This summit brought together national member organizations (NMOs), governments, healthcare providers, and advocates to advance equitable care for people with bleeding disorders.
Key Themes of GPAS 2025
- Sustainable access to diagnosis, treatment, and care
- Advocacy strategies for national and global policy reform
- Knowledge exchange between NMOs and healthcare systems
- Multilingual interpretation in 10+ languages including French, Arabic, and Hindi
Lesotho is represented through the leadership of Sejojo, Phaaroe as a World Federation of Hemophilia Ambassador and a presentation on national strategies for integrating hemophilia into broader health systems was featured prominently.
🇱🇸 Lesotho’s NMO Milestones
our advocacy has helped shape several national milestones:
- National Registry Initiative: A proposed platform for hemophilia data collection and research
- Integration into NCCP & NSP: Hemophilia now prioritized in national cancer and health strategic plans
- Multi-team Capacity Building: Training programs for health professionals on hemophilia and HIV co-management
- Stakeholder Networks: Strengthened partnerships for funding, diagnosis, and community outreach
- Advocacy Frameworks: Calls for universal health access and inclusion of rare diseases in national health policy
These efforts are part of a broader push to institutionalize hemophilia care within Lesotho’s healthcare governance and align with global standards. www.thinktankent.com
Success Narration presentation
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