Welcome to Episode 2 of The diaries of a SEND Parent.
I am joined by the incredible Emily who shares her unique journey with daughter Lucy who was diagnosed with Rett Syndrome. We discuss everything from daily struggles, diagnosis, being put on the autism pathway and resources which Lucy desperately needs. Raising awareness for rare genetic disorders is something I’m really passionate about and would be incredibly grateful if you could share this episode once you have listened.
Also want to shout out the amazing Rett charity’s-Rett UK and Reverse Rett who do the most incredible work in supporting children and adults who have been diagnosed with the condition.
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