(01:50):
In my case, It would be.
The concussion.
Some people like end.
With long COVID, which I thinkis a form of dysautonomia.
I.
I don't know that they've reallyclassified that yet.
But a lot of people with.
With long COVID.
Are treated the same way.
People with POTS are treated.
I was talking to a friend ofmine the other day.
(02:12):
And.
And seen her since last year.
She's actually one of theteachers that substitutes.
It's for me a lot.
And she was checking it on myfamily and they have everybody.
He was doing.
And she was, I was telling herabout.
You and that you had been, thatwe are doing a POTSS, a podcast
now about POTSS.
And she goes, oh, did she getthat from having long COVID?
So that's something.
(02:33):
That's a.
New or, and it's.
The more publicized.
That's a very commonassociation.
Yeah.
So you got your POTS from yourconcussion.
Concussions, which basicallywould be classified in the
trauma category.
The word trauma is used a lotthese days.
And.
(02:53):
Sometimes trauma can mean.
Things like a blow to the.
The head or an actual injury,like a concussion.
But oftentimes.
We talk about trauma being theway we grew.
Up or abuse as a child or thingslike that.
So we're talking.
About in this case, trauma meanslike a physical trauma.
Yeah.
Like concussions or a really badinjury or.
(03:16):
Or a surgery or something likethat.
Do we know.
Or do we.
Or do you know if we know.
We being the people who.
Have titles for things.
If.
Th the trauma, if.
Like a traumatic childhood or atraumatic event.
(03:37):
Could cause.
The same thing, like.
Like a dysautonomia.
To know me out here now.
Aye.
Okay.
If you don't know.
I would imagine, like, based onall of the research that has
come out recently, Being thatlike mental health can have some
of the same impacts thatphysical health can.
I feel like it probably could,but.
(03:58):
That's not necessarily sayingthat it would.
My thing on.
Okay.
So I think Jesus.
So I think.
That.
I know that for me.
I have ADHD.
And so I've done a lot ofresearch and not a lot of
research, but I've done.
I guess.
It is research, but it's when Ithink research, I think like
(04:20):
big.
Encyclopedias.
Cause I grew up in the nineties.
And books.
Like flipping pages and divingdeep into research and studies.
And things like that when I saythe word research, but my
research has been like podcasts.
And tick talk and.
Some Google searches.
But what.
I've found and heard.
There's a lot of people that areconnecting trauma.
(04:41):
And a traumatic childhood or atraumatic relationship.
Or event like that.
Is connected to.
To some forms of ADHD.
And actually there is a doctor.
Out there.
I won't, I don't know who it is,but I know that there is a
doctor out there.
Pretty public in saying that.
He doesn't believe that ADHD.
Is actually a mental healthcondition and there has been
(05:03):
science to disprove that.
Or not a.
Mental health condition, but anactual medical condition.
He is saying that it's traumaresponse.
Which I know that that's.
Not necessarily true.
I don't think it's true anyways.
But we've seen.
I mean evidence in the medicalworld that that's not true.
But we do also know that peoplecan have ADHD or.
(05:24):
At least symptoms of ADHD as aresult of traumatic events in
their life.
So it wouldn't be too far.
I feel out there.
For us to maybe make thatconclusion, but obviously
science.
And things like that have toprove or disprove right.
So maybe now.
It's different with ADHD than itis with POTS too, because.
(05:45):
ADHD is very like neurologicaland.
It's something going on withyour brain when POTS is more
like.
It's your nervous systems.
It is still neurological.
But that affects.
Like your whole body.
And I don't, I.
I don't know, brain sciencesuper well.
Brain science, brain science.
Cause what I'm.
(06:05):
About to say is kind of brainscience-based, but ADHD.
He is a dis function or adisorder.
I don't know what the right wordis.
Forgive me medical people, asI'm not a medical.
Medical person.
And this is a good place for usto like insert a little
disclaimer.
Claimer that we're not medicalpeople.
Yeah.
I don't have degrees inmedicine.
(06:26):
And we are just people who are,have The research, some things,
and we're talking about our lifeand the experiences that we
have.
So do not use our words todiagnose yourself or not
diagnose or undyed.
Undiagnosed yourself orwhatever.
We're just people talking aboutthese.
These things, but.
ADHD is a dysfunction of yourpreferred.
Prefrontal cortex.
(06:48):
The autonomic nervous system is.
The part of your brain.
That kind of lives in the backof your brain, like near.
Are your brainstem that affects,or that manages and controls.
Trolls.
Your involuntary functions ofyour body.
That's.
That's what tells you to breathewhen you need to breathe without
telling you to breathe and.
Runs your heart and yourdigestion and all of those
(07:09):
things.
So it's important.
To for it to.
Function properly.
Like one of the symptoms thatyou have had.
That I've experienced with you.
Where you've had.
Heart rate symptoms.
Sometimes your pulse is off.
Sometimes your breathing is off.
Sometimes your balance is off.
So those are the things thatreally.
(07:30):
We are the way that you'reaffected and that's the
autonomic.
Nervous system that createsthose involuntary functions.
In the body.
Yeah.
So what are some other condemn?
Conditions that fall under thedis oughta.
No Mia.
Umbrella.
(07:51):
Zoe.
Zoe.
And I decided to have thisconversation as she was Googling
things.
When I was asking thesequestions, she's like, let's
just have this conversation.
I'm like, well, keep your phoneclose.
'cause I probably going to thinkof some other questions.
And I'm going to have you lookthings up.
So she's looking it up rightnow.
But this is actually, thisconversation is one of.
The reasons why we started tohave, we thought this would be a
(08:11):
fun podcast.
Because we talk about thesekinds of things all the time,
and we sort of go into deep.
Thought and talk about it.
So do you have a list?
Okay.
Other dysautonomia first on thelist is POTS.
I just want to point that out.
Probably one of the most.
I think it is.
Yeah.
Another one is orthostatic.
(08:32):
Hypotension, vasovagal syncope,familial.
Dysautonomia here, autonomicfailure.
That sounds scary.
Multiple system atrophy.
Inappropriate sinus.
Tachycardia.
And there's more, but that'sjust kind of a.
(08:52):
Short list.
So if other, if we were likeprofession, responsible
podcasters.
Maybe we would've spent sometime researching.
Some of those things to knowwhat they are.
Right.
But.
We just started.
Just started our podcast andwe're just here to be the mom
and daughter.
Water and the support system forpeople who are dealing with some
of these things.
Not.
The information.
(09:15):
The information dispensers.
Like, we'll tell you.
About ads or whatever.
So if you'd.
Have any of those otherconditions you might be familiar
and there's probably a lot.
Lot of overlap in some of this.
That is a lot of overlap.
And some of the treatments, someof the things that you said just
from my.
tiny medical background as amassage therapist, I guess.
(09:36):
That's more than a tiny medicalbackground, but I was a massage
therapist for a while.
So I know.
Some of those words and I couldprobably break it down and
figure out what it is from the.
Medical terminology.
But we just wanted to.
Talk about dysautonomiaawareness month and there's not.
I wonder if there's a color, doyou know.
Is there.
I think I.
I think the dysautonomia coloris green.
(09:58):
Yeah.
Cause like we have breast cancerawareness month.
That is pink and.
There are like different typesof cancers have the different
color.
And.
And if you watch the NFL, we'rea huge NFL, just football
family.
And here in this household.
So they're doing their crucialcatch, which is.
Dysautonomia awareness isturquoise.
(10:20):
I loved.
That's funny because that wasalways like my favorite color.
Turquoise has always.
Always favorite color.
I'm up and lately there's likethe turquoise.
I don't know where this is goingto go completely off the rails.
And off-track.
But the, when we here in Seattlestarted.
Started the crack in a couple.
A while back the Seahawkschanged.
Their colors to the dark Navyblue and then added the lime
(10:43):
green.
Green, which you can see behindus, if you were watching the
video of.
Portion of this.
This is R was.
I created this room for my sonwhen he was born.
And it's the Seahawks colors.
And they added the lime green afew years ago.
But.
And then lime green has beenhere forever since you were
born.
Yes.
Yes, but it has not beenforever.
(11:03):
You know, those throwbackjerseys that they've been.
You said it like, it was like,not that long ago.
For a person that's my age.
It was not that long ago.
And people who have been.
Seahawks fans from the start,which the Seahawks started in
the mid seventies.
I was born and the in 1979.
So there's my age.
But it was added in probably.
(11:25):
Probably 2000.
Four.
Okay.
If you are watching this andyou're a podcast person, feel
free to.
Comment and correct me.
I may or may not read thecomment as Seahawks person.
A podcast person.
If you want to comment on thisand send us a message, feel free
to send us a message.
I'm not exactly.
Sure how to get those messages.
But you can do that.
(11:45):
And I.
I will gladly field yourquestions.
This is probably going to be theone that we get.
The most comments on.
But it was probably 2004 ish.
Maybe not too much before that,because I know Shaun alexander.
I want to say when SeanAlexander started, which I don't
know when that was.
But he married a high school.
(12:05):
Classmate of my husband, who Ithought you were gonna say, like
he married.
High schooler.
He married no.
He married a classmate.
Classmate of dads.
And I remember when they met.
Met or like they came here andshe met him.
She was kind of like, there's.
He wrote a book and he read,talks about it in his book.
So I know this only through thebook.
But when he met Valerie.
(12:27):
They were walking around.
She took him to the.
The field.
And I think if I remembercorrectly, she took him to save.
Cofield.
Cause she didn't know where itwas, but it was partly because
they were.
We're rebuilding the kingdom.
They had, I don't know exactly.
When all this happened andprobably around 2000, 2000, I'm
telling the story.
That I don't even know.
I haven't read the book.
(12:47):
I was a big Sean Alexander fanwhen he was.
Sean Alexander.
Anyways, this is going off thetrack.
Anyways.
But what was my point?
Oh.
It changed around that same timewhen this, they blew up the.
Kingdom.
I moved the team to Huskystadium for a couple of years.
Years while quest field wasbeing built.
(13:08):
And that was when.
The T the colors were changed.
So it was like in the early twothousands.
It was like, It seems like.
That hasn't been there forever.
And it has been since you wereborn.
Yeah, probably.
For sure since Theron was well,no, I.
I think it was like 2004 whenthey changed it because wasn't
(13:30):
Marshawn.
Drafted in like, oh four.
And he was there for like a yearor two.
And they still had just the bluejerseys.
Well, Do I see that?
I don't know if only dad washere because.
There were three color change.
There's.
Has been three color changes.
God.
There was the Royal blue.
Jerseys.
And gray.
Oh, yeah, silver.
(13:51):
Her pants.
And then there was these colors.
This is the light, like thePacific blue.
Blue, I think is this lighterblue, colors minus we are
totally cutting.
And then we'll have this out.
We're not cutting this out.
And then the dark blue.
And then another phase to wherewe are right now.
Now was they changed this blueto a gray, the lighter blue
change to gray.
(14:12):
And then they added the stormgrade.
And then probably, I don't know,a few.
Years after that, that's whenthey added the neon green
jerseys.
So there've been quite a fewcolor changes.
The Seahawks have gone.
Through a lot of identity.
I had some identity crisises.
It seems like.
Now they've added back the NFL,the change.
They added back.
(14:33):
Throwback uniforms.
We have though that.
That's like post midlife crisis.
You're getting yours.
Stuff together again.
You think that's.
A good thing.
Yes, but going back to go back.
I could see that.
But during that middle, if youwant to say the color.
Color change was a midlifecrisis.
(14:53):
There were some pretty awesomethings that happened.
We want.
At a super bowl.
We went to our first Superbowlwith this color combination.
Or they changed to the newercolor combination.
Yeah.
And those were like the lighter.
I have one of the lighter Navyblue jerseys, not quite as.
The dark is what they are now.
But But that, that.
It was with Marshawn Lynch, theold jerseys, Marshawn Lynch also
(15:13):
wore the new, new.
New Jersey's Marshawn Lynch mayhave been drafted in the Royal
blue.
Jerseys though, like that mayhave been a thing.
I don't think it wasn't.
He was.
He wasn't drafted.
He was traded.
We got him from Buffalo.
After he had a leg.
Injury.
Oh, I forgot.
He was in Buffalo.
Yeah.
And the first Superbowl we werewearing this color combo, the
(15:34):
lighter blue, not.
The great.
The green, not the gray, thegreen.
Was there, but it was only justthe eye.
It wasn't as big as it is now.
But then the Seahawks.
Hawks or not Seahawks, but thenSeattle, like the Sounders came
in and they kind of picked.
Picked up on the green.
But then the Krakken came in.
This is where I was going withthis.
Started the Krakken came.
(15:55):
Came in and they have this likethat teal.
The Krakken teal color.
I love that color.
It's a turquoise.
Turquoise.
T, well, the Mariners have theteal.
The Krakken has an eye.
It's almost like a Tiffany bluecolor.
I don't know if that'strademarked.
That title, but that's the colorthat it is.
It's like one of my favorite.
(16:16):
In my top three of colors rightnow that Krakken.
It has been for a while orwhatever.
Yeah.
So anyways.
That is it that color?
Teal.
That's the dysautonomia color.
That's where.
Full circle moment.
Well, the joke is like 10minutes.
Can you.
Like tell.
(16:36):
Tell me you have 80.
I have add without I am tellingyou, I have add without telling.
Telling you, I have add,although I already said it twice
today, but.
I think so.
I've seen it before.
But.
But I've also seen like, youknow, like the ribbon things,
cause it is a ribbon is.
That's whatever, and they are alot of the colors overlap.
Though, too.
(16:57):
Yeah.
Yeah, but like I've seen theribbon things that have like,
It.
Fades into a lighter or darkercolors.
So I really don't know.
Okay.
Well, maybe try to find it.
I don't know if I'm savvyenough.
To figure out how to put it inour show notes or in our like
Transco.
Script.
But maybe one of these days I'lllearn how to do.
(17:17):
I do this stuff like aprofessional.
Podcast.
The person we're.
We're not a professional podcastor people.
But so that's.
The color of the dysautonomia.
If we figure it out, we shouldmake like a little, a teal.
Picture or.
Post it on.
Yeah, we'll post them onInstagram.
Or tic talk or do we don't thinkwe have a tick talk?
(17:37):
I think we just have Instagram.
Do we have a Facebook?
No, just Instagram.
Okay, so, so yeah, questions,how, okay.
So we talked about how you getit.
What other conditions we talkedabout?
What other conditions.
We've talked about autonomicnervous system.
I don't have anything else onmy.
Notes about that.
So Oh, be a really short.
At one for today.
Talk about that.
(18:00):
I.
If you.
Like this is, this is us.
Us.
This is.
Zoe and Zoe's mom, Quiett mom.
talk quiet mom, POTS talk.
Thanks for listening.
If you.
Like this you might want to, andyou want to get a little bit
more information about.
POTS and where we came from.
And Zoe is trademarked.
(18:20):
Sit breaks.
There are a few other episodesfor you to find.
And.
We would love for you to explorethat?
Yes.
Yes.
I keep saying I'm in thisepisode, I feel like when we
started out with.
Not saying Just one more thingto like close it.
All up.
Dysautonomia is very difficultand it.
Affects, basically everythingbecause it affects things that
(18:41):
you don't even think.
Happen in your body.
And.
Being.
Being somebody that deals withdysautonomia.
It's very good to have people.
People that support you andpeople who are understanding.
And who are not.
Critical.
My best advice for anyone whoknows somebody.
Who has somebody in their lifewith dysautonomia is to just be.
(19:02):
Sensitive to them.
Be comforting, be supportive.
Fortive and be understandingdon't criticize.
Assize them for feeling bad orfor missing out on something.
And B.
Give them grace because it'simportant.
Important.
If you are a person who has adysautonomia.
(19:24):
It's important for you to listento your body.
It's important for you to takecare of yourself because if your
body can't function.
Well, in things like pumpingyour blood or breathing.
It's a big deal and it.
Makes you tired and it makes youcranky and it makes it so that
you have a hard.
Hard time functioning and you dohave to, there are times in life
(19:45):
that you have to.
Tough it out and just do it.
So if it's not something inyour.
Our world that you have to toughit out and just do it might be a
good time for you to take arest.
So if you are a friends, Withthat person comfort them for
missing out.
Don't make them.
I feel bad and just love on eachother.
And remember if you are thatperson.
But it's okay to not be okay.
(20:06):
And.
That's a really like it's amental health term and we just
pass mental health.
Awareness day on the 10th or11th of October.
But But we want you to know thatit's okay to not be okay.
And it's okay to listen toyourself.
When you're not.
Okay.
Final last words.
I said my final, last words.
Thank you.
And.
Share this, if you want to.
(20:28):
If you want to share our.
Craziness.
This is the real view.
Have.
If you're a mom and you have.
The daughter and your crazy,like this, share that with them.
If you're a daughter.
And you have a mom and you'recrazy like this, share this with
them.
And if you don't have a mom, acrazy mom, you can adopt me.
I will be.
Everybody's question.
Is everybody's crazy.
(20:49):
Crazy Quiett mom.
All right.
Thank you guys.
Have a good night and we willsee you next time.