Quiett Introduction

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Episode Transcript

quiett-mom-pod-cast_1_08- (00:03):
Robyn and Zoe, mom and daughter, have
mom talk about dealing withchronic illness as they navigate
a POTS diagnosis.
We believe everyone needssomeone to confide in, relate
with, and get support from.
Want to always Inspire mothersand daughters alike to live
their best life in the mostfulfilling way possible.

(00:24):
But they also realize what itmeans to be okay with not being
okay.
Especially when navigating achronic illness.
Hello, I'm Robyn.
I'm Zoe.
Hello, I'm Robyn.
Okay, let's go.

(00:50):
Hello, I'm Robyn.
I'm Zoe.
And this is the Quiett Mom PotsTalk podcast.
in today's episode.
We are going to go over what isPOTS, who we are, why we are
here, and what you can expectfrom us through journey of our

(01:10):
first ever podcast.
Zoe is going to start telling usabout what POTS is.
If you're confused and you don'tknow what it is, if you're here,
you probably know what it is.
But POTS is It stands forpostural orthostatic tachycardia
syndrome, which is an autonomicnervous system disorder or

(01:35):
dysautonomia.
It affects things that your bodydoes without you having to think
about it, which is yourautonomic nervous system.
So breathing, your heart rate,Your, digestive system, your
temperature regulation, yourcirculation, basically anything
that your body is doing non stopwhen you're not thinking of it,

(01:56):
when you're not telling yourbody to move your arm.
POTS is a chronic illness underthe dysautonomia umbrella.
Let's tell everybody who we are.
Yeah, you are.
I'm Robyn.
I am the mom in the Quiett mompots talk equation.

(02:18):
I have a little minor history inthe medical field as a massage
therapist.
I went to massage school rightout of high school.
I also married my high schoolsweetheart and I'm a I had two
lovely children.
One of them is Zoe.
She was my first.
And then my second was a littleless than two years later.

(02:40):
I had two children under two fora little bit of time and it was
a little bit of a handful.
I was a stay at home mom and Zoewas a colicky baby.
And I feel like our journey toget to where we are today for me
being the supporter and thehelper and her journey through

(03:01):
POTS has been, I started backthen when she was a baby going,
something is wrong, we have tohelp, you have to help me help
my child and I knew that therewas something and we just
struggled finding me.
a diagnosis.
I don't know.
And I doubt that it was potsback then.
It's probably just a mom thatdidn't know what the heck was
going on because that's what wedo when we're the first time

(03:22):
moms.
But I do remember saying thesame things that I've heard her
say recently.
Like I just want an answer.
I just want to know what'shappening.
And I just want to know how tofix what's happening to me and
not just.
Cover the symptoms or tell meit's in my head.
And I had that when she was ababy, but as I navigated my kids
through school, I was a stay athome mom for a while.

(03:44):
And then I went back to work asa massage therapist.
I did a little bit of a parttime work doing massage.
I also did a lot of side hustlesto get me through mentally.
And to help out a little bitfinancially with our family,
We've had a very traditionalstay at home mom situation where

(04:05):
I was a volunteer at school.
I was always there.
I remember having backseat talkswith Zoe and her friends about
things that they were learningin school that I had no problem
talking about.
We won't go into those details.
for having us.
Anyways, as they've gottenolder, I decided to go back to
school and become a teacher andI work at an alternative high

(04:26):
school now.
And one of the reasons why we'rehere, which we'll get into a
little bit more, but I just wantto, I've always had this passion
for inspiring and helping mykids, but then Also helping
women and people who struggle tohave a voice for themselves and
help people to learn how to selfadvocate.
So that's one of the reasons whyI'm here.
And that's one of the reasonswhy we decided to do the Quiett

(04:47):
mom, the mom, part of the momtalks.
So Zoe does mom is becauseyou're my mom and it's because
I'm her mom and not everybodyhas a mom that will talk to them
about the things that I talkedto.
Yeah, that's very true.
I am Zoe's mom, but now I'm thevolunteer mom on my own in the

(05:08):
Quiett Mom Pots podcast.
You're going to have a hard timewith that one.
Okay.
That is a little bit about me.
I think that's enough about me.
Let's talk about the star of theshow which is Zoe.
Zoe is the one who reallybrought us here and she's done
the research.
She's done a lot of the stuffthat is going to be the meat of

(05:28):
the things that you're going tolearn about POTS.
I'm just the inspirational andcheerleader hype squad side of
it.
I am Zoe, obviously I'm 20 yearsold and I have POTS.
I work as a receptionist at achiropractor's office and I'm

(05:49):
about to start teaching at adance studio for kids.
I danced since I was a year anda half through junior year in
high school.
And I competed seven of thealmost 16 years that I danced.
And I was always super flexibleand hyper mobile throughout
basically my whole childhood.

(06:13):
In middle school, I had a lot ofknee problems.
They never really figured outwhat was wrong with it, went
through a couple differentdiagnoses and nothing ever
really stuck.
I still have issues with myknees today, sometimes even up
into my hips and down my ankles.
In fifth grade, I got my firstconcussion.

(06:34):
I have had seven concussions,and the first one really was the
worst.
I fractured a piece of my skulland got fluid in my brain.
Since then, I was just reallysusceptible to concussions.
The second one was prettysignificant, but every one after
that was something very minorthat just caused me to have a
concussion because I was so Now,after being diagnosed with POTS

(07:01):
in December, I have started tomanage all of my symptoms and
continue to live life normallyas much as possible while still
catering to my needs and makingsure I take the time for myself
to take care of what I need to.
And that brings us to here.
One of the things that Zoe wastold, not to speak for you, but

(07:24):
was to do some research and seewhat she found online and what
resonated with her.
One of the reasons we are hereis because it's been hard for
us, for Zoe specifically, butit's hard to find information
and help about what POTS is.
There's a lot of things.
Out there, but it's also,there's a lot of, not vetted

(07:52):
real information.
That's all bad.
That's all bad.
That's not may or may not beaccurate before we go too much
further.
We should probably put ourdisclaimer in here, which is we
are not medical professionals.
We are not.
Experts by any means, please donot take what we are saying for

(08:13):
medical advice as we are notdoctors.
And we are here to just give youan insight of what we're dealing
with and what Zoe's dealing withand what she's learned, but get
your.
Treatment and all of yourmedical advice from your medical
professional, we're just here togive support.

(08:40):
What's your goal for why we aregetting there?
Let me figure it out.
Okay.
Figure out how to say it.
Geez.
After I was diagnosed with POTS,I was told by my doctor to do as
much research as I could andfigure out what I related with

(09:00):
and what I experienced.
What I found was a lot ofdifferent symptoms that I
related with, things that Idealt with every day that I
thought were normal, but reallywere because of POTS.
And along with that, Ieventually went to physical
therapy, and my physicaltherapist, Recommended a website

(09:21):
for me, and when I found thatwebsite, it had a ton of
different Dysautonomiaprofessionals and specialists on
there, and there was only one inmy area.
And when I say in my area, Imean in a 500 mile radius of my
area.

(09:41):
That was really discouraging tosee, to know that there's not
even that many doctors that knowabout it, or that treat it, or
that can help with it.
Luckily for me, I've been seeinga neurologist since my first
concussion back in fifth grade.
So I had an insight on that end,and I had also been seeing a

(10:01):
cardiologist for all of thesesymptoms I had been dealing
with.
They were able to help me andpoint me in the right
directions, and now I'm finallygetting into a specialist.
Hopefully soon, but I wanted tobe able to help other people
understand what POTS is and whatyou can deal with and what

(10:23):
things can help that don'trequire going to a doctor's
appointment.
Yes, I'm not trying to give youthe medical advice and tell you
what a doctor would say, but, Iam experiencing POTS for myself,
and it's probably not the sameas anybody else, but what I have
done might be able to help otherpeople find things that could

(10:46):
help them.
So a lot of chronic illness ingeneral is similar to POTS in
that everybody's presented withit in a different way.
So Zoe has some ideas.
Some things, if you have POTS,use it.
I honestly think some of thethings that we're going to teach
you about, especially The firstthing that we're going to talk
about next week, you can use inyour own world, even if you

(11:09):
don't have pots.
so that's what we're here for.
We're going to be here.
What you can expect from us iswe're going to be here about
once a week.
We are probably going to try toget all of our episodes out on
Mondays.
And you can expect to get aboutone a week from us and, we will

(11:30):
be here to you.
Navigate through this.
We want to be your hype squad.
We want to be somebody you canrelate to.
There will, we will have anoption for you guys to be able
to send emails, ask usquestions.
And maybe we'll have someexperts in, we don't really know
right now.
Not real experts, just likespecial guests.

(11:53):
Right now we just are startingwith the two of us because we
think that we're prettyinteresting and we, and that you
want to listen to us.
We think we're so cool.
We think that we're interestingand it would be fun to sit and
talk in our room for a while.
That's why we're here.
We're here to give you momadvice.
That's where I come in.

(12:14):
Thanks mom.
And we're here to be your hypesquad and encourage you to be
you and to like, sometimeseverybody has bad days.
Sometimes people with POTS thinkand feel like they're having
more bad days than the averageperson, which is probably true.
But everybody's bad days are alittle different.
And when you deal with POTS,it's more things about your body

(12:38):
and It's hard to have to dealwith it, but we're going to
teach you some strategies andalso give you the grace to just
accept yourself the way that youare.
Some days you just don't have itin you to do what you have to
do, and that's okay.
Sometimes it's not your best,but.
You just have to acceptyourself, give yourself grace,

(13:01):
love yourself.
And we're here to encourage youto do that.
Anything else before we head tothe next episode?
We're the perfect sit breakpodcast, the perfect sit break
podcast.
Next week, our second episodewill be all real episode.

(13:22):
It will be all on sit breaks.
We're going to have a little bitbetter.
It'll be a little bit morestructured.
And we're going to talk aboutsit breaks and why they're so
important.
Less boring, annoying, who weAnnoying?
Less boring us talking aboutourselves.
Yeah.
Less boring introductions, moreactual pot stuff.

(13:43):
And we'll give you somestrategies for your life.
And honestly next week isn'treally pot stuff.
It's just Take a break stuff.
And Zoe, did you, where did you,create the sit break scenario?
So Zoe created this sit breakscenario.
This is a good place to plug.
Zoe has an Instagram page calledP.O.T.S.

(14:04):
Talk that you can find onInstagram and Tik TOK.
Is that?
Are you anywhere else or justthose two places?
Just Instagram and TikTok.
So on Instagram and TikTok, youcan find Zoe at Pots Talk and
that's like the acronym, right?
Yeah.
Periods P, period O.
I don't remember.
Whatever.
We'll put a link in the shownotes to Zoe's Instagram.

(14:29):
And we will have, moreinformation about a sit break
next week.
And we think that sit breaksare, we are like on a sit break
revolution because we think thatit's because we think that a set
break could really change theworld.
So thank you for being heretoday.
Thanks for listening to us.

(14:50):
We will talk to you next Mondayor whatever day that you're
listening to this.
You will be able to find usanywhere that you find your
podcasts.
Also, if you liked this episode,it would be super helpful for us
if you could click the sharebutton and Send them, just share
this with somebody who you thinkcould benefit from this.

(15:11):
Thank you for listening.
We will see you next Monday andyou can catch us on anywhere you
find your podcasts.
We will see you for sit breaksand we just want to say that
everybody needs a little Quietttime.